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Good luck. You may or may not get anywhere with this. You can't physically drag her. Let us know if you make any progress.
Carol
Most of the "tests" and doctor's visits are diagnostic and are not therapeutic, so why worry? Be happy.
If I had it to do over agian, I would cut out half of the drugs, concentrate on good nutrition, sunshine, salt water air, and very mild exercise. I would provide happiness with good reading materials, (favorite magazines with lots of pictures) and music. I would make sure that family and friends participate with joy in the final years of her life. When it's over, it's over.
As a caregiver to a loved one, I view my role merely as a staunch advocate of my loved one's life choices and preferences, not what I think I know intellectually, or based on medical research. Some individuals who are not medically ill have a high tolerance for ambiguity, just as some have a higher threshhold for pain tolerance. It happens. Others tolerate very little cognitively and/or physically before they seek medical, or other intervention.
The path I chose many years ago is a path of respect of a lifetime of Mom's choices; not mine. I certainly respect caregivers who choose to exert greater pressure and/or enjoin greater collaboration with a loved one's doctors behind the scenes to get things moving for their loved ones. Those are individual choices of caregiving.
There is no such thing as a one-size fits all when it comes to patient advocacy and doing the right thing as a caregiver. I thoroughly enjoyed reading and reflecting on each person's insightful comments.
You are not alone, pgscott, and should not feel badly about how you have chosen to advocate on behalf of your Mom. Who knows your Mom better than you do? A physician? I don't think so. Everyone means well in our lives, and in the end, you are the caregiver; not anyone else.
Also bear in mind that the paths we successfully choose this minute may not be the same paths we choose as our caregiving situations continue to evolve rapidly, or over the years. We always need to re-evaluate our strategies as new situations develop, and there may come a day where greater nudging becomes necessary. You will know it when you get there, is my opinion.
May God grant you serenity and light your caregiving path, every step of the way, pgscott. It takes courage to do what you have done!
I discussed it with the doctor who then ordered an MRI for her. That sent my mother into quite a tizzy. Her barbed remarks toward both the doctor and me included her suspicions that we wanted to get her into a nursing home and that's why we were doing this.
So, after careful thought and discussion with all concerned, we decided to leave her dignity in tact for the time being and make sure we provided all the necessary safety features around the house so that she could remain independent for as long as she could. We will continue to repeat ourselves, listen to her repetitious stories, remind her to take her meds and hope that nothing awful happens in the meantime. It was unbearable to listen to her speak to us that way. I'd rather see her content in her own little world than to shatter it witht he devastating news that she has a degenerative disease that could rob her, permantly, of what she knows so well now. We just can't do it.
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