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www.heartandstroke.ca/heart/conditions/heart-failure
1. Doing OK and managing as long as I keep taking the meds
2. Preparing to pop my clogs.
End of story.
There are so many factors that effect the progression of CHF, not least of which is the mindset of the patient. Even with a strong desire to follow Drs orders, take all the meds and make life style changes the disease will eventually kill you.
Lorraine of course your mother's condition is very worrying for you but she is trying to keep herself strong. Of course she should continue with the PT but maybe using some oxygen would help her and give her permission to rest when she feels she has had enough. The object of PT is to improve strength so the patient can function for as long as possible not to push them to exhaustion at every session.
I am in the middle of 30 sessions of PT mainly because of weakness, a broken hip and side effects from necessary medications. It is hard and does make me breathless and my joints get exhausted. However 5 minutes on the bike may turn into 2 1/2 minutes, rest then finish the five.
Watch what the PT is doing and if you feel Mom will do better by doing her exercises in a different order and taking longer breaks don't be afraid to speak up. heart failure does cause breathlessness because the heart just is not strong enough to carry the freshly oxygenated blood round the body and muscles with no fuel soon get tired.
Depending on the cause of Mom's heart failue Mom could indeed improve. When you are home alone with Mom help her do the exercises. For example if she has to do leg raises give her legs some support and she will gradually get strong enough to do it on her own.
Above all don't expect miracle or a fast recovery or even any improvement. Accept wht you are dealing with and encourage but don't bully. Everything takes at least twice as long as we get older.
I recovered from a hip replacement at 68 within a few weeks now into recovering ten years later for the other hip and at six months the progress is very slow
I think of myself as an old washing machine, sometimes i refuse to start, other times i stop in mid cycle and occasionaly leak
I have to say I was taken with the person that was dealing with their dad & his drinking & Dr not telling him ...NO!!! Thus struck home for me.
I don't know much about these stages but as I've watched my moms dementia worsen to where we are now... I've also watched my dad worsen over the last 1 1/2 yrs. ... esp last 12 mos. to where he is now! I believe as in Alzheimer's there is stages in CHF!!!! Thus is bad (sh*t). But it all goes back to my dads life style one I am trying to correct for myself... but I know that if they'd pos eaten a better diet & also his drinking... his quality of life would be much better at thus stage of life!
That said... my story really begins with myself & my brother. Both married wth grown children & I wth 5 grand babies! I have kept them all most every day till our last started to pre school this yr & Kindergarden & 1 st , 3rd & 7th!!! My parents were pretty well off I thought as my dad always had $2-$6,000 cash in his pockets most all the time! This was a joke!!! It was my moms money from her parents rent houses! Thus is another story but @ 2015 my brother condensed mom to file for a divorce. I knew had mentioned it a time or two that this was the only way mom could get control of her inheritance money & her rent house money but I didn't think this was wise! Mom was too old to go thru a freaking divorce! I was in the middle of finishing our ranch taxes fir the yr as well as my mother in law was dieing of a leek in her heart vaulted! She and the family knew she was dieing!!! Thus was a very hard time fir me back in April of that yr! My husbands parents were trying to get their things in order with his 2 sisters & do wills & trusts as well as tend to her sister whom was in an Alzhimer home at the time! This was a very hard yr with helping her do taxes & me completed get ours! We run over 150- 200 head of cows, hay bus & quarter horses. I had to finish my business then I felt I could get on top of what my dad was up to! We felt (Cash & Stashing). So... brother proceeded with mom taking her away from my dad April 16th the day after I finished & got our taxes & in laws finances straight!!!! I was left to pick up the pieces of my dads life as he had known it...being the boss of everything in his life even down to the foods that were bought & money spent out of his acts!!! Many!!!! Non of which were his!!! His health cont to worsen as that yr went along. But as a court date would come up... 4 or 5 times now... mom would fall out very ill & be hospitalized & get her home & 2 days later dad would get sick! We gave had to cancel court so many times it's funny now!!! But .. the week before Thanksgiving Daddy goes to my brothers house where mom was living at the time... now her Alzheimer's had gotten a hit worse but her nerves were her real problem!!! Dad was harassing her with lies @ things she had done in their part... all lies... but we couldn't catch him!!! She would tell us later.... but on that day dad ask if he could take her for dinner & talk & my brother let her go. Dad kept mom like two school kids..... none of the lawyers came to Ck on her or discuss with her if this was what she wanted!!! So with him taking her back... I stepped in &?made it clear... her health is much worse & she was not the same as 7 mos ago... she could no longer cook, clean, bathe or do dishes or laundry & she would get even worse!!!! And... I expected him to take care of her & treat her with dignity as she didn't have a clue what my brother had done!!! She had been brain washed by him to give her property away to him & signed over her power of medical & attny to my brother.
So now from Thanksgiving 2015 to June 2017 they have been together at home with both in failing health!!! Dad not giving up to go to a nursing home but I refusing for him to send her!!! He took her back so she would be taken care of! She worked after we graduated school & put up 3xs the amt needed to her retirement plan as well as what she draws from Medicare! She has money to pay for her care!!! Dad would tell me that if something happened to him that he could live off of what she drew???!!!! Nope... should have put your own money up!!! This was hers & I be d*mned if she wold leave this place stuck in a nursing home & my brother claim it!!! She has it & I am spending it on a sitter during the early part of the day! Dad has gotten worse with his fluid build up & gout in his foot so last week I hired her sister who sits to come in the evenings & help thru the night! I've had dad at ER 3 xs this week since last Friday & a Drs apt which he goes back next Tues. He is so close to being on dyalisis & really needs it rt now! So cost per hr for a sitter to me to tend to the both of them is much better than paying a fee fir nursing home fir two!!! And Mom is footing this bill out of her money!!! So he gets itvanyways!!! Lol.
I am cooking and taking foods every other day & Ms. Sandra or Ms. Ruby cook the other times. But dads end really seems to be closer than even a month ago!!! Ready fir Heart & Kidney Drs to get on the same page!!!! One adds mess & the other stops it!!! Then the PA or ER Drs think they know more on emergency calls & pulls all meds esp if on weekends... till they can run tests!!!! We livec60 miles from dads Drs & weekends get bad sometimes & weather has been bad sometimes... so I've gotten him hervat home!!! Won't happen again!!! Anyways... I've rattled enough... but this chf with rental failure is so hard for the caregivers esp when your by yourself! I want my bro & him to say they are sorry with each other but dad won't!!! He won't even let mom see her sister & family!!! But I can't let my bro take her away from her home rt now with her Alzheimer's. She is safe & secure in her home! I feel quilty but in my heart I know I'm rt to keep her at home. Time will work its self out with both of them I know!
Moms sisters daughter lost her husband a yr ago & list her 38 yr old son last Thurs. we had his funeral this Weds. I finally got to go & visit with her family. I did tell them how she was & that daddy was getting worse. I had a good cry with my cousin Dennis who holds priesthood in the church.... He & my uncle Saudi prayer fir me & my brother that things would be with Gods timeing!!!! I feel so much better. But my journey isn't over yet! I know it's only going to get worse in the next few months if not weeks if that with my dad. I will just have to deal with my mom when I have to!!!
I wasn't aware that they had an unpleasant odor. Maybe if enough chocolate was added it would compensate?
Go to Dr McDougall's website and check out his plethora of free information. And check out Rip Esselstyn, Dr Esselstyn's hot son. He was a firefighter in Austin, TX who got his whole firehouse to go vegan. He's a triathlete and very easy on the eyes. :)
That's seen me off Dr. Esselstyn's website all right.
I prefer Michael Pollan's pithier: "eat food. Not too much. Mostly plants."
These two sound like my kind of doctors!
I'm curious also about the "no oil" recommendation. I assume that includes olive oil? So many organic gardeners use this in their own cooking, and they're generally very focused on their health as well - no pesticides, no GMO foods, and as few commercially grown and processed foods as possible.
With CHF, there's retention of fluid, so you would want to avoid foods that contribute to that - specifically salty foods. Junk foods like potato chips fall into this category, but many frozen dinners are also high in sodium, as are condiments and sauces.
Research the ranges of tolerable sodium levels, check labels on all the foods you buy to determine the sodium levels, and plan accordingly.
You can find heart healthy menus and recipes online as well. I just did a quick Google search and got hits on both heart healthy diets, recipes, and more.
I also got several hits for "CHF Diet."
I'm wondering though if you have chronic CHF b/c of underlying conditions; if so, those would be a factor in the effectiveness of your diet, so this is something I would really raise with your cardiologist. E.g., some of the foods which can contribute to hypertension can affect CHF as well.
One thing you can do is substitute herbs for flavoring in lieu of salt and all those high sodium sauces.
Make it a challenge and it'll be easier if you have to give up high fat and high salty foods you enjoy.
You may not want to be saddled with oxygen but it will improve your breathing and allow more activity. Yes you can drive with oxygen there a small portable tanks or a battery operated concentrated. Ask to have your oxygen level checked. If the level is below 88 without oxygen medicare will pay for it.
Warfarin is only one of the anti coagulants available and the downside is that there are diet restrictions and you need regular blood testing. once a month once you are stabilized. The effects are fully reversible. There are several newer more expensive anticoagulants on the market with no restrictions but they are more expensive and they are more difficult to reverse.
There is procedure called an ablation that may be able to control Afib. It is done by threading a catheter through a blood vessel in the groin and advanced to the heart and offending nerve connection are destroyed. it is usually done with sedation but you can insist on general anesthetic as it can take several hours to complete.If you don't already have supplementary insurance with your Medicare it is advisable because the costs can be astronomical unless you can qualify for medicaid. There is a lot of help out there but it takes the effect to find it.
Also, I don't see an anti-clotting medication in that list, is that right? But again, there could be good reasons if you're not taking one.
All the same. If you are experiencing symptoms that interfere with your life, speak up to your nurse, don't suffer in silence. Some things can't be avoided, but that's no reason to assume that nothing can be done to help you. Hugs to you.
He was told by his cardiologist that he is too old for a valve replacement as he wouldn't survive it. I know that 90 is a good age but I'm just not ready to lose him,mi d you I never will be.i have a vacation oozed for June and I don't know whether I should cancel it,my brother has told us to go as if. It's going to happen it will and I could not stop it so I am to go away.
It's hard not knowing how to plan our lives,I'd out everything on hold for him.
If you or your wife were "coerced", that's when you should have been asking what stage her cardiac condition was, what the prospects for survival were, what other options there were.
If you really want to pursue this, you'll need to get your wife's medical records from her cardiologist, the cardio or electrophysiologist who performed the implantation and d/c of it, probably some pacer readouts and of course the hospital records of the surgery.
You should also investigate whether or not the defibrillator had a defective lead. Some leads were defective and could activate w/o cause, resulting in the person in whom the device was implanted to suffer shocks and bodily trauma. In my father's situation, the Medtronic defib lead was defective, and I did agree to have it turned off. But (much to my surprise) his cardiac condition had improved and the defib lead wasn't as necessary as it was when it was inserted when the pacer was changed out.
Unfortunately, the option to remove it was much more complicated, so it was left in but wasn't active. It couldn't accidentally shock him, which could happen with the defective lead left active.
There are a lot of issues with these kinds of pacers with defibs.
If you feel there's grounds for malpractice, you'll need to find a med/mal attorney who will consider the case, order the records for you (expect the cost to be several hundred dollars just to get the records), have them reviewed by a cardiologist or electrophysiologist or other similar expert who will advise whether or not grounds exist for a suit.
Years ago tort reform pushed attorneys in Michigan into the position of having to find a physician who would testify that malpractice had existed. It was a good move, b/c prior to that some aggressive attorneys would "make" a case into a med/mal case, even if it was one.
I am sorry for your loss, especially since your wife was so young. I think it might bring some peace to you to explore whether or not there was malpractice, as the process of an attorney's and medical practitioner's review might provide some insight into what the real situation was, assuming that cardiac arrest was in fact the cause of her death.