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Sadly it comes with the horrible disease of dementia.
If you can no longer get your husband out to daycare then it'll be important for you to bring in folks paid or not, to relieve you so that you can get out and do some things that you enjoy, so you can maintain some sort of sanity in this very insane world of dementia.
I can tell you from personal experience that you are stronger than you know, and that this too shall pass.
So hang in there, get some in-home help, and enjoy the good days that you have with your husband while they last.
And know that if he was in his right mind he would NEVER want to put you through any of this.
God bless you as you take this very difficult journey with your husband.
My heart goes out to you. Lewy's is one of those that isn't steps inexorably down but is rather up and down and all the heck over the place. It's so disconcerting.
Memory, especially extremely short-term, is the issue so I’m anticipating a dx of Alz. but I could be wrong.
Your dear brother sounds like he was an exceptional human being. You helped bring that out in him - that is very special.
It sounds like he would be a good candidate for an Adult Day Program.
It would get him on a schedule, it would give you a break and him as well.
I can’t tell you how much I admire you but I don’t think I have your strength.
At a minimum , help needs to be hired to come into the home .
You need to take care of yourself as well .
SIL and I did not get much chance to talk afterward but her opinion is that a facility sooner rather than later is a good idea. She had been advised to do that with her DH but couldn’t bring herself to do it. When he could no longer let her out of his sight without panic and terror, she was trapped by her own sense of duty and love for him. Obviously she survived, but barely. Her PTSD still sneaks up on her several years after he passed.
I’m heading in to wake DH now, I’m afraid what I will find.
Thank you for your answers and for letting me share. It really helps.
Your doing a great job, in this horrible heartbreaking situation.
We are all here for you
In the meanwhile can you hire some help to take the pressure off you for the short term? I know you have some appointments coming up that, hopefully, will help clarify what's going on.
More ((((hugs)))).
The next few months are going to be really hard. Tonight he accused me of stealing and hiding a very important binder clip….yes, a BINDER CLIP, and then lying about it. (He was sitting on it, but was still mad at me when he figured it out). That’s how I know he is going to hate me no matter what happens. It’s all so sad.