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Is there anything you can do to cut costs to afford the daycare? I know that's probably a bad question but I know there are sometimes people that say they don't have money to spend on X but they could if they really wanted to. Not saying this is you, but just making sure not. If you have money saved for your retirement - this is the perfect thing to use it for, IMHO.
ADC programs. Perhaps they would be cheaper?
In the alternate, even one or two days a week would help.
One of the great aspects of adult day is the benefit of social interactions.
I got a Jenga game he stacked the blocks.
Puzzles, card sorting games. Toy cars.
the problems that I had was that while my Husband was pretty much non verbal he was very oral with things so everything went into his mouth. When he started chewing blocks and cards and puzzle pieces they were removed.
Another idea is to have a race to see who can fold the most wash clothes the fastest (let him win the most). You can buy a dozen wash clothes at Walmart for $5-6.
You can set up empty 2 liter pop bottles and have a bowling game, or find an oldies channel and dance.
Recently, they had a Spring Fling musical, since it was the first time in 2 years due to the Pandemic that they all could meet and be in the same room.
Also provided in the ADC setting is the social interaction with new people. You are keeping him very occupied, but maybe the experience of seeing new faces and the camaraderie of new friends may help. Good luck.
Btw.... you seem to be doing a fantastic job of caregiving considering his young age and the length of his dx. Superwoman!!!
https://www.alz.org/local_resources/find_your_local_chapter
Here its about 20. or 25. per hour.
It depends where you are.
They are knowledgeable about AD.
Prayers for you and yours
If your loved one is able to get around how about purchasing an UP Walker Lite. They are around $495 or so. You can also buy a less expensive model on Amazon.com This will give your husband some freedom, exercise and if he can go to the supermarket with you. "Some" insurances will cover this.
I agree with you, keep TV to a minimum. There is no need for someone to sit in a recliner in front of CNN all day and think the world is going to the dogs.
Someone else wrote in about the Veteran's Aid & Attendance. I agree it's a lot of paperwork but it may worth it if your husband was a Veteran. You could benefit too, if needed down the road.
I would call back the Adult Day Programs and ask them flat out about grants, etc. Some Churches also have wonderful respite programs. Some facilities are medical models where there is an RN on site as well as p/t, o/t and speech.
Some are on a sliding scale that include transportation. I would contact the Department of Elderly Affairs, a Geriatrician and also your husband's primary care doctor to see--the more heads together on this one, the better. Also what about the AARP website?
My mother's program they are going to make cards for sick children for the local Children's hospital. They paint, cook, garden and soon to be sitting outdoors. The first day Mom was worn so I changed the time and the second time she made some new friends and they are now all going to sit together at lunchtime. Continental breakfast and a hot lunch are provided.
It was so touching my mother told me her new friend hugged her when she was leaving.
My mother's only complaint was that they put 1% milk in the coffee. I told her I can bring you a coffee, she worried that she didn't want her friends to think she was better than them, so today I will go out and buy my mother some "single" half & half creamers to put in her walker pouch when she goes next week. This way here they won't think we're "coffee snobs". I'm trying to make you laugh.
You're right these things are costly and a lot of people that are middle class are out of luck unless they dig in and roll up their sleeves and perhaps make that 10th phone call as was in my case. You're kind of scrambling for the "right" resources for your particular situation.
In life, you find what you're looking for! Amen...
Let's face it, the longer this goes on the more care your loved one will need.
THEM DIRECTLY FOR ADVICE.
THEY'RE THE BEST PEOPLE TO ASK AND I'M SURE THEY WOULD BE WILLING
TO HELP YOU WITH THE ANSWER TO YOUR QUESTION. GOOD LUCK.
ALSO, GIVING YOUR LOCAL SENIOR CENTER (OFFICE FOR THE AGING) IS ANOTHER PLACE WHERE YOU CAN GET YOUR ANSWERS.
Occasionally, people (elderly entertainers) would come in and perform for them.
Around here, adult day care costs vary a lot. After a while, my Mom got bored because it was the "same old games" and the "same old stories"....even though she was diagnosed with MCI.
A friend's mother has Alzheimer's, and her dad hired some younger women to come do puzzles with her, play Scrabble, and talk about things with her.
My mother's memory care played Hangman with the residents, did trivia time which consisted of the activities coordinator holding up photos of various notable people of Mom's era and reading off some biographical information, and of course, music was everything. Play and sing lots of music your husband would be familiar with.
You can find these on Amazon.
Fortunately, in Canada, there is many programs for free, even transportation provided. Maybe try to find anything at all, church, community centre?
As they focus in those program on social aspect and socializing, there is also some memory exercise and games.
I bought few books, games for a brain, easy to find on Amazon, there is some courses online for free, could be fun, tried some during lockdown.
We play cards, like canasta, chess, my husband also likes puzzles.