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"I am caring for my father who is 83 years old, living at home with heart disease, incontinence, and mobility problems.
...Prior to 12/27/2024 he was living with his wife of 43 years. Went in the hospital for a 3 day stay that turned into 2 weeks that turned into rehab, abuse, more hospital stays... 6 weeks later I brought him home and he is 100% bed bound, catheter, 3 pressure ulcers, demanding and his wife "passed" 2 weeks ago.
I am doing this alone, working from his home.
I know I will need help but I cant figure out what I need help with? My dad is the original "Archie Bunker". So that makes it even more difficult.
On top of that, all day he watches game shows on repeat and I complains that everyone is an "idiot". But he is sharp. He can tell you down the paperclip, where it is in his house. He is right every single time.
Sorry to vent"
So maybe this was how his wife cared for him? Hand and foot? Servile? Why are you and your daughter doing it??
If he is 100% bedbound then he should medically qualify for LTC. The good news is that Medicaid pays for LTC, once he spends down his funds and qualified.
If you stop inserting yourselves, then he will feel the impact and may be amenable to voluntarily going into a good facility that accepts Medicaid. He pays for it until he qualifies.
My MIL stopped getting out of bed in AL and made herself 100% bedbound. I moved her to an excellent, faith-based facility where she is in LTC on Medicaid. She even has a private room.
You are in control of this situation but you are somehow under the spell of this Svengali or Rasputin. Why? If you believe he doesn't have dementia (which I will argue he does) then let him arrange for his own care, pay for it and live it.
If you are not his PoA, and no one is, then you can allow the county social workers to come in and deal with him. Eventually he will be assigned a court-appointed legal guardian who will manage him and his affairs and find placement for him. Then you can carry on your relationship with him (or not) to your heart's content, the guardian won't interfere with that. Been there, done that with my SFIL.
You are not responsible for his happiness. We don't get to choose our biological family but we can choose how much or little we interact with them. You don't owe him anything, fyi. Now you've assumed your daughter into this hellish situation. She should run away and I wouldn't blame her.
Maybe consider talking to a therapist since you don't seem able to identify healthy boundaries with your father, and now your daughter isn't able to see them, either.
OTOH maybe it's time he lived somewhere else (in fact I'm sure of it)
And I appreciate the dementia information but this is how he has ALWAYS BEEN. When I talk to my sister about what is going on here she has vivid memories of my dad always being like this and I guess I just blocked it out but I admit I am slowly starting to remember situations from my childhood.
Sadly he is just a mean person. I have been yelled at for waving at a neighbor and I am told not to talk to anyone. Which is not my personality at all. I don't talk about his business or anything about him.
Note: Up until Covid and he didn't want to go to the grocery stores, I hadn't seen my father in 30 years.
Thank you in advance for the advice. It is appreciated.
And Archie Bunker never made his daughter wipe his behind and clean up his urine soaked messes. If I was you I would be placing him in a facility ASAP. Then he can sit all day in his messes. Who knows maybe in a facility he will brush his teeth and shower and not be so gross.
You may see similarities, you may not but education on dementia anyways is really important when you are caregiving.
I may chime in later if I think of more to add
Now that help obviously doesn't have to be you, but you can have your dad hire some in-home help(with his money)to come help clean him up throughout the day.
And I can only guess that because your dad is bedbound and you say his house is "model clean" that that is because you are the one keeping it that way.
Your dad now needs way more help than you can provide and that will mean either him hiring at least part-time in-home help, or him going into the appropriate facility where they will keep him changed and make sure that he brushes his teeth.
I find it kind of sad that you would call your 100% bedbound dad lazy. Do you honestly think that he likes not being able to do for himself?
My late husband was 100% bedridden for the last 22 months of his life and I never considered him lazy, as I knew that if he were able that he would do everything in his power that he could.
You may want to start offering to brush his teeth at least twice a day if him not brushing bothers you so, or like already said, you can have your dad hire help to do just that.
I think you have bitten off way more than you can chew and it's now time to look at doing plan B or even C.
Also, what gets me upset, is he will go on and on to the therapist about how he couldn't do any of this without me and goes on and on but that is NOT how he treats me when we are alone.
Sorry, I am just so frustrated.
My Mom lived with me for 20 months. She had Dementia and her decline was monthly. I was lucky that at times I had help with bathing but not with toileting. For me, that was the worst. I was placing her in an AL for respite care because of my nieces wedding out of State. It became permanent. In the 20 months I had her, I found a 24/7 Caregiver I am not. I don't think you are either and thats OK. Its OK to place Dad. Use whatever money he has and then apply for Medicaid. Find a nice Long-term care facility that takes Medicaid.
Yes I am his POA, and only heir in his will. He left out my sister and brother which there is no "good" reason. I just happen to be the favorite child of the moment.
I know something needs to change. He has PLENTY of money to live and hire a full-time caregiver. He has enough money to hire 5 full-time caregivers. He just wants what he wants and he wants me HERE. I know because I posted I opened myself to comments. It is just so hard and I guess no one would or would understand unless they were me and in my shoes. I get that.
Honestly, I would give the same advice to others.
What he wants doesn't matter. You matter 100% more than he does, because he is a selfish and dirty man who refuses to do any basic personal hygiene.
Tell dad he has 2 weeks to hire help because you are done - and be done.
Have a great day everyone!!!
I've just read a book on sleep, which recommends postponing breakfast for several hours to extend the time the body isn't digesting, or alternatively skipping lunch. That would be a good enough 'excuse' for me to 'motivate'.
I’m not joking about food, even if just his favorites. Food availability is REAL, he can’t fake it.
"It is easier for my daughter to do it."
Tell him it isn't easier and you need help taking care of him. Maybe he'll be more receptive if he knows this is really bothering you.
My money is on dementia .
My father in law stopped hygiene as well . But knew everything that was still going on in the world from watching the news because he was interested in the news . His memory was not effected until later .
Just because he knows the PGA golf standings doesn’t mean he doesn’t have dementia . If it’s something he’s really interested in , those things can stick in his memory .
Many assume that memory issues are always the first sign of dementia . That is because Alzheimers is the most comman type, like 80% I think .
But my mother and father in law had vascular dementia . Their memories weren’t bad , but they lacked reason. And ignoring hygiene but thinking they had done it was the first sign for them . Your father may actually think he does brush his teeth etc . My mother and father in law both sat a urine soaked depend unfazed by it , would insist they were dry .
They could carry on intelligent conversations , people thought they were sharp . But they would lie , confabulate , and make excuses and try to manipulate .
To answer your question about what to do …..
Place your father in a facility or he hires help , this will only get worse . Give notice that you can not do this anymore . Whether it’s dementia or , mental illness or laziness it doesn’t matter ….
Hearing Dad say “ I don’t want to get it on me and my daughter does such a good job “ would have me running for the hills .
As far as the will , no inheritance is guaranteed , it will either be eaten up paying for his care or he is so loony at some point he will cut you out of the will anyway for some perceived slight . Do you want to be stuck years caregiving for an absent father who is mean only to find out you weren’t an heir ? Because he didn’t tell you he changed the will so you would stay to take care of him ?
Gotta be honest , after 30 years of no father , no way would I have gotten involved in this . No matter how much money he has.
He’s mean and manipulative and says creepy things. If I was you if you have POA I would give it up and never look back .
(Thankyou Burnt for this term).
Vent.
Then look at this with fresh eyes.
Vent more.
Get angry.
Take action!