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Depending on how advanced your Mom is, it may not be really possible to have conversations anymore.
Since she's at home, and if she's able, have her do "purposeful tasks" like folding a large number of kitchen towels, sorting things, etc.
Your profile says she lives with you and you work full time. Does this mean you need to leave her alone for any length of time? If so, how are you managing this?
More info would be helpful.
You should be able to talk to your mom the same way you've always talked to her. Tell her about your day, what you did on your lunch, what you have going on the rest of the week and so on and so on.
She's still your mom, and while she may not always know what you're talking about, still share.
And since it's the short term memory that goes first, try asking her about her past and what she all did as a child and teenager. You'll be AMAZED at how well the long term memory is still in tact.
Sounds like you're trying to make this much harder than it needs to be. Instead just enjoy each others company with talks of the past, favorite TV shows, and her favorite music.
My late husband died with vascular dementia and I talked with him about everything even though his speech was very impaired from a massive stroke years earlier, and he couldn't always respond and his comprehension suffered greatly towards the end. It never stopped me from sharing with him though.
I wish you well while you take this final journey with your mom.
For my own brother, he was in early stages of his Lewy's and he wanted to talk about it. He was aware of the prognosis and was aware he saw the world differently. He wanted to speak about how real his hallucinations were, and describe them. He died (luckily) before Lewy's could do its worst. I learned so much from him. We negotiated things together and clung together as always we did in times of problems. Again, I learned so much.
I had very old family photos in a scrapbook including my mom's 1941 yearbooks. Remembering the past, including finding music from ate 30s and 40s brought out memories for my mom. She could even sing the old tunes.
Both of our parents enjoyed being wheeled outdoors when weather was good
My daughter was the one who could talk to her. Moms eyes lit up when she entered the room. She would come to do her wash then sit on Moms bed. Mom would talk and daughter would say "oh yeh" "great" maybe talk about her day. Then when she shevwas leaving give Mom a hug and kiss and tell hervshe was going to work, which Mom accepted. We never said "going home".
I do like another posters idea of asking about their past. I know a lot of my parent's friends from back in the day so maybe bring them up? That'll fill up some time, I guess.
I really like your idea of reading poetry. I'm going to look up some poems that Mum might like to hear again.
Today, I asked Alexa to play "Gilly Gilly Ossenfeffer Katzenellen Bogen by the Sea", which led to an old time medley by Max Bygraves. Mum joined in a little to "Tulips from Amsterdam". She barely speaks now, so that was lovely :)
I never correct her but rather redirect her. I was her least favorite child (of three) but she doesn't seem to remember that either ;)
My mom also loves music and sometimes she would shock me with the choices she asked Alexa to play (many bands or singers I have never heard of).
You might want to hire a caregiver / socialization person to just 'show up' a couple of days a week. Say it is a friend of yours from college or something. It sounds like your dad - both of them - need a lot more care. To find your dad unresponsive in the bathroom is a HUGE red flag to me.
I would ask APS to do an intervention.
As is possible, see if you can handle things that your dad seems incapable of managing himself. From what you share here, he is not making decisions in either of their both interests. Without legal authority, it is close to, if not, impossible to 'do' other than the decisions they / he makes. It is a very difficult situation for likely millions of elders. They have the legal authority to manage their own life although then cannot. This is when MD documentation is needed - to indicate that a person is unable to care for themselves, and giving that responsibility to a family member or someone legally assigned.
Gena / Touch Matters
I know it sounds elementary but, after all, it is about giving them pleasure and happiness. If we did not see one of them, she would ask me, “ I wonder where lizzy is today”.
I tried to live in her reality rather than trying to force her into mine. You can only look at photos so many times. The photos would remind her of how much she had forgotten.
I agree. I decided to not show Mum photos when I learned that she felt distressed when she was aware that she couldn't remember things, especially if she felt she should know. I didn't want to upset her by showing her pictures of people and places she couldn't remember properly.
One needs to be PRESENT with what is while being 'on' to communicate.
I wouldn't be stiff about it.
If you are uncomfortable - feeling a need to think of things to talk about - do not talk, simply smile and hold her hand.
Silence is golden is a phrase for a reason.
Some of the most 'important' communication is non-verbal.
Since she has dementia, she likely won't 'really' care what you talk about. What will matter - affect her more are non-verbal cues: facial expressions, tone of voice, touch.
You could talk about your day ahead or your plans for the rest of the day.
I doubt it will matter much to her what you talk about.
WHAT MATTERS TO HER is that you are there, caring for her, loving her.
Relax into these moments. Look her in the eye and smile.
Perhaps brush her hair ?
Massage her hands ?
Give her a manicure ?
If you feel it would support you, bring magazines and talk about the pictures/photographs. Birds, 'cute' animals - flowers - whatever she might have been interested in prior to dementia. Just be aware that her changing brain could 'see' a 'cute' monkey or elephant as a scary animal. We do not know how she might interpret what she sees visually.
I'd recommend you relax and just talk about yourself, your memories of her, your day, how you appreciate and love her. She'll get it.
Gena / Touch Matters
Relax into the moment is truly a laughable suggestion, because with dementia, the word "relax" doesn't exist for a large majority of elders or visitors.
At one point, my mother decided she didnt want ANY of her photos or photo albums. They were all useless and she asked me to throw them out. I took them home and they're with my photo albums now. So looking at photos was not a thing to do with the woman either 🙄
All I could do was listen to complaining and gossip about others until it was time to leave. As moms dementia worsened and she could no longer understand language very well, things improved a bit from a complaining standpoint. But she'd start yelling WHAT? constantly and I'd have to speak louder and louder to be heard, and then she'd say, "why are you screaming at me, I'm not deaf?"
Communication with an elder can be VERY VERY difficult and I sympathize with everyone going thru this. ShellyF, just do the best you can and consider yourself ahead of the game if mom is not causing a pit to form in your stomach every time you visit.
Best of luck to you.
I have NEVER had luck with any of the usual suggestions about “activities” or looking through photo albums or “reminiscing”.
My mother is angry at her situation. Can’t remember most anything-even things in the past.
Crabby, critical and curmudgeonly.
Visits are torture for both of us.
But just talk about anything you want to talk about.
If she is talking just ask questions about what she is saying. It does not matter if what she is saying makes no sense. If you can't think of anything to ask her just say:
"Oh, that is interesting"
"What did it look like again?"
"What color did you say the----------was?"
Any of these may get her to continue talking.
If she changes subjects just go with the flow.
If she is up for answering questions you can ask about her parents, what her school was like. Anything that you might not know about her or her family.
I will caution on one thing....
Anyone that has had trauma of any kind may begin reliving it or it may rear it's ugly head after being buried for many years. I cofacilitate a Support Group and one of the people that was sitting in on a few of the meetings has been diagnosed with dementia and during one of the meetings she "hinted" at the fact that she had been sexually abused by her father. Since our meetings are held in a "Senior Living facility" I did let the facility director know what was said just incase this became a problem for this woman. At least the facility would be aware of past trauma.
So be aware that things may come up that you might not be ready for.
Here is an excerpt from my recent book "Dementia Care Companion" available from Amazon at https://www.amazon.com/dp/B0BFV21P1V
Fun and Games to Gain Traction
Turn daily tasks into stories, and activities into play. Keep them fun, narrate the steps, add a little challenge, offer an attainable goal or reward, and mix in lots of encouragement. Try different activities and approaches to find what works, and then tweak it to get the best results.
Storytelling
Listening to stories helps keep the patient engaged, without putting too much cognitive burden on them. Patients usually enjoy simple stories that end happily. Folk stories are often great for this purpose, especially if you narrate the story with feeling and flesh it out with bits of your own creative ad-lib. Ask the patient for help in ending some of the sentences, and make the activity into an engaging experience for both of you.
· Add a story to most things you do. It can be as simple as talking through the steps as you prepare the patient for a bath, or a full narration of a folk tale as you keep them company. Stories help focus the mind on the activity at hand and ward off anxiety.
Storytelling Game
In this type of storytelling, one person starts a fictitious story. The next person continues the line of thought and adds something to the story. This activity goes round the room with each person adding to the plot, mostly using humor. The funnier the story, the better the experience.
Make the experience accessible to the patient by telling the story slowly and using simple words. Wait patiently when it’s the patient’s turn to participate. Even when the patient is unable to participate by adding to the story, they nevertheless enjoy the fun atmosphere, especially if the story or the manner in which it is told is funny or amusing. You may find that stories involving sudden and simple punch lines are easier for the patient to enjoy, as the combination of surprise and simplicity is somehow easier to grasp.
Other Games and Activities
When engaging in activities, remember that the goal is for the patient to have fun and enjoy the activity. It doesn’t matter if they do it incorrectly or fail to observe the rules of the game.
Playing Catch
· Fill a small bag with beans. Gently toss the bag to each other and try to catch it.
· Cut a hole in a board or cardboard. Paint the board in a bright color, and try to throw a small ball into the hole from a distance of a few feet. Alternatively, you can use a bucket or a basket instead of a cardboard cutout.
Puzzles
· Draw simple geometric shapes with a part missing, and ask the patient to finish the drawing.
· Write a simple sentence or proverb, leaving one or more words out, and ask the patient to fill in the blanks.
· Tear up a page from a newspaper or magazine into large pieces and ask the patient to put the pieces back together using masking tape.
· Help the patient put together a jigsaw puzzle.
· Collect different coins and ask the patient to help you organize and count them.
· Put a number of familiar objects like spoons, forks, and plates in a bag or a pillowcase, then take turns pulling an item from the bag and, without looking, try to identify it.
Other Activities
· Help the patient to color children’s coloring books.
· Make a ball from wool yarn with the patient’s help.
· Help the patient knit simple things, like a scarf.
The Joy of Reminiscing
People with dementia usually enjoy reminiscing about the past. During the early stage of dementia progression, the patient may happily recount past events to family and friends. Over time, the patient will forget parts of the story and will readily fabricate new parts in their place, believing that the patchwork is the true story.
Eventually, the patient will forget the names of objects, people, and places. With deep
Going to them is the most important thing. My granny had no idea who anyone was but, she could still feel the love and reacted to that.
I think finding things that bring laughter and joy in the moment are the best ways to spend visits. Whatever that may be for your loved one.
She sees me coming and is glad I'm there to visit. I decorate her room for the holidays and seasons. Usually I stay an hour , no more than 2. Sometimes we just watch TV together.
NH living