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i have twi AI illnesses and have cared for my parents for years. Dad is gone but tryst me, my health suffered. One sister pays a week visit every couple if months and believe me, I appreciate being able to not have to visit as much and just getting a break.
mom is bedridden but prior to that she and Dad enjoyed going to the dining room etc. thank God there was a van to go to medical appts. I went with them and they could accommodate the wheelchairs.
make the call and ask how you can help
my2cents suggested that you go there once a month or so and help out and spend some time.
I echo the suggestion. Then you can see first hand what is actually happening. Then you can make the suggestions and figure out how you can directly help. In addition, by being there, you are putting aside your needs and showing your sibling/SIL and parents that you are willing to help out, and not just talk about it.
I know that you said that you have health issues, disabled, etc. Therefore, if you cannot be there and see what is actually going on, then I suggest that you help both parties, by just being a listening ear to the person who is complaining. Just empathize with them and listen (no judgement). If it is something that needs action, tell them that they need to discuss it directly with the person.
Your role to both sides, then will be an empathetic ear to your parents, and for your brother/SIL. Best of all, you will no longer be the phone call that brother/SIL don't answer. (BTW...don't divulge anything what the other side has told you unless it is life threatening.)
P.S. My sister is only able to see my Mom twice a year, about 1 week at a time. In my case, there are some days where my Mom is totally uncooperative. I walk away from my Mom, frustrated and angry. I call my sister and she does a fantastic job of just letting me blow off steam to her. She doesn't provide solutions, just reminds me of how bad it could be/was and is willing to listen. When the phone conversation ends, I feel like I'm ready to sleep on it and go visit the next day. When my Mom complains to my sister, she just listens. When the nurses tell my sister something, she tells them to take it up with me. That's the kind of empathetic listener you want to be. That is the kind of help that you can provide from afar, that benefits everyone.
You need to find out the reason(s) why she/they behave in ways wherein you feel shut out. This needs to be resolved before anything else can - unless you want / choose to continue to give in to the perimeters she/they make.
That your sister responds/behaves as you say and doesn't appear to have a reasonable, clear discussion with you about this is, in large part, the problem that needs to be resolved.
Insist on a discussion and be very clear. Stand up for yourself and your parents.
Gena / Touch Matters
It isn't up to a disabled adult child to do this as you suggest; it requires the sibling(s) to make this workable for everyone, especially, of course, the parents who are the recipients of the decisions made.
All that said as prep. My husband and I made it a driving trip this time and stopped and spent the night at my sister's home on the way home. We had never seen the rebuilt house (burnt to the ground about 5 years ago). Finally during that visit she said "I understand why you go every month." She still is not sure why it has to be a week, but she's coming around.
This trip my husband and
Offer to go and stay so they can have a vacation. Let them pick the dates. They need it. They deserve it.
Thank your SIL. These aren’t her parents yet she is handling a heavy lift. Send her occasional cards, gifts, but most of all, make sure she has breaks (covered by you) and feels your sincere appreciation.
Your gratitude will help significantly.
Never criticize anything they do.
And if you truly want to do more, move there, stop making excuses.
For now, just be a good and loyal visitor.
You owe this poster an apology, in my opinion.
Yes, AL's offer transportation to doctor's offices but perhaps there is a reason for the SIL and the brother too if he does to take them. My husband or I choose to take my MIL because she is profoundly deaf and has memory issues. The poster never said the SIL complained about it. She did say "as needed"...could mean when they have appointment or when her husband or Al can't take her. AL's in bigger cities have specific days for Dr.'s in different areas.
I am also not going to believe that neither their AL, the brother, or the SIL do not take them to the store or outings. If it is like my MIL, it is not whether she is taken to the store but that she complains she doesn't get to go enough. It has been 5 years since she gave up her car and still misses being able to get up and go out whenever she wants. I'm not sure someone with health issues and a disability could haul them around has much as they want especially if they are using walkers or a wheechair. If not now, it is likely walkers or wheelchairs will be in their future.
You may want to request a family meeting with them and professionals such as a licensed social worker and/or facility chaplain or other from the facility and/or include your faith leader . These professionals can mediate an appropriate "family meeting" where your concerns can be both voiced and heard and documented towards a better understanding of the needs.
You can also always contact an Elder Care attorney and talk with them about the dynamics and situation .
If " they talked them out of it" as you say, you will want to be sure that the parents rights are being honored and that they are not being unduly coerced or forced by guilt etc into making decisions that may or may not be in their best interest.
6) You complain about having difficulty in getting answer to your questions.
1) You did not indicate that your parents objected to living with your brother. In fact, he apparently was entrusted by them with their finances and healthcare decisions. I would assume that is via POA. They also rejected your plan to move them.
2) You wanted to move them to an AL near you. Seems rather selfish to want to move them for no logical reason requiring the uprooting them where they likely now have friends, have Dr.'s, local banks, furnishing and possessions to be moved, etc.
3) You clearly have resentment towards both your brother and SIL for your parent's decision to move near your brother and SIL. I suspect from my own experience with a very resentful SIL for the same reason, you are exaggerating, misinterpreting, and minimizing what she and your brother do for your parents. The only "problem" you've stated is one that seems to have no data behind it.
4) You have not complained about your brother or the care by the Assisted Living Facility. Other than alleging your SIL refuses to take them on outings and to the store, your parents have apparently no complained. If they are like my 90 year old MIL, she is taken to the store and has outings but complains it is not often enough. Are you really going to get them out more having healthcare problems and a disability of your own?
5) As others have asked, what sort of involvement are you alleging you want when you live remotely and are not able to gather the data as easily as your brother and SIL? Having experience as an out of state daughter, I trusted my brother and SIL just as my mom did and focused on communication with my mom multiple times a week and with a few visits per year that I felt I could afford. I got verbal assurance mom was o.k. financially and an overview of her health. I did not need to know details. I never expected to have to make any kind of medical decisions because to do that I would have to be there.
6) I don't know the history of your sibling relationship. But from the level of resentment displayed in your post, I'm sure it is not currently good. You might think about your motives for asking for information you aren't getting; whether your parents would want to share it with you; and how you have responded to past information provided; whether you are complaining about his wife to your brother; and the fact that you tried to undermine them by promoting moving to your parents. Seems you have some reflection to do and given them a reason to open the door more to communication.
Most of all, take care of yourself. Enjoy your parents via phone and as much as you can possibly visit them in person. Be grateful rather than resentful for the care that your brother and SIL provide to your parents.
Maybe it’s worth a visit to understand what’s really going on before saying your sibling and SIL who are doing the work that they aren’t doing the work to your expectations. Also, if the parents are cognitively alert, they can change the POA to you - so if they aren’t willing, that speaks volumes.
She thinks I'm upset dad passed. I'm upset because she told me after all this happened - 2 weeks. I let her know I was mad, not in a nasty way but an honest way. We haven't spoken since. I'm not a bad person. It really hurts. I believe if she cares about 'our' relationship, she owes me an apology but I don't think she even sees that and she knows better. Maybe she doesn't care. She was "doing what she was told" and that....what....absolves her?
Sorry I made this about me; this is fresh still. When your sister complains ask her how you can help without moving. I'm sure you have though. Make up a gentle excuse to get off the phone when you've had enough. For stubbornness, all there is is to wait and pray, love them in your heart, have a good emotional support system around you, be ready when a crack opens, and focus on TODAY, on your life ahead of you; just be ready and accept the pain & let God love on you, shielding you from the worst of it. Hugs.
How, exactly, do you want to help?
You mention you are disabled? Do you have any funds to hire help for your parents? That would be a help to everyone.
If you don’t have have funds to hire help, you and your sibling/SIL need to stop this game of control. Your SIL lives closer to your parents, and has accepted the job of primary caregiver. Sure, it’s not without complaints…it’s one of the hardest jobs around.
For you parents sake, find a way to help from afar. Find a way to help your sibling/SIL care for your parents that doesn’t involve a “tug of war” between you all. Getting more help to be hands on for them would be great. Hire someone to take them out or to appts.
Your SIL may be exhausted and while you think it’s an act of congress to get info, please realize that there are not enough hours in the day for caregivers. Getting extra help hired is the best move, and if you can’t afford that, then find a way that works for both you and your sibling.
Can you visit? Can you see for yourself after a couple of days what the sitch is. Maybe you can see a more concrete way to help. I’m not sure why you want to rock the boat at this point. I’m sure you mean well, but moving your parents isn’t an answer.
Do things from afar, call them, give words of encouragement. Hire some additional help…even if you can only afford once or twice, at least it shows you understand the need for help.
Keep us posted.
SIL may think you are a safe person to vent to. SIL may be resentful that most of the tasks are falling on her and they aren't her parents. Your brother may have all of your parents bills set up on auto pay and isn't really contributing to the care of your parents. He should be the one running his/your parents around to the store and visiting...not your SIL. I see that as the real issue here.
The SIL could have valid reasons to be resentful, but that does not mean the OP has to be the sounding board for her crap. She should find a group like this to lay it on, or should take it up with her husband. These are his parents and he controls their money. So he can pay for homecare to make sure they're clean, to bring them to appointments/outings, and he can take the complaints from them himself instead of putting it on his wife.
If I was this guy's wife he would find himself in the divorce court.
In the meantime, the OP needs to stand up for herself to her SIL. I too was the person others felt safe 'venting' to and dumping on until one day many years ago, I took control.
It's extremely rare for me to tolerate anyone's 'venting' to me. Someone has to be very special to me indeed for me to listen to any venting or complaining.
The OP should tell her SIL what I tell people.
I am not an air-conditioner. I don't have vents and it's not up to me to cool you down.
This usually shuts a person up when they try to dump their complaining game on me.
I had one situation when one sibling would not let me visit my late father. I told my psychotherapist, who told me to see him and glad I did. Fortunately, he was local, so I showed up without prior notice to see him under hospice care at home with his wife, 5 months before he passed.
For your own peace of mind, take a trip down to see your folks so YOU can determine what's going on for YOURSELF. Then you can call BS on your sibling and SIL when they start in again with their exaggerated tirades. And, if there really IS an issue going on with the folks, you'll see it for yourself and be able to make an informed decision then and there.
Wishing you the best of luck seeing with your own two eyes what's REALLY going on with your folks.
I do not disagree with the recommendation for the poster to visit her parents in the AL facility. I would assume she has already but if she hasn't she should. It took my equally resentful SIL for the same reason 3 years to first visit my inlaws. Granted some of that time was at the height of COVID making travel not feasible. But she did she talk to my inlaws on the phone frequently...once every three months...more if there were birthdays involved.
I would agree with other and you can phone, write and visit when you are able to. Just wondering why your parent can't decide for themselves, does your sibling have POA for finance and health or just finance? If it's just finance, there's no reason they couldn't move closer for health reasons, so you can look after them more. Ideally your parents should know if they're not happy, and sounds like they're expressing it already. If they are not happy there they should speak to you about moving. If your parents agree then you can seek legal advice to move your parents.
I understand that cost could be involved with legal matters, maybe legal aid if available to just see what your options are.
Keep us posted on your situation, it's good to follow and see how things end up for people writing questions.
It's always good to get info on where you stand legally even via legal aid first, but ideally if your parents agree it would be much easier. Your sibling does not have control over their happiness right? just the finances..
Best wishes.
Point being, just because someone is unhappy or doesn't like the facility they're in, doesn't mean they should move because it is unlikely they will be happy at the next place either.
"I am so sorry to hear about all of this. I trust you to make the right decisions. Let me know if there's something I can do to help."
Then you get on with your own life.
If you are unable to do this I would see a counselor to work out what might work best for you.
For all you know they could be fine and being very well cared for. It could just be a case of your SIL being a martyr who wants to complain. In her defense, it is not up to her to make sure your parents are happy, clean, and entertained. The person she should be complaining to is her husband (your brother) who controls the purse strings. He needs to take it up with the AL that gets paid to care for your parents.
Go visit though. Go and see for yourself what's going on. In a way you're lucky that you don't have POA and aren't responsible.
As far as cleanliness, not sure if that is person or household cleanliness. AL's are not going to clean up everything if they are hoarders...just enough to keep their environment safe. If it is personal care, then it should be addressed if it hasn't already and the solution depends on the underlying problem. If like my MIL, she wants more outings and visits to store than feasible. We also limit it due to her vulnerability to COVID and flu. The SIL takes them to appointments. While AL can, there may be a reason for family to take them. In my MIL's case, she is profoundly hard of hearing and has memory issues so it is best for family to be present rather than have AL do it and only have the summary to look at.
I don't disagree that she should go see her mom, hang around the AL and meet other residents and staff and understand the routine. But there is nothing I see as a reason to have proposed uprooting them from the environment they chose.
I would go and visit without any offer to help. Then you can see what the reality is and step in, if needed.
They could very well need a higher level of care and brother isn't seeing this because his wife has a martyr complex going on and is shielding him from what is needed, so she can sacrifice her life for them.
Obviously they don't want your help. However, you do need to put eyeballs on the situation to ensure your parents are getting the care they need. Take pictures, get parents to sign a HIPAA release for you, talk with their facility to find out what they think of how they are doing and decide what actions you need to take after your visit.
Best of luck. This is a hard situation.
You can also call them frequently to cheer them up and text them(if they know how to text.) You can also send them a "care" package of some of their favorite food items and the like. You're going to have to figure out ways from afar to bring some joy to them and be grateful that in your condition that you don't have control over them. Because as the saying goes...be careful what you wish for.