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suggest therapist & perhaps medical intervention…. Good to catch it before things become impossible. There are mild medications that help. If you can find someone who specializes in geriatric medicine … that would be great!
The caregiver burn out, lost of self and exhaustion will destroy you way before the guilt will! Let guilt have it's place and do what you need to do. You are very important and your peace of mind is precious, please don't lose yourself in this!
I have come to the realization that it's just a matter of time before I'll have to put my mom in assisted living/memory care facility. No matter how terrible I'm going to feel about it, I know that I can't continue to do this much longer.
I came across this story which is a reminder that WE must get help. NONE of us can do this alone. https://www.nbcnews.com/health/health-news/murder-case-glimpse-stress-caretaking-flna1c9450262
That's what I've had to do with my mom pretty often.
You need to decide which choice is the lesser of the evils.
Regardless I would start researching and planning care options. It can be a lengthy, complicated, expensive process. When you are ready you may not be able to find a place that meets your circumstances.
In my mothers case(she died in October 2021.) we could not find placement. There were complicated trust, POA, bank, doctor and financial issues. After months and months of work we finally resolved most of the roadblocks. BUT no facility was accepting patients due to Covid. We ended up with 24 hour care at her home to the tune of $25 per hour. This came to about $18,000 per month which I was paying for because she ran out of money and we couldn’t access her IRA. The IRA funds kept her from qualifying for her state Medicade.
so you see how complicated it can all get so start planning now.
I don’t have any suggestions on how to keep your cool because I was going out of my mind trying to keep up with all the work. I tried to keep her with us after we found she had massive bed bug infestation. It did not work out. That’s when I took her home and hired the 24 hour care.
Good luck.
Increase caregiver hours / days.
De-mesh yourself. This isn't cemented. It is just like molasses and a sticky situation. Although YOU can take steps to support your needs for respite, relaxation, stress-relief, even FUN. You are taking a first step by writing here.
KEEPING YOUR COOL
* Try role playing with a family member or friend. Create situations that may happen or have happened and be present with your feelings and feel / know you have options to re-dress how you feel (by talking to yourself; visualizing your special enjoyable place - be it inside yourself or outside in the world)
* The more you can prepare ahead of time to anticipate what might occur, the more you can re-program yourself with OPTIONS in how to respond.
- It could be as simple as leaving the situation for a minute or 5 minutes to regroup.
- Try reflective listening. Rephrase what your mom says to you back to her.
* Never ever engage in any communication which might create an argument - as she is 'just waiting in the wings' (perhaps) ready to respond, to vent her own frustration of being dependent, perhaps in pain, reacting to meds and/or dementia.
* Wear a rubber band on your wrist and snap it when you feel you are about to go over the edge and say something or respond in negative ways - to her or yourself. The snapping will help you re inner messaging "I need to calm down, take a breath or 10, leave for a moment. Get a cup of xxx and sit and watch the birds (or flowers) - somehow RESET. When you give yourself the permission to reset / shift from a place you are in (mentally / psychologically), it is almost (at times...) automatic shifting. The key is to interrupt the automatic behavior - that you likely have been doing for a very long time. Again, de-enmesh yourself. This is very unhealthy for both of you. Gena
It's not excusing her behavior, but I remain calm and firm when I need to course correct things!
When a person feels powerless, perhaps they go to guilt because they are telling themselves "I have to xxx" when they do not have to do XXX.
I agree; this person could benefit from learning about the cues controlling her thoughts and behavior - and learn how to dissect it all into manageable segments and deal with it a little at a time. Becoming aware of the inner messaging (talk to the guilt; ask it what purpose it is serving? (me). FOCUSING is giving the feelings a voice and then listening to it. Not automatically responding. Guilt is a red flag that some inner intervention / work needs to be done. Guilt may not be the opposite of love although it has nothing to do with love / loving, self or another.
Here's my question to you: What's destroying you MORE? The guilt you may feel if you place her in a very nice AL, or, the behavior you're displaying now because you're stressed out to the max by a woman who's purposely pushing your buttons in an effort TO elicit a negative reaction?
Read that question several times and then answer it honestly.
My mother knew precisely how to push my buttons b/c she installed them. We could NEVER live together b/c we would be at one another's throats 24/7. I knew that, so I vowed to never take her in to live with me.
Mom treated dad like crap all the time; said mean & nasty things to him and yelled a lot too. When he finally died and was lying on the gurney and the mortuary was there to take his body away, my mother finally cried. You know what she said? "I wasn't very nice to him all those years, was I?" I blinked. I was shocked. SHE said THAT? What? I was tongue tied. Yes mom, you wretched wretched person; you treated him for 68 years and now he's dead. But what came out of my mouth was, "No mom, you loved and cared for him for 68 years and you were a good wife."
Here's my point: get your mother placed so you don't wind up saying what my mother said to me after dad died. "I wasn't so nice to her all those years, was I?" That's WORSE than placement any day.
My parents lived in the lap of luxury in AL for a number of years and were quite happy, socializing and eating 3 meals a day in the dining room, dancing in the lounge to live music and going on trips to plays and such with the mini bus. AL is not the house of horrors some make it out to be. Quite the opposite actually.
You won't stop losing your cool b/c you've had enough. Your body is responding to too much stress for too long. Listen to it.
Some may be luxury as your parents experienced. Others are not.
Research needs to be done. Many people do not have the resources for top of the line residential assisted living care facilities. It is a very SAD reality that money does matter when it comes to health care as one ages.
YES - listen to thyself. We all need to regroup, be-come present and listen to our inner body. It is our wisdom if only we listen... and follow through. It takes reprogramming and a ... determination to move towards the positive / self respect / self love. It is a new path for so many requiring little steps of awareness . . . and acknowledgment. I remember when I became aware of needing to become my own (positive) mother when I was in my mid 30-40s. My mother didn't have it inside her to know what she needed, let alone her two children. The chain needs to be broken at some point and get back on the right track to self-care, self-love. I find it a life long process.
My friend, I had an epiphany. One day I too am going to die. So is everyone else. The abusive elder spreading their misery and negativity around like a plague doesn't care if they ruin lives so long as they get what they need or want. Eventhough the people whose lives they're ruining will be gone for good some day.
If they don't feel a moment of guilt or remorse, why should we?
Bring in some outside caregiving help. If your mother doesn't like it, too bad. She'll get used to it."
You need more social outlets, even if it's just coffee. You resent being trapped with very little life. And rightly so. I get it. Its extremely hard. It is very hard dealing with this. I get it.
Have you gotten help for her depression and anxiety? Maybe it is time. It will make her more comfortable and you not so stressed. And you won't be answering non stop questions. Could it be from ger being anxious? Sounds like it.
I would also disengage with her. If she is asking non stop questions, or whatever she does to second guess you there is a big problem. Answer her question 1 time amd say your done going round and round. You are not her servant. A caretaker and servant are 2 different things. It's going to take discipline to stop answering and engaging in the non stop 2nd guessing. I think that is anxiety.
I would get her depression and anxiety checked out by a geriatric doctor or better yet a psychiatrist. It is changes in the brain. She should be able to relax, and stop 2nd guessing everything, and you need to disengage with that.
It is time to get help and there is nothing wrong with that. You cannot do it all. You can always come here and vent too. Good luck.
Also try joining the Alzheimer's Dementia Caregiver's FB Support Group. You can vent there without judgment:
https://www.facebook.com/groups/dementiacaregiversupportgroup/?ref=share
We met while walking and I have met a number of other people while walking who are in the same boat. My new neighbor is going through it as well so you are definitely not alone!
nice! what a great way to meet a friend :).
doing something healthy, and, bumping into someone who understands you, who gets you :).
i walk regularly, too. but i bump into deers and other animals: they definitely don’t understand my troubles. i’ll try to find a different walking path.
:)
It's a thought. Being a caregiver to a parent is an emotion roller coaster as well as physical. My Daddy has been gone for 4 years now and I look back at some of my regrets and wish I didn't have them.
It's worth the money, believe me! She was a retired lady who loved the elderly. It was aa win / win!