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He got many fewer when he went into ALF care. MANY fewer. His handwriting also improved and he could once again write letters. I was told some early cases do improve when someone ELSE takes over anything like rental payments, bills, POA, etc. There is less stress and anxiety and fewer hallucinations.
I think each case is so individual. My brother died of sepsis before his Lewy's could progress appreciably. Would have been as he wanted. So I cannot know where it would have gone.
I would definitely speak again to his doctor and preferably a neurologist since his hallucinations are distressing to him. The only time my husband had frightening hallucinations/delusions was a few times when he had UTIs, mostly in the night, so that might be worth asking about also.
The other day he said there were little springs on the floor. Even after I showed him there was nothing there. So I told him that he saw things before when he had a fever. I gave him two Advil and said when the fever goes away, so will the delusions. He believed me and after only a few minutes he said the things he saw were gone. I’m not sure if this will work every time or not.
Every patient is as individual as his or her own thumbprint.
There is no average for hallucinations.
For my brother they were much more frequent in any time of any anxiety. Much less frequent when relaxed.
They also could be brought on by patterns such as marbled walls, floors, hotels with patterned carpet, wallpaper with patterns and etc.