By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or
[email protected] to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
*If I am consenting on behalf of someone else, I have the proper authorization to do so. By clicking Get My Results, you agree to our
Privacy Policy. You also consent to receive calls and texts, which may be autodialed, from us and our customer communities. Your consent is not a condition to using our service. Please visit our
Terms of Use. for information about our privacy practices.
The residents are free to go as they please. There is supposed to be someone to let them back in if they are going to be out past desk hours but the person is supposed to let someone know they will be back. I worked in a lovely AL years back and every resident had to be accounted for after the desk closed which was around 8:30 at my place.
There is supposed to be night staff who do regular security rounds. They check on all the residents periodically, mind the doors, and make sure all is well. If the AL your mom is in doesn't have this kind of staff, someone should have a word with their administration because they're supposed to.
If mom is at risk of wandering, AL is probably not the correct level of care. You say she hasn't done this yet, so what is your concern? Is she starting to have behaviors that lead you to be concerned?
My grannie was in a wheelchair and she was a flight risk from the NH. They had to put an ankle bracelet on her so they could catch her if she took flight.
She was in a room that was far from the front door, only door that actually exited the property but, still managed to go missing a couple of times :-( fortunately, they knew right away that Elvis had left the building :-)
I would like to encourage you to not borrow trouble. Deal with things as the become problems or you will wear yourself to a frazzle trying to stay ahead of a very unpredictable disease. She may never become a wanderer.
I would get with the ED and find out why you can't get a response from the emergency buzzer. That is a concern for safety.
The whole point OF AL is that the residents can come and go as they please. Once the level of care increases, then they have to move accordingly. When I had a hard time getting into the AL at night by ringing the bell, I'd simply call the front desk and that would alert the staff that someone was trying to gain access.
I seriously doubt you are going to get the management to change their policies based on one person trying to gain access after hours! Try calling the front desk when you need to get in.......that's your best bet.
Good luck.
My own Dad moved into Independent Living in a senior facility. Much to my surprise later down the road the Adm had a meeting with me where they suggested it was time for Dad to move to their Memory Care section, as Dad was found on numerous occasions trying to leave the building at night, and not coming to the dining room for his dinner.
Dad always acted pretty sharp for his age whenever I visited. Apparently he was "showtiming" when I was there. And now he was "sundowning". So we quickly choose a room in Memory Care for Dad. It was easy to move Dad as I told Dad a "therapeutic fib" that this new room was less expensive and Dad was always trying to save money :)
That's how we made the move; by being forced; that's how it may have to happen with this OP too. In hindsight, I WISH we'd waited another year before moving mom to MC b/c she disliked it a lot & wanted her old apt back in AL very much so. :(
In my opinion, the family should wait until it's ABSOLUTELY NECESSARY for the parent to be placed in Memory Care before making that move b/c it's very difficult for (most of) them to transition (unless they are VERY far advanced). AL is freedom, while MC is another world entirely with many restrictions, etc.
I can def understand about your dad FF, with the wandering and stuff, why he had no other choice but to go into MC. Mom was the queen of Showtiming too, which makes things SO MUCH HARDER!! :(
In facilities for people who are at risk of wandering, a key code to open the door (going in or going out, i.e.) is standard. But for people who do not yet have a formal assessment stating that they are at risk from wandering, preventing them from coming and going as they please would be a deprivation of liberty. At this stage, if you're worried about the issue and your mother is happy to wear one, you can always provide her with a personal tracker.
There's still the point about security in general and if access to the building (as well as out of it!) isn't monitored at all I think I wouldn't be very happy about it. What has the management had to say on the subject?
Memory Care is typically a Locked wing and residents in that area can not leave without being accompanied by a family member or someone that is "approved".
And adding to this...with her in AL anyone that wants to can sign her out, or she can sign herself out, she can leave with anyone. It could be a stranger or family member of another resident. Or another resident themselves, residents come and go at will.
Mom and her friend in AL would take walks around the neighborhood. After a few months, they started getting lost. Each time, they were able to figure out how to call my best friend for help. (Mom didn't want me to know what had happened, but of course my friend told me right away.) We would find them and bring them back home.
After about the third time they got lost, the AL staff realized that telling my mom and her friend not to go out on walks wasn't working because they couldn't remember that they weren't supposed to go. So the staff set up the medical call buttons my mom and her friend wear so that an alarm is triggered whenever either of them tries to exit the building. I only found out when I picked Mom up for a doctor appointment, and the concierge told me they have to keep her call button so she can leave the building. They have a set of hooks behind the counter where they keep the pendants for the residents who leave the premises for appointments, etc.
Mom's cognition continues to decline, but she still lives in AL, which has exit doors everywhere, and she hasn't left the building without a staff member or family member since the change to the call pendant was made. I do not know if this sort of arrangement is common in ALs, but it's working for now with my mom. I'm grateful that this technology is available, since it gives Mom the maximum "independence" she can handle while still keeping her safe.
I think, if you are POA, it is important that you arrange a sitdown with the management to discuss the contract, rules, and expectations in order to see if this is the correct facility for you. But do know the facility makes the rules, not the residents or their families, and usually not the government, either.
Nursing Homes operate very differently. Good luck in finding what the best facility is for the one you love.
You may want to talk to administration about the buzzer not bringing anyone to the door. Maybe its broke or can't be heard in parts of the building or in a residents room. Maybe suggest a keypad to help when coming back after 8:30.
As said, if you are afraid of Mom wandering out the door, maybe time for MC.
You can certainly make a suggestion about a keypad for the front entrance but considering the price of entryways, they will probably not put that into place until they are ready to rebuild the entry. The pendant idea is great if the facility has wiring and an operating system in place to handle it. You should make an appt. to speak with the Administrator to see what, if anything, is available but be aware that their only fallback might be the suggestion to move her to an MC level of care.
Peace
When residents go to the emergency room at night and return, the staff are notified by phone so they can open the door.
Ask what number to call.
There was one night a few years ago when my fiance was in a rehab center after having had very serious surgery. It was his first night there. The anesthesia had made him have delirium and he was very scared, thinking that strangers were coming into his room, that the woman continuously screaming across the hall was being murdered, etc. He called me eight times that night in absolute terror, begging me to come get him. Each time I tried to call the staff so that someone could check on him and comfort him. No one ever answered the phone. Finally, at 3am, I got in the car and drove 10 miles. Through a plate-glass window I saw the nurses on duty sitting in the eating area, so I knocked on the window. They told me that there was no phone in that area and that the front desk closed every day at 5pm! I was outraged and wrote to the out-of-town Corporate Management of that facility, but I seriously doubt that anything changed. No one even responded to me.
This is really about required residents' safety 24 hours, 7 days weekly. However, it's time to move her to memory care.
And, is any staff limited because of Coronavirus restrictions? I hate that "excuse" to use for social distancing.
In CO, ALF are called Assistive Living Residences (ALRs) and they come under the CO DEPARTMENT OF PUBLIC HEALTH AND ENVIRONMENT Health Facilities and Emergency Medical Services Division STANDARDS FOR HOSPITALS AND HEALTH FACILITIES CHAPTER 7 - ASSISTED LIVING RESIDENCES -- 6 CCR 1011-1 Chapter 7 https://www.sos.state.co.us/CCR/GenerateRulePdf.do?ruleVersionId=9550&fileName=6%20CCR%201011-1%20Chapter%2007. Part 25 spells out what a ALF "secure environment" is:
"PART 25 – SECURE ENVIRONMENT
25.1 An assisted living residence may choose to provide a secure environment as that term is defined in Part 2. A secure environment, which may be provided throughout an entire assisted living residence, or in a distinct part of an assisted living residence, shall comply with Parts 1 through 24 of this chapter, in addition to the requirements in this Part 25.
25.2 An assisted living residence that uses any methods or devices to limit, restrict, or prohibit free egress of one or more residents to move unsupervised outside of the ALR or any separate and distinct part of the ALR shall comply with this section regarding secure environment.
25.3 An assisted living residence with a secure environment shall include all the services provided in an unsecured environment plus any additional services specified in this Part 25."
The key here is that the ALR (assistive living residence) "may" choose methods or devices to prohibit free egress. That is it appears to not be generally required but then again this goes back to how your mom's specific facility is licensed to figure out what is or is NOT required. Further, if your mom's ALR has a qualified and licensed "memory care unit" (some have and some do not have this); then other regulations would apply. Skilled nursing facilities (SNFs) have different requirements at both the state and federal level.
All of this can be confusing for sure. IMHO talking with the admin staff to have a clearer understanding of how your mom's facility is licensed and what they are required to do or NOT; and how does that fit your mom's needs now and over time as her dementia progresses would be good so that you can plan accordingly.
Yes, moving her may be hard but it may be necessary in the later stages of the illness if her current ALR is not equipped -- much less licensed -- to handle the care level needs she may have at a later date. Perhaps researching the best Medicare and Medicaid qualified SNF facilities w/high memory care marks would be helpful so if/when the time comes; you'll know what facilities would be best if she has to be moved.
Best of luck with this. Your area agency on aging and/or a licensed elder care attorney is your state may also be helpful to map out any next steps.
Assisted living is just that: assisted. It's meant for seniors (or others) who need occasional assistance with things like cooking or cleaning. It's designed for independent adults who just aren't able to complete some household or personal tasks. Just like in my apartment building, you are free to leave whenever you want-- it's not a jail, and it's not designed to be.
What you are in need of is memory care. It may be an option in your mother's building and it may not be. MC units are locked and staffed 24/7. We specifically chose a building with MC for my parents when my dad had mild Alzheimers, knowing that it would progress and he would eventually need 24/7 MC.
The plan was that when my dad required MC, mom would still be in the same building and be able to see him every day.
Unfortunately (or fortunately), his disease progressed very quickly, and he died before we could move him.
Once he was diagnosed, he could never have lived on his own in AL. If my mom turned her back, he would dump hot coffee or wander off, or anything else to put himself in danger.
I'm sorry for what you're going through. I can definitely relate. I felt like I went through 3 years of hell, mainly trying to help my mother survive my father's disease. There are a lot of us out here, so keeping reaching out and be sure to take care of yourself.
Some of the newer facilities have a key fob that allows you to unlock the door after hours. We had one of those at moms first place and it was so convenient. Unfortunately, most places do not have them. The memory care mom is in now does not have anything like that and it is very time consuming and frustrating to get in and out at any hour.
AL does not do that because it is a security risk. There cannot be say 50 individual keys to the main doors of a facility.
If one knows that the building locked their main entrances at a certain time, it is important to try to get back to the building before that time. Yes, I remember ringing the front door bell and having to wait until a Staff person came to the door, but I expected to have to wait.
I am glad the building rules at set up that way. No one wants to find strangers roaming the hallways.
The desk closed at 8:00pm. This is when we locked up for the night, checked on all our residents and did a head count because we had to account for everyone every night.
If we knew someone was going be out past the desk hours, the night staff knew to expect them and we'd watch for them.
If a resident wants to come back during the wee hours at 3 in the morning, they will have to stay out until the morning whrn the dest reopens.
This is the usual practice of AL facilities. There is also a number they can call and a staff member is supposed to answer.
WHAT YOU DESCRIBED ABOUT THE NURSING HOME YOUR MOM IS IN...IS
UNACCEPTABLE AND SHOULD BE REPORTED THE THE COLORADO HEALTH DEPARTMENT. IT'S ABSURD AND UNSAFE. STAND UP FOR YOUR RIGHTS.
THE OP's (SAMI1966) MOTHER IS NOT IN A NURSING HOME.
SHE'S IN AN ASSISTED LIVING COMMUNITY.
ASSISTED LIVING AND NURSING HOMES HAVE ENTIRELY DIFFERENT LEVELS OF CARE.
I'm all for people standing up for their rights, but really let's stand up for literacy first here.
At the top of Sami1966's post there is a big, black, bold headlining letters spelling out that the mother is in assisted living.
That is not a nursing home.