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My late husband was under hospice care in our home the last 22 months of his life and died because of his vascular dementia, sepsis and septic shock among other things, but not because of hospice.
We occasionally get posts questioning hospice care, but it's usually from folks who are in shock over losing a loved one and haven't had the proper time to grieve or process their loved ones death.
If that is you, I hope and pray that in time you'll come to understand the purpose of hospice and appreciate that your loved on no longer is suffering.
The truth is, however, that when people subscribe to this conspiracy theory it is almost impossible to change their minds. This is true of all conspiracy theorists.
Do try to open your mind wide and seek all the education you can regarding end of life care. I wish you the best.
If your on Hospice its because it has been determined you will die in 6 months. Yes, people have lived longer on Hospice. When the Admitting Nurse is there to tell family what Hospice will do, there needs to be someone there who will hear what family doesn't.
Hospice is comfort care. If done in the home, the family pretty much does all the work. A Nurse will come in once a week to check on the client. She is also responsible in ordering Depends, Chuxs, medication and durable equipment like a hospital bed. She teaches the family how to administer the Morphine used for pain and ease of breathing. Anxiety happens with dying people so there will be meds for that. An aide will come in about 2 to 3x a week to bathe. This is when family may have some down time so see how long an aide can stay. There is also a 5 day respite.
Hospice does not starve clients. But, when the body starts to shut down, no food or drink are given because it does more harm than good. The body can no longer digest it. First sign is not being able to swallow.
The better informed you are, the better the experience will be. The family is just as important as the client. The nurse should be available by phone 24/7.
This wasn’t an option for my dad as he had a dementia diagnosis, but the chaplain/grief counselor has helped others to die. He counsels them with the nurse as to whether this is something they want, and assists in preparing the lethal cocktail telling the patient what is going on and then sets the cocktail on the bed table telling patients they must do the rest themselves. Whether the patient wants their hand held or prayers or whatever is discussed ahead of time. The whole interaction is filmed for hospice liability.
Frequently what we have seen here is that family members were not preparing themselves for the death of their loved one in spite of their diagnosis, and when Hospice discontinues most medications except for those that provide comfort/relieve pain (in other words - treatment for the illness is no longer given) it is easy for them to feel like Hospice killed them by not treating them or offering life-saving measures.
But that's not what Hospice does. When your loved one is transitioned to hospice care - it is because doctors do not expect them to live more than 6 months. They are there to offer comfort and pain relief. But hospice cannot and will not treat the terminal illness that is actually killing the patient.
I suspect that people who say this, are in denial about how close to the end their LO actually was, and blame the morphine not the illness. My dear mother wasn't going to recover from terminal cancer.
And sometimes doctors and nurses have been convicted of murder: for example, by committing murder through a morphine overdose.
I have read many good experiences here about hospice . My FIL was only on hospice in his AL for a few days but they were great .
My sister was in the hospital and the doctor suggested hospice , I thought ok until the nurse said they were not going to give her any of her meds anymore which I thought was far too soon to take away some of her meds . For example nebulizer breathing treatments to make it easier to breathe so she was not feeling like she was suffocating . Turned out she began to get better because she finally got anesthesia out of her system from needing 3 procedures in 10 days . When my sister improved she asked to come off hospice and go on palliative care so she could have her meds again . Then she went to rehab and then home . She’s still alive 20 months later and doing better , although she still has a lot of issues .
I don’t understand why they had the all or nothing approach regarding her meds at the hospice at this hospital she was at . I think they have to look at each case and decide . My only guess is they thought she was worse off than she was because of whatever the doctor recorded . And she was in bad shape . But they should have waited for anesthesia to wear off and see how she was before cutting out all meds permanently . Maybe the doctor did not know they would stop all her meds so soon permanently ???? I don’t know .
It’s quite possible it’s just a minimalist poster, we see plenty of those, but given the inflammatory topic….I have to wonder if OP is winding us up. Sorry if this is a legitimate question, but if so, please let us know more so we can help.
If Hospice kills people they did a rather poor job of it.
My Husband was on Hospice for almost 3 years.
During that time they had a Nurse come 1 time a week. A CNA came 2 sometimes 3 times a week. The Nurse would order all the medications, and if equipment was needed she would order that and it would be delivered and set up. The CNA would give him a shower, would make sure he was clean, dry and clean clothes. She would order supplies that would be delivered so I no longer had to buy briefs, wipes, gloves, cream, ointment, under pads. A Social Worker would check in once a month and if I wanted a visit by the Chaplain that would be arranged. I also had a Volunteer come a few times when I had to get out and did not have a caregiver.
All in all I think the Alzheimer's and Vascular dementia did a much better job of "killing" him than Hospice did.