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So many people seem to think once an elder gets dementia that they have no feelings, no mind at all left, that they're just incapable of emotions and have no idea what is going on, which is a fallacy.
Your FIL belongs in memory care AL where full time aides are not required due to the better ratio of caregivers to residents. Why would this doctor not recommend such a placement and suggest FT aides at exorbitant costs instead????
I will always be grateful to the caregivers who cared for my mom in her ‘end of life’ care home.
The nurses and aides treated her and our entire family with warmth and kindness.
That reminds me of my first OB who, when I told him the anesthesia was wearing off and I could feel him putting in stitches told me, "OK, I'll sew faster." 😡
I don't know your husband but I'm pretty sure he's an intelligent man who doesn't need to be snidely talked down to like that. Doctors know better how to talk to patients and their families because they are taught how to when they are being educated.
I remember when my first husband was sick. One of his doctors sounded very much like your FIL's doctor.
One day I took him to an appointment. By this time he couldn't drive anymore. I had to tell his doctor that the 'Dr, House' persona works for Hugh Laurie on the tv show which is entertainment. In real life a doctor who treats his patients and their people with zero compassion and empathy is just an a$$hole. Sometimes doctors need to be reminded that they not God. That they are just the same as their patients.
Now, I know something about caregiving because I did it for a very long time.
It matters what kind of nursing home a person gets placed in even if they are completely out of it with dementia. They still need to be decently cared for. This means proper hygiene, nutrition, and socialization. To me these are basic human rights for all people. In many nursing homes residents don't get any of the three. So it matters.
Your FIL's doctor is a tool. Your husband should tell him not to be. He's also not a social worker or accountant. So, it wouldn't be for him to tell anyone when to liquidate assets or that quality of care doesn't matter in a nursing home doesn't matter.
I kind of like what the doc said - I have been considering getting an aide to help mom at AL but also think about wasting her money. If it makes her happier when she is still pretty cognizant most of the time, maybe it is money well spent.
Yes, very insensitive of dr to say it does not matter where he ends up at the end of his life.
But, as I and my husband’s neurologist promote his independence and encourage him to do and live right now I can see the meaning of doing or having better life at this point of his life, with better care and companionship. But, not to discount his needs in the future.
It's common to hear many surgeons lack a warm bedside manner.. but can cut people up well, which is what you need. Maybe Neurologists are similar?
Comment seemed harsh but maybe he thinks blunt honestly helps families prepare better?
I expect the video visits were just a Covid thing - over now.
"But, once AL is no longer working, we want to bring FIL home and hire agency help".
Your future plan jumped out. I'll be the blunt one now! That can be Plan A. a dedicated & loving plan. Just have plan B. ready too.
The doctor isn't lacking a warm bedside manner. He is lacking basic manners. He is lacking the professionalism he was taught when he was being educated.
He doesn't have to be all warm and fuzzy with a patient or their family. Just show them basic respect.
I don't know your FIL so I don't know how much he needs one on one supervision and care, so I can really assess whether he was right or not.
Do you trust your FIL’s neurologist? Are you satisfied overall with his care of your FIL?
Personally. I don’t think that a FaceTime interview is enough to see his overall progression. My mother always saw her neurologist in person.
I am not saying that your FIL’s neurologist isn’t a good doctor. Only you can make that call. If you desire a second opinion on this matter then you can always consult with another physician.
I am glad that your husband took your FIL into the office to see the neurologist to get a better look at him.
Doctors have a responsibility to prepare us for what they feel is needed now and in the future.
So, it’s possible that he was only giving you a ‘heads up’ on what lies ahead regarding needing more supervision (hiring additional aides.)
I am curious, did he mention memory care at all in his future? Do you have that option down the road in his present facility? Do you feel that he is approaching the memory care stage?
Does the neurologist plan on doing further testing on your FIL?
As far as money goes, your husband has always been a wonderful advocate for his dad. I’m sure that he will continue to do what he considers best for his dad.
I do not trust this neurologist but FIL still has enough say to insist on continuing with him. He likes him because he allows him to showtime and calls him things like "champ" and "buddy" and says "you're looking well" and other flattery.