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So, my questions are
1)Will Medicare cover additional help for him in the home such as a PCA, or companion. I hope to keep him as comfortable as possible at home and envisage ultimately needing hospice care.
He did purchase a long term care policy in his last year of employment. I believe I have to pay for 100 days of care in the home before it activates. If I do start to employ someone to assist him more at home such as meal preparation and companion care how do I find a good agency?
When we do decide on hospice care does Medicare cover and how do we find a hospice care agency that is in line with our religious beliefs ( Traditional Jewish)?
My mom was discharged from the hospital to a skilled nursing facility and medicare covered her for 30 days. After that, her doctor approved her for another month but she was responsible for the co-pay after that. Our father was released from the hospital and went home and he received all three services mentioned above for approximately one month. He also had a caregiver who came to give him a bath once to twice a week.
Fortunately, we have a live-in so he didn't have to wait for long.
Frankly, Medicare has entrusted patient care to agencies who are empowered (or so they think) to be controlling, intimidating, and insensitive to the patient's needs. Our doctor and his assistant are worn out, and I can no longer go to them with the constant problems caused by the agency, although we are unable to just quit, as the patient needs the care. They quit us soon enough. Please know that every HH staff who has come to our home to care for the patient has been kind, professional, and outstanding in every way. The administrators are often not qualified to make decisions about the patient, but do so from a business standpoint only. They are not familiar with the patient's needs or condition, nor do they necessarily have information about the medical facts of the patient's need for service.
The patient is NOT required to stay home and never leave. The patient's family, caregiver, etc., are NOT required to learn and assume the care. The HH can "say" many fancifil things, but if they won't put it in writing, be suspicious. The doctor can and will order an aide, as, under Medicare, if the doctor has ordered skilled care under Medicare, the patient can certainly have an aide as well if necessary. This is NOT a rare case.
The less care they give to the patient, the more funds they get to keep as profit. I haven't met one yet that didn't want us to believe that the imaginary Medicare guidelines they repeated. That's why I suggested that you get familiar with terms and policies as soon as you can.