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2 things to know.
1. She would probably be considered Hospice eligible due to the dementia.
2. She wold be considered Hospice eligible due to declining dialysis treatment.
If she goes on Hospice because of the dementia you can later decide to try dialysis and she could remain on Hospice. On the other hand if she enters Hospice because she is declining dialysis if you later decide to try it she would not be eligible for Hospice (they could change the diagnosis to dementia though)
Personally if her quality of life is not good if it were me I would elect to NOT do dialysis and go on Hospice and let them help me manage any pain or discomfort I may have.
There are many advantages to having Hospice.
She/you will have a Nurse that will come at least 1 time a week to check on her. A CNA at least 2 times a week to help bathe and dress her as well as order supplies.
You will have medications delivered to you as well as other supplies.
If equipment is needed that will be delivered to you as well.
Honestly I can not see a downside to going on Hospice.
There are 2 types. One is a For Profit the other is Not for Profit. The Hospice I used for my Husband was a Not for Profit and I could not have been more pleased. The goal was patient focused not saving or making money.
The option is to do nothing and putting Mom on Hospice. Eventually the Toxins will make her septic and she will pass. So sorry that u need to make this decision.
About a year ago, I was faced with a similar situation. My father required surgical intervention for a heart condition. We decided against it and contacted our local hospices as Grandma1954 suggested. It’s been a good decision for us. It’s given him quality of life and I don’t believe the surgery would have given him quality or quantity. As you said, I don’t think he could’ve handled it.
No matter what you decide, I wish you peace and comfort. I understand how tough this is.
It seems cruel to make her go through all of that.
in brief: just go for treating her through nutritions. i know that you will do alot of reseach on google but believe me its really useful. find the nutritional deficiencies which cause dementia and the first thing you have to think about it is Anemia (iron. ferretin. vitaminb12 ... and all the items related to that including basic minerals like zinc. potassium and so on)
find the nutritional deficiences that cause kidney diseases
im reading in english. german. swedish. swiss only for my mom and each one has different point of view. you can use google translate. even you can read in japanese. try to read universities reseaches.
try your best to go for alternative medicine which you can find lots of solutions but you have to have patience to read and to make sure that this is completely right.
wish you all the best
I wouldn't accept dialysis unless it is going to markedly increase her quality of life.
Its a hard choice for you to have to make, but you know her views when she didn't have dementia, balance treatment against current need and what you think she would want you to do.
You asked how it may benefit her? I'm really not sure. All I know is I recently met a lady who declined the dialysis option & passed quicker than everyone expected. She was at very end stage kidney disease though. She got weaker & a little more confused each day until just sleeping. It was very peaceful & what she chose.
What you and your family have to decide is it going to improve her other health issues? Dialysis is very hard on a person and you are looking at several times a week, each time takes hours. The chances of her pulling the needles out are high if she has dementia. I know we all want our loved ones to live forever, but a some point we need to protect them from medicinal treatments that will do more harm than good.
He has signed a DNR for paramedics and has an advanced directive for doctors and hospital...you must do both.
If you read up on dialysis, you will see how difficult it is. I agree hospice is the way to go. Death from kidney failure is not always peaceful, however, so you need to be prepared, hence hospice support is vital.
Hugs to you.
He had undergone 600 dialysis treatments. He did not want to do it anymore. He was 69 when he passed.
My daughter is an RN and has worked in rehab/LTC for 20 years. And she would probably say, don't do it.
I was my father's health care proxy, my father passed away over 13 years ago. He had stage 4 lung cancer, colon cancer, while in the hospital he suffered a stroke that affected his whole right side of the body and was on a respirator. I had a conversation with his PCP and it was best to put an end to his suffering. It still was a difficult decision to make however if I didn’t do that he would have just been laying in a hospital bed, unresponsive and linked to machines just to breathe for God knows how long. I knew he would not have wanted to go on like that.
God bless you for being there for her, good luck in your situation.
I have to agree with most comments here. By choosing hospice, they can keep your mom comfortable in her final days. Just remember that kidney failure is part of the dying process. Good luck.