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You wrote several paragraphs on your Profile page which are helpful. However, it would be more helpful if you would please rewrite what you wrote on your Profile page under "About Me" on this page so that we do not have to go to your Profile page every time we want to read about your situation. Thank you.
Thank you for your reply. I am 67 and my sister is 64. I understand that all of this was my choice, but I felt I had no choice. Mom had been taken to the hospital, and the doctor said she had given up. I brought her home so she could see her family before she died. She hadn't seen many of us in months because of COVD.
I know that resentment hurts only me. I am hoping that connecting with others who are also caregivers will help me learn how to cope with the resentment - and hopefully rid myself of it.
I think that you need to find a counselor or therapist who can help you work through your feelings because they are so deeply seated and chatting with a group of caregivers is not going to be enough to help you get rid of or decrease the resentment that you are feeling.
My Dad did all of the caregiving of his Mom and his sister rarely did any caregiving. She took their Mom for rides and shopping and to restaurants and that was it. Dad knew what his Sister would or would not do and accepted it. He knew that he could not change his Sister and he did not try to change her.
I will have to go back and read what I originally wrote. I don't remember saying that I resented my mother. You've made some quick judgments based on a small amount of information.
My mother was taken to the hospital from her facility. The doctor said she had seen this before in the elderly and he felt mom had given up. I thought she was going to die and did not want to send her back to the facility to die by herself. So yes, I chose to bring her to my home so she could be with family in her last days. I felt I had no other choice and would make that choice again.
Telling me I shouldn't feel resentment is not helpful. I realize that the resentment is only hurting me. I asked for help in dealing with it - maybe how to rid myself of it. I'm not sure how you gathered that the resentment I feel is so deep that I need a counselor. I thought I was coming to a place to connect with people who are dealing with the same issues I am.
My LO couldn’t leave her AL, and got Covid at the end of March. She survived it, at 92, we are now able to enjoy outside visits with her.
I knew she was potentially MUCH SAFER and much more comfortable where she was, so I sacrificed my chance to be with her when she died.
Your siblings have indicated that the don’t want to help you care for your mother. There is really no way for you to change their minds.
If you resent them, perhaps you should re-examine the decisions that you’ve made on her behalf.
There is actually more to the story. I am new to this so didn't know how much information to give in my first attempt.
Mom was taken to the hospital from her facility. The doctor said she could see that mom had given up. I thought she was going to die so brought her home to be with her family in her last days. She hadn't seen many of us in months because of COVID.
She was not necessarily happy there...and I could see that she needed more care than they could or would give her. Based on what needs to be done for her here, the facility would not be able to care for her. She is not in such bad shape that she needs a nursing home, but needs more than the assisted living facility can give her.
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The resentment has been a problem for quite a while - before mom ever came to live with me. I have always done the majority of the work. I realize that it's always ONE person who does most of the caregiving and I can't change anybody but myself.
I am hoping that connecting with others who know what it is to be a caregiver will help me cope and maybe lessen my resentment.
Thank you for your input. I appreciate it.
The resentment started growing like a fungus - dank & stinking. I didn't want it but had no tools to remove it. Therapy helped (athough these is still a small patch).
You did what you felt was right & sacrificed things to give your Mother quality family time. It would be nice if you were thanked!! So I will. 😍 Thankyou for being a loving daughter/son taking action in a crises, being brave in the face of the unknown & offering your home & heart. Be proud of yourself!
For me, I have a sister with a disability, who lives in a group home. And a couple siblings on the other side of the country. So it's up to me.
What helps me not be resentful, is understanding. Like the ones far away can't do much hands on. Just call and occupy a bit. And the other sister has her own issues.
Does your mom have caregivers helping?
Wish you all the best
I understand how you feel. All of our circumstances are different so I am not comparing our situations.
I was the primary caregiver too. I cared for my dad, mom and a brother. I missed out on a lot of things because I spent so much time caring for them.
No one else had a desire or interest to do so. They never helped me. Like you, of course I knew that I made the choice to do so because I truly cared about them. I felt like I had to show with my actions that I cared. I had no idea what I was getting into. I promised my father on his death bed that I would care for mom.
My parents did not care for their parents. My grandpa died in the hospital and grandma died while visiting my parents at their house. My dad’s parents were dead before I was born. So I had no frame of reference. It’s very hard being a caregiver.
Mom lived in my home for 15 years. She had Parkinson’s disease. She lost her home in Hurricane Katrina. She was far too old to rebuild her home.
She did not have flood insurance because in her neighborhood it wasn’t required. Their home never flooded in a hurricane before. The levee broke and that is how she ended up with nine feet of water in her home. There was a wait period for FEMA trailers.
New Orleans looked like a war zone with all the destruction in the city. All of her neighbors had moved away. I couldn’t leave her there. I couldn’t have immediately placed her in a facility and I wanted to comfort her. All she had left were the few clothes that we packed for our evacuation.
It is not helpful to hear someone remind us about it being our choice because just there are extenuating circumstances and our emotions get the best of us at times.
Plus, we were doing what we felt was best at the time. It’s tough. So, I totally get it.
People state facts and I don’t believe that they mean it to come off as insensitive.
Personally, as someone who walked in your shoes and heard it too I think it would be more useful to initially just show understanding of the situation at hand.
Save expressing the facts for later and show more empathy in the beginning.
I do not like to tell someone new on the forum these things because I remember feeling just as you do.
I am not trying to be critical about anyone, just saying how it feels on our side. They have a right to feel as they do as well.
Maybe it is hard to understand what primary caregivers experience if they have not had first hand knowledge of the emotional, practical and physical side of it. I had no clue about caregiving until I did it myself.
I guess I sort of feel being told that we chose our circumstances is like hearing, “I told you so.” Is the person saying it for themselves or the person who needs the help? That statement doesn’t usually help either.
Anyway, being overwhelmed, exhausted, sometimes not knowing what are the best options as far as care goes adds to the misery.
I was suffering from all of this, plus from isolation and my siblings would stop in for their 15 minute visit to see mom and all I heard was about all of the fun things in their lives, it is horribly insensitive to do that. I never heard them say, ‘Thank you for taking care of mom.’ That would have meant so much to me.
Then to top it off I had to hear my mom say how wonderful it was that my siblings were having so much fun.
Please, that is setting the caregiver up for resentment! Oh, I cooked all of the holiday meals for my entire family. I put a stop to that later. It gets to be too much all around.
Well guess what? I burned out. Now my mom is with my brother and he complains to my nephew. His son says to his father, “Dad, I guess now you know how your sister felt.” My brother called in hospice to help.
My mom will go along with anything my brother says because she has an old fashioned sexist attitude that a man is the ‘head of the home.” She treated me like I was still her little girl. That makes a big difference too.
Vent away!
To the original poster: is there any way you can find someone to come in and help with respite care? I feel like you need a break to go relax somewhere even if it is by yourself. I try to do that once every week or two and it really helps. ❤
Maybe ask your siblings to help make decisions on the scope of care now needed. Finding help from other than family with any part of caregiving can help ease the resentment which comes from expectation. Best of luck.
Whether it is helpful to hear or not, you can't make choices for others, only yourself. Even if you felt you had no other choice, you did. You are thinking with your heart (nothing wrong with that) but those who answer you on this board are thinking with their head and they may see things clearer from their point of view than you are.
Open up with your siblings and tell them EXACTLY what you need. Expecting them to 'just know' is unrealistic. And if they refuse and feel mom should be back in assisted living, accept that and move on. You can't force them to make the same choices you did. Once you accept that hopefully some of the resentment with subside.
My sibs didn’t care because they weren’t interested in helping. When I asked for help they had a million excuses.
If by some miracle they did help for a brief time, they acted like they were doing me a huge favor!
They never considered it was their mom too. It’s truly sad. Plus when a caregiver hears the statement, “It isn’t the sibs responsibly.” I feel that they aren’t completely looking at the entire picture. Guess what? It wasn’t my responsibility either. It doesn’t help to hear this statement even if it’s true. I realize no one is intentionally rubbing something in our face but that is how it makes us feel.
There was no gratitude shown by my sibs. It would have been lovely to hear my siblings express appreciation for my caregiving to our mom.
The resentment comes from being frustrated and isolated. It is natural for resentment to build up when siblings walk in every few months to see mom for 15 minutes and start bragging about how great their life is knowing that the caregiver has no life! It’s extremely insensitive. The same when they start complaining about trivial things. They didn’t have to walk in my shoes.
I am sad about burning out. It was bound to happen. Now my brother has the responsibility because my mom did not want to go into a facility.
Hospice has been called to help, which is good for mom. My mom will listen to my brother because she respects him as the ‘man’ of the house. She looked at me as her little girl.
Sorry for the rant. I have mostly put it behind me but every once in awhile the bad memories rear it’s head! I am grateful that I had a good therapist to speak with.
You decided to bring your mother to your home and retire early.
I don't know if there is any way to effectively "deal with" the feelings. Certainly, having people "remind" you that you made the choice to keep your LO home in your care does really nothing to help those feelings, however true the situation might be. Had I know then what I know now, yes, 2 years ago when my mom began to decline, I would have looked aggressively to place her in a facility. But this decline is like black mold in your house - it starts small and then, insidiously creeps up until it's a full scale infestation. By the time you realize how bad it's gotten, you are left playing catch-up; and then to add insult to injury you have siblings on the periphery who are every much the children of your mother as you are, but do not one thing to assist. Not one thing. Small wonder resentment grows like a weed.
How you deal with it really depends on what sort of relationship you will want to have with your sibs after mom is gone. If you feel once she's passed that you don't care if you ever see them again, then by all means, verbally blast away. Just don't make that decision in a fit of anger, frustration or exhaustion. If you think you might want to have a relationship going forward after, then let them know, somewhat less confrontational, that you're sick of it, exhausted and need some help.
Then - I assume you have access to your mom's funds to use for her care? If so, USE HER FUNDS TO PAY FOR RESPITE CARE so YOU CAN GET A BREAK! If your siblings balk at this, because respite care is pricey (unless your mom has an LTC policy) tell them their choice is mom pays or you drop her on their doorstep when it's convenient for YOU to get a break from this dumpster fire. And then take a well earned, well needed, well deserved vacation somewhere. Maybe a place where they serve you adult beverages with little umbrellas in them.
It was always off and on with having a harmonious and meaningful relationship.
Definitely wasn’t worth continuing the relationship. We cannot change other’s behavior and when the relationship turns toxic, it seems better to end it. At least for me.
I don’t have a right to tell anyone else what to do. We all have to make decisions that feel are best in our particular situation.
Best wishes to you.
If your mom can give you a to do list you should give her a list of agencies that can come be her step and fetch girl.
I know how much it hurts to try and do the right thing only to be taken advantage of. You have every right to say no and you have every right to insist that your mom hire an aide with her money. Maybe she needs to hire a housekeeper to come in twice a month and clean your entire house, that way you can go have some fun while your sister is entertaining your mom.
I have found that you have to stand up for yourself or people will use you as a doormat without hesitation.
You can do this! Great big warm hug filled with strength to you!
Thank you for the suggestions. I appreciate the help and understanding in your response.
Mom has a medical pendant which allows me to get out for short amounts of time and I have access to her money with no problems. I thought about looking into an agency for help, but knowing my mom, I thought getting her a medical pendant would work better. So far...so good.
What hurts the most is my sister knows the work involved taking care of mom (even before she came to live with me) - she visited mom on Tuesdays and Thursdays (unless something came up) and wrote checks to pay bills. I did the rest. She knew all I was doing but never offered to do anymore. I know I could have asked...it just hurt that she knew and didn't offer.
I am learning to speak up and take of myself - which reduces my resentment.
Thank you again.
At the end of the day though we can’t allow the anger to harm us. We can use anger to motivate us to move towards finding a solution.
Both fear and anger must be worked through or they will cripple us.
I am grateful to the posters on the forum that make suggestions of letting go of some of the burdens that we place upon ourselves and suggest a break even if we occasionally have to pay for it.
I wish that I would have been able to see that I did not have to do everything all of the time. I nearly killed myself in the process.
Plus when you think about it, the more we do, the more people expect us to do.
I was blind in so many ways! I really was. I became despondent and simply couldn’t see my situation clearly. Sad but true.
After so long of feeling like I had been the only one doing everything, it was almost as if inside I dared my sister to try and step in to do something - sadly it would have been too little too late. I know I have hung on to some of this as if it's power over her...such an illusion.
I'm glad to have this forum to "talk" about what I am living. To hear others' stories and get feedback has been the therapy I have needed for so long.
You will feel much better.
Instead I’ll say Hang in there- you’re not the only one that this happens to! My siblings are awful, so awful- it hurts. I tell myself I am a strong solid person and nearly ever caregiver, healthcare provider, neighbor and friend tells me I’m doing a great job and that indeed it is unfair.
I’ll say it to all of you that feel the resentment- I bet you’re doing a great job-you are a beacon of light and hope for the world.
Since they are not stepping up, maybe you can decide what you need help with the most and schedule those as appointments. You can be clever or funny if that works for you; you can send an e-vite to TIME WITH MOM/DAD.
Proactive sometimes gets the job done, and it just might work. What have you got to lose?
OP says her siblings should help more. Stunts like you suggest may encourage them to help less.
To make matters worse, my remote siblings made a lot of assumptions about the care I was giving our parents, and it was never good enough-- even though they were rarely within a thousand miles of our home and even though the career I forfeited was an extensively trained professional in the senior care industry. So, yes, I do resent two of my siblings and, yes, the care of our parents has created hard feelings in the family. My Autistic sister and brother are furious with my two remote sisters and think they have been downright abusive. I have come to accept, and it was very painful, that I cannot change people. I have also come to accept that I have to have realistic expectations of family members. What keeps me going forward is that I know I tried my best, I honored my parents, and Mom thanks me everyday.
I don't expect my siblings to. Mainly because one is disabled, and the others live far away
One person cannot do it all; doing so will wreck your health. You must take care of yourself first! You also deserve to have a life. Don’t be browbeaten by “martyrdom”!
I hope I live long enuf to see that caregiving is everyone’s work, not just women’s!
I ask my siblings for help and they either say no, outright refuse with loads of excuses or they ignore my requests. We need to have no expectations- I can’t ask anymore- the insults that come back at me when I ask are the worst.
I actually even told my mom but it hurts her- and we both discuss that yes she as the parent will accept them for whoever they are. Sometimes she justifies their behavior and that’s the worst feeling for me. Other times I feel closer and more intimate with her. We discuss why is this the case-but it’s hard for her to hear my ugly reality- But I also tell her that I don’t question whether I Shld care for both parents (challenges are with both but dad is not cognizant enough to discuss).
we know in our hearts that we are doing the right thing and we love our parents. I told my mom the hardest part is really the lack of sibling support- it does make all the challenges feel even more challenging. There’s no way to change who we are- we are going to help and we are going to pick up the pieces.
im so sorry for your pain and for how you’re treated but I’ll validate it 100 percent- and I’m grateful you shared a very hard truth that I’m experiencing too-and as awful as it is I am reassured knowing others are experiencing the same. Hang in there!! I so appreciate your post.
When speaking of our infirm brother, my sister states that she is “giving the problem to God.” What she means is that she is giving the responsibility for his care to anyone other than herself. She faults others for being concerned about him and coming to his aid. She doesn’t care one jot how her refusal to do more affects those who are trying to help him. Growing up, she was the only one who was emotionally close to this brother. Now she merely calls him occasionally to see how he is while his daughter, his younger brother and myself try to look after him. But my sister has always been self absorbed, entitled, pseudo-religious, and an emotionally absent parent. She doesn’t grasp the meaning of ordinary human compassion or true family love.
In almost every family, the caregiver becomes the one who steps up because of love, guilt, proximity or money. The others immediately fall behind by offering marginal support or trying to hide out from the responsibility entirely. Siblings who live out of town are especially prone to the latter tactic. At first they blow into town to visit the parent, but as the caregiving burden grows, you see less and less of them. Every sibling will find some way to rationalize everything they don’t do.
They will still expect to receive their share of the estate, scrutinize your expenditures after the fact and lay claim to as many of the family heirlooms and memorabilia as is their want, They will make no shamefaced apologies for their conduct, feel no real guilt or later claim they didn’t understand. It’s just how the parent caregiving scenario works. The character of each sibling is always revealed when they are tasked with giving up their freedom for a parent they don’t believe they should have to care for. The love of a parent for a child is normally unbounded; the love for a parent by a child usually is not.
My advice is for you to accept this reality and move on with caring for your parent. Ask or, if necessary, demand from your sister what you specifically need from her when you need it, but don’t expect her to do anything other than what you require. You will be a lot happier when you realize, like most family caregivers, that when you accepted responsibility for your parent, you agreed, for the most part, to do it on your own. You will be a lot happier if you, and every other caregiver in the same situation, stop expecting something from your siblings that is probably never going to happen and lay aside their failures when your parents are gone.
People say...If there is anything I can do to help let me know" ..then they don't do anything. Because "we" don't want to impose or put people out. People are NOT mind readers.
when someone says "if there is anything I can do" You say Oh, that would be great I have a to pick up moms prescriptions on Tuesday, she normally watches Wheel of Fortune that I recorded around 1 could you come over then and just sit with her while I run to the drugstore?
or
I have not been able to get to the store since last week, would you mind picking up some eggs, milk and bread? come over we can have lunch and chat while mom naps.
for your sister..Ask if she would come stay with mom for the weekend so you can get away. Or ask if she would come stay with mom on Wednesdays so you can have a day off. She can come at 9 in the morning and you can be "free" to do what you want until you come home at 4 or 5.
By the way..I read your profile. I think you should bring yourself out of "retirement". Since many schools are doing a hybrid of in school and remote learning is there a way the school would bring you back as one of the remote learning teachers? Or work as a remote Tutor?
Besides, what is truly exhausting is being "where the buck stops". I have a family member who does like to be helpful if given specific tasks, but who NEVER initiates contact or help of any kind. It gets exhausting and makes me feel resentful. And I feel acting this way gets them off the hook because "out of sight, out of mind", while I do all the worrying. It really does feel unfair.