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Let her know it is not okay nor appropriate to scream at you. In walking out, even for a minute, 5-10 minutes, an hour - will shift how you feel about the situation and stop it from escalating. She may or may not start to get it: if I act out like this xxx will go away. I don't want her to go away. Likely, the behavior will repeat itself, however you do not need to stand or sit there and 'take it' -
Key is not arguing. Sounds like you are doing that.
Even as we understand intellectually that it is dementia or brain changes happening causing the behavior, it still hurts and can affect us. I know. We all know. Giving yourself time outs will help you to shift out of the energy the anger hurled at you feels. You may need to learn how to re-act to change how you feel in your body (practice a meditation). Breathe in deep (love, compassion, kindness, self-love; breathe out negativity, pain, and sadness. Gena.
Thanks to Alzheimer’s Association who had someone to talk to me through those tough times. I’d call them for advice. Wish you well.
I knew virtually nothing about dementia other than having heard the word Alzheimer's when mom's behavior perked up my ears. Observations led me to look up dementia and clearly she was in the very early stages - this is when doctors can miss it, EASILY! Especially regular old GPs/PCPs. Funny, we just changed PCPs and mom couldn't really pass the test. About a month later, I went in for my yearly and they gave ME the test!!! AHAHAHA - If I have dementia, we're both in big trouble! That test wasn't even the full-mini. Remember 3 words and draw a clock with X time indicated (I told them this test will have to change for future generations, who don't know what wall clocks look like!) However, in the very early stages many can muster up enough to "get by" and appear to be "okay." Not one person experiences all the symptoms nor do the progress at the same rate. Despite being almost 96 (going on 3), drifting back in time (asks for mother/father), she was able to draw the time on the clock, but not the whole clock (for instance, showed 3 o'clock but no other numbers.) So, those tests don't really catch much.
Mom started repeating things, on the phone and in person. She chalked it up to being old, but repeating the same questions/statements over and over, nope! In retrospect, there were signs that were so subtle (and I knew nothing about the symptoms/progression) that we likely missed some. One in particular was accusing people of taking items, including her own son (tweezers!!!) Often she would put things away (or hide them) and forget that she had stuff or that she put it somewhere. Always someone took it.
Your postings indicate you were her "go-to" before, so you probably know the most about her day-to-day activities and behavior before and now. You say she was always easy going and now flies off the handle, and this IS a common behavior when dementia starts. As an RN, perhaps you are more aware than the rest of us about what to look for, but sometimes when you're too close to it all you might miss it too! The fact that she takes it out on Hubby (and now you) is another sign - typically those who are closest/provide some of the care are the ones who take the brunt of these tirades. Some are saying it is loss of independence - I can understand someone being unhappy about it, but to rage at someone? I don't think this is normal sadness regarding loss of independence or control.
Question 1 - is there a time of day when these rages are more likely to happen (later in the afternoon perhaps?) Sun-downing is typically later afternoon or early evening, however it CAN occur at other times of the day. I would expect that whatever time of day it happens, it should be consistent (of course what do I know???)
Question 2 - is the anti-depressant new? What is it for? When mom has some "incidents" (typically not, and when reading initially on here about UTIs, I poo-pooed it until it happened to us!), they Rxed an anti-anxiety... Perhaps they are really the same thing? Is she consistent about taking her meds? I wouldn't ask her, I would find a way to monitor it - mom had the regular weekly pill containers, but we had to go with a timed/locked dispenser when she was still living in her condo AND hire aides to check it (That lasted only 2m or less! They sent the "expert" to talk to her and that woman is lucky mom couldn't physically throw her out, because she would have!) With short-term memory loss, they can fall into the "already taken it" but haven't, or "haven't taken it" and take too many because they forget they took it!
The only other thing is to perhaps find out what the "triggers" are. You said she called you - is it possible something happening to her is triggering this? I know when the PCP told mom it wasn't safe for her to live alone, mom got really nasty!! In her mind, even now 3-4 years later, she is fine, independent, etc.
She would also think she lost her CC when she didn't put it back where it belonged in the wallet. I found this out when she asked me to call and cancel her card (couldn't do it herself should have been another flag.) I did, but could not order another from my place, had to wait until I was there (with hearing issues, THAT was not a fun time either!) While in process, doesn't she pull out her card... I tried to "palm" it (and bent it), but after I finished ordering a new one, she demanded her card back! Just a few months later, she calls me to cancel the card again - someone stole it. I waited a few days and then during a phone call had her look in the purse. Sure enough, there it was! She also said someone took her Medicare Card. During a doctor visit (actually anytime she was waiting, including car rides to anywhere) she rifles through the purse and wallet over and over, and LOOK, there is the Medicare card! I snagged it! By the time new ones were issued, I was already assigned as her rep payee so they sent it to me.
So, she very likely would have passed muster for many people, including doctors, if I hadn't been there to set them straight! Only the nurse who visited first before we hired the aides did a GOOD test and said yup, and recommended the pill dispenser.
I never told Beth or her husband about going through all their things and clearing out their condo in order to sell it. I just did it. I saved all the family stuff--old photos, letters, etc.-- to send to family members. Furniture was given to native American community members or Bridging. Their bicycles and tools went to the kids next door.
Their apartment in the memory care facility was set up to look just like their bedroom and den in their condo, with the same furniture, pictures, etc. arranged the same way so it looked like home. Fortunately, it worked and they never asked about leaving.
Neither Beth or her husband could care for themselves and were not coming back. The sale proceeds went right to their checking account to help pay for their care.
Good luck with your efforts. Since my friends had no children or close relatives, my job was easier in not having to deal with them and their issues.
But it still took me 2 1/2 years to get everything taken care of and the place sold. I gave myself a big window of time, since I had my own life to lead, too, and didn't want a lot of extra pressure in taking on their care. And I didn't have to deal with rage or anger, thankfully.
Often it is helpful, as we go along our day, driving where we wish, eating what we want, sleeping or not - depending on OUR own choices, to see how much freedom our parents (and others) have lost. Dementia does often change not only personality but perspective on life as well. As with children, they may strike out at those closest to them - those they, on the deepest levels, trust to love them no matter what. The best reaction is often the hardest thing to do: DON’T take it personally, or try to explain or reason it out. You will only end up frustrated & make your elder more upset.
That said - violent rage can pose a danger to the elder & others. A doctor can prescribe something to help & it goes without saying that a violent person should be in a unit where caregivers are trained to deal with the behavior.
when this first started( the pretty constant screaming and rage) I took her into a geriatric specialist to be evaluated for dementia. My otherwise calm, quiet stepfather had accused my sil of stealing just before he noticeably began Alzheimer’s behavior. At the time she was diagnosed with memory loss but not dementia. That was a little over 3 years ago and has moderate vascular dementia with behavioral changes now.
Double whammy is right, it is the lack of control most of the time. My Mom is still in her home with my Dad. They have 24/7 care. I do everything for them: grocery shopping, clothes shopping, paying their providers and their bills, doctor appts, meds.
At first it was difficult for her. She was in a rage everyday for months then she was better. Yep, that rage was directed at me. I'm evil and she lets everyone know it.
Something would trigger the fact that she was not in control and then here we go again.
It rattles my nerves sometimes, more than others times but That's the way it is. OUR NORMAL HAS BECAME DYSFUNCTIONAL. THAT'S OUR "NEW NORMAL".
It's a road we didn't ever expect but it's a road I know I don't walk alone. Many like me are on it with me and that makes me keep going.
BE STRONG MY FRIEND.
My boss at work is so understanding, but I could retire in 3 years and now I don't even see the end until they are gone.
I went through all this with my dad. I had to be the mean, bad, daughter, who put him in the independent living center, and my brother was the good guy, who finally was able to talk him into it! Three years later, he is now in a nursing home, and delusional most of the time. Let it go.
I had a terrible time with bad temper and behavior from my Father. Although he is in care facility it was terrible and upsetting. The doctor for the care home said he did not have dementia although agreed odd behavior. He took a stroke in January and was admitted to hospital. They did a brain scan. Found he had brain damage from 2 previous strokes. Areas affected caused the odd behavior. Once I knew this have found it easier to accept situation.
I just either agree. Say you are possibly right or I am not sure. This answers most and I feel much calmer. On his really bad days I suddenly remember an appointment or have to meet someone and leave. Takes a lot of practise but gets easier. Good luck
Also, national news has been reporting a link between anti-depressant pharma meds and extreme swings in behavior, rage, and dementia.
My wife is about to come home after about 20 months in either a hospital or a SNF with rehab. Every time she went to the hospital (about 12 times, with admissions form 2 weeks to 6 weeks), her biggest concern was and is always "her stuff". Did the facility pack it up yet? Have you checked on it ? The little bit of "stuff" she has room for is her whole world, and she has become very possessive with her things. Little things that you would not think matter are very important to her.
She is 59, I'm 65. She has some memory problems, but not serious. I spend at least 2 hours a day with her, and up to 6 hours. I have missed maybe 15 days away from her during this whole time.
If she doesn't have any dementia than setting boundaries with her is completely acceptable and I don't understand why people don't do it. What allows her to have the authority to climb your frame and tear you apart and you just take it. You wouldn't let a bratty child do it, why would you allow a bratty senior to do it?
Enough, please don't talk to me that way! Then you hang up if it continues.
Of course she is scared and confused and in a new environment with lung cancer but not all of her cherished stuff. She is probably angry and you should help her deal with her emotions instead of barfing them all over you. Get her a therapist or a friendly visitor that can help her adjust to her new reality.
always.
I Know everyone is different but this one is especially difficult for me because I’m of the “ you can’t take it with you” group....I’m constantly purging my house ....but my husband’s family is all about “stuff.” So probably to be expected that she gets very upset about it.
Yes, she has an extremely slow growing lung cancer ....she is in nebulizer treatments but declined other treatments ( chemo, radiation, etc) We all were onboard w/ her decisions & support them completely.
She also has active DVT ( clots) behind both knees ....she has filters in both legs but is no longer on any anti-coagulant drugs.
I’m a retired nurse ( 40 years!) I keep
close eye on her health issues.
thank you 4 ur answer