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Let's see how many respond to this and who is interested.... we might be able to figure something out to have our own support group...... sharing info to help us do our jobs better, and to have a place to come and vent our own frustrations.
If this doesn't take root, maybe we can exchange email addys.... let me know... thanks for the great suggestion....
It would be great to perceived more human than a trained robot.... guess my concern would be if we were shamed or made to feel bad for feeling what all of you feel.... I wouldn't be ok with that.....
But thank you for sharing and hope we hear from other family caregivers also...
PC123 has a wonderful idea.... it would be awesome for those of us in private care to have a safe place to go... we could be so much more effective as we would be learning from other private caregivers how to handle situations, learn more about the hands on care, the medical side, which many of us also know.....
So thanks again Boni..... who knows.....
Are you able to do any 'hands on' massaging when she is hurting??? Just the human touch can bring some solace to the person we are caring for... put lotion on her hands. Paint her nails..... Try and get her to tell you what she would imagine the perfect 'get away' would be... of course it depends on whether or not these things only make her feel more sad...... but let her know you and her can have any world you choose when you are together..... you sound like an awesome caregiver, trying to find other ways to help her, to help her be happy more..... that's what we do.... use our imagination...... hope others come on and give suggestions too....sending you lots of hugs...
Honestly, I still think of the family caregivers as superhuman for being capable and willing to do this full-time. It's literally a killer job.
Yes, as non-family, independent caregivers, we have some different issues. And, I think a thread dedicated to it might add to the site's overall benefits. I'd want to set some guidelines, though:
- The primary focus would be on issues specific to non-family caregivers (whether paid or not)
- Everyone is welcome to comment (no exclusions based on relationship to the caree)
- No Flaming. This doesn't mean we can't express our own opinions, but it does mean that people consider each other to have real hearts and hands and heads behind the keyboard and to treat each other as we'd prefer to be treated: with respect and kindness ... even when they don't seem to deserve it. Maybe more so, then.
-And, at the outset, I'd feel the need to acknowledge that this site was specifically designed for family members and the issues that go along with caring for a family member, and the unique issues that creates. I realize that the site has actually mutated over the years to include all kinds of family members aside from parents, includes more than the elderly, and has opened its arms to non family members. That we've been welcomed into the arms of this magnificent 'family' is a great blessing to me and I don't care to lose that support.
With all that said, I'd support a thread dedicated to non-family caregivers. Yep. I would.
LadeeC
Examples:
- When she has to get up for potty, we dance
- when she's prepping for a meal, I make it a stretch .. put the tray almost out of reach to get her to work on her balance and stretching
- When she's dressing, I practice letting her DO as much of it as possible, starting with a set of directions that challenge her mind with process and order. "Put this sleeve on that arm, this one, there. Then pull it over your head." And back out of her line of vision to 'supervise'
Every day has some kind of creative something: coloring (she loves it), jigsaw puzzles, pointing out things she wants in a catalog; cutting my hair (yep, I let her and she's pretty darn good at it .. at least the ends, lol). She folds the wash cloths (used to be almost all the laundry, but, meh .. her stamina and strength don't hold up to it, these days). On a good day, she can push the vacuum, from her wheelchair. These last things are things she MISSES doing. She loves to play in the dirt, so we got her those starter planter kits. She decorates with us during holidays: dipping eggs, making bows, hehe .. she's great a giving direction, so we let her. (And when stuff it's neat or tidy or whatever .. after she's gone to bed we fix it up and the next day, she's all ".. Pretty!! .. "
I bounce the exercise ball at her and have her kick or push it back; before she gets out of bed or her chair, I have her toss all the pillows at me (she's a darn good shot with her left hand, considering she's naturally right-handed).
All kinds of things. These are just a few ideas that I hope stimulate a few more for your specific circumstances.
It feels good to have a place to come to and talk about missing someone we have given our heart to, them not being family, and it hurts just the same.....
So, hope this thread grows... I know there are other paid caregivers on this site.... it's ok for the families to know how we really feel about things.... some will learn from our posting here.... and it will put another light on paid caregiving and what to look for when families are wanting to hire someone for their loved one......
Thanks for letting me put my sadness here.... this one I can not carry alone.... sending hugs to everyone..
When I just wrote " Family is in the heart, not the genes" I decided I want to share something off topic with my AC friends. I lost another son last month.
I did not conceive, nor birth him, but he was my son. I met him shorty after my oldest sons death. His Mom, a severe drug addict, dropped him off one night. He was an acquaintance of my youngest son, at the time, and they( Him, Mom, and little sister) had been kicked out of where they were staying, and I gladly took him in for the night, so he could go to school the next day. He and my son became friends, then true brothers, as he lived with us on and off(mostly on) for 10 years. I also took his sister in a few years later, when their Mom was going through an extra bad time. His and his sisters children are my grand children now. I love them all as family, and non of us share genes.
36 days ago, he took his own life. He left a wife and a 3 year old boy behind. We are all heartbroken.
You don't have to "love " your biological family. But those you truly love are nothing less then family
Again....GOD BLESS all of you who have chosen, or been chosen, to do what you do. I respect you all, more than you will ever know.
I have been reading and posting(not as often I want to post but my English writing is terrible so forgive me...)
I started this AC site since 2010,currently working for a very sweet lady 90 since March 2012. She is living home by herself has COPD. So far I could not complain anything about my work. I stayed with her full 4 days a week the rest of 3 days are another wonderful caregiver, I'm very pleased!!(happy caregiver, It's me)
Before I took this position I was working another client 76(F) had a stroke and Diabetic plus incontinence whom I really like her, but her adult kids(2 sons and 2 daughters). Specially two daughters are both alcoholic... each holiday I was there they did physical fight front of their Mother!!! I could call police on them... Anyway one of daughter told me a day before she is plan to have the surgery said "Mom is going to have a surgery so she doesn't need caregiver for a week or 10 days" I was with her each time when she was in hospital...
My point is "if you have a good relationship with family members we are the private caregivers would do anything for our clients keep safe and happy"
Oh one more story I was caregiver of Doctor for 16 years whom had MS, he passed 2008.... but I still has good friendship with his family!!! Love you all, Sue
Boni, I appreciate so much you sharing about your 'son'..... it really helped me to be more ok with missing Stu so much... and I am so sorry for the loss of this young man.... I know your heart is broken..... but you were there for him ..... and we don't know why it got too big for him on this side..... loss is loss, regardless of the circumstances....
And we appreciate that you look at us as humans... many see us as robots that just come in and work, and I can only speak for myself here, I feel the reason that it appears we have more patients is because we do not have the history family does with their loved one.... and we can be more objective about most things....we are not looking at things with as many emotions tied into the caregiving.... but we are not always patient..... tonight, Gene was giving me a hard time trying to transfer him from his chair to his bed.... I could feel myself getting so uptight because he has started doing this stiff body thing and won't move his feet..... I sat him back in his chair and went outside for a few minutes...regrouped, went back in and went thru the whole thing again about he had to help me.... went smooth that time.....
We wear many hats in our jobs.... and I usually can bond with at least one family member.... but that is the part of my job I do not like.... having to deal with families...... I feel like a politician sometimes.... talking out both sides of my mouth.... not being honest, having to be PC..... keeping my mouth shut.... I gettired of always having to find the right way to approach certain topics or even certain family members.....that part of my job makes me more anxious and tired than all the lifting, poop and puke cleaning.....repeating myself about the same things everyday..... none of that put together makes me as tired as dealing with families that won't listen..... but I have a tight reign on myself.... I am constantly monitoring myself and how I approach family... I do have to set boundaries with some of them..... and it always causes tension..... but I have to pretend it doesn't..... put my happy face on and go about my business..... I am very passionate about elder care.... and so many things are preventable if only families would consider, maybe, just maybe, we know what we are doing and what we are talking about......but we see many things that go on that puts us in awkward positions sometimes.....
I was thinking about you today... and was hoping you would come here and participate..... I feel safer now sharing, knowing that at least some care how the paid caregivers feel.....
Again, I am sorry for your loss.... but am thanking you also for letting me know I am not alone in my grief for Stu..... we are on this journey.... and we are not alone..... sending you many hugs this evening..... know that I am thinking about you.....
*hugs to all*
LadeeC
Do you think some of it is geographical...??? I do live in the South... most people are more laid back and less likely to keep the dysfunction from prying eyes and ears..."let it all hang out" surely originated from the South!!! lol
I think what I am asking is..... do you give verbal queues, body language, or simply say what's on your mind..... but I will sense who is going to be forthcoming and who will advocate for ME.... I feel I am having trouble here, making myself clear about what my need is.... deep sigh.... maybe this is why I have so much trouble.... lol.....
I am very clear that I take my own 'dynamics' in the door when I start working for someone..... and like you, I stay away from my own family....I apparently don't know where my 'stop' button is until I am too stressed to be professional, then I don't say anything because it's going to come out angry and defensive..... then I wait until an opportunity presents itself and then set a boundary.
Ewwwww, I am feeling very vulnerable right now..... but I have to cut my stress level....any suggestions will help...... keep in mind I'm from the South.... everything is played different down here..... People just 'assume' you are family if your car is in the driveway.... lol
How is Edna doing? Hope she gets stronger and gets to go home....sending you hugs of gratitude.... and ya, folks, what are the odds there would be two Ladee's that are paid caregivers..... it's a blessing for me, confusing to others.... hugs to everyone....
I don't think there's any reason to be shy about it. There are so many in need out there who DO appreciate my approach. Regional differences aside, YOU have to determine what's good for you, what's going to keep you physically, emotionally, and mentally healthy enough to to the work for as long as you want.
There isn't anything 'normal' about the kind of work we do. We have to be twice as trustworthy to be trusted at all. We have to be educated and trained (by whatever means) about nutrition, various therapies (physical, speech, occupational, behavioral, etc), knowledgable about general and senior health .. we're not doctors or nurses or other professionals, but need to be at least as current in specific areas of our client's health. What I don't know, I will learn. So I expect to be treated with the respect I deserve. I'm not just an adult babysitter. For me, the key is .. I have to be willing to walk away. If I don't have the full support of the family, I can't do what I do best, which is make the last years of this person the very best they can be.
I was told last night to 'set boundaries' with C.... I just laughed.... my response was , 'she is in her 80's, we have had this conversation before, if she doesn't know how to treat people by now... me setting boundaries is simply more work for ME...... '
I am very clear that this woman is not going to change... and I wish I had a force field around me so that she didn't cause my blood pressure to go thru the roof....for Gene's sake........so, who knows how this is going to turn out.....
I am getting too old for this stuff.... what I want to do is tell C to shut up and set down..... wouldn't look to good on my references now would it.... lol...
I appreciate that I finally have a place to come and talk about how I REALLY feel....
love and hugs to all of you....
My suggestion's would be have a little Paw wow with you and your siblings so they could talk to agency...or before you go to work just leave a little nice note for aide " thank you so much but no thank you"......My experience with HHA was very bad one... my client(M)'s family hired male HHA when I was off for 48 hrs, one day I have to come back to client home, this HHA was making out with woman... I fired him right there on spot!!! I was not concern about agency at all...That time I was worrying about my bed ridden client! You are living your father's home and you have a right to say things respectfully. Hope you are not hearing complains from your Farter about aide.... sometimes when you feel threat from aide you might check with your Dad..... he afraid and might not to say anything to anyone....Good Luck with aide... Sue
TooMuch .. I'm going to say to you what I say to my 'families' .. we each have to be willing to set boundaries and know when to let go. My role as caregiver is to .. duh .. give care to my client. It's NOT to rule your household, or take over your (your parent's) home. It's THEIR home. There are times when things are not safe in the environment and I might shuffle them around. I might make some strong suggestions or recommendations for the benefit of caring, like: better seating, bed, equipment, supplies, etc. IF those things aren't provided, I can't give the best care your parent deserves, so I hope you'll hear me. If you don't, and I think it's not in the best interest of my client === remember, the elderly is my client .. first and foremost .. if I think the family is going to stand in the way of doing that, I'll walk. It's as easy as that. And I think the family has to be just as willing to let go and find the right person. We're out there. I might not be your perfect match, but someone is.
However, if the caregiver is just making power plays, shame, shame on them. If they're playing games to get away with whatever they can get away with, then it's time to say goodbye. It IS your right to set boundaries, as well .. especially when you're also living there.
*laughing* You can always ask them if they're willing to help pay the rent if they're so keen on making YOUR home, their own.
Personally, I would NOT be very accepting of someone besides someone who knows *far* more than I do about caregiving to tell me how to do my job. FYI .. I'm always seeking more information, from the PTs, the RNs, the Drs .. I can always learn something new. But, if you just want to play boss .. meh .. I'd probably walk. Not because of pride. I'm very secure in myself, I don't play games with anyone, I'm so responsible, it's almost ridiculous. And I'd bet there are more like me than not, out there, doing this 'work'. Truth be told, it's not just a job with me, and it's not with the other best caregivers. It's a calling.
Bottom line .. don't let the threat of them leaving scare you off from defending your position. Frankly, ALL jobs are renegotiable, at any time. But be prepared to take over until you can find a suitable replacement. That's the cost of standing your ground.
My job, my role is as your mom's advocate and to make her as comfortable and maintain or improve her health to the best of my ability. I can't do that if you second guess me all the time. I will always be accountable to you, of course, but if you can't trust me to have her best interests at heart, we won't be able to work together. I'm not a servant or employee, in the traditional sense: she is my client, my primary responsibility. If that doesn't work for you, perhaps someone else would better suit the situation."
Is what I would like to say, with a few words changed, to my SISTERS, who do NOT pay me! Bravo!
Seeing differences .....but mostly seeing similarities, in paid and family caregivers.
I get, room, board, cigarettes, (very expensive here), toiletries, gift money for my grandchildren for birthdays and Christmas, beautiful places to go when I get a chance for respite (not often), and respect. From my BROTHERS! If I worked for my sisters, instead of Mom, I would have quit a LONG time ago.
I always respect my families homes... it is not my home... if I want to straighten something, say for instance ,the linen closet , I ask first.... my primary job is caregiving, but when Gene is napping or reading.... I would rather be busy, but I would never do something without asking first.....
You are saying they have come in and taken over... are you saying no matter what you say, it is overridden by them? No matter how you say you want the care done, it is ignored? If this is the case, then these ladies are not CAREGIVERS.... not sure what to label them... but I would not allow someone to care for my loved one with the attitude you are describing....
There is a very fine line between caring for someone the way family wants it done, and the way the caregiver may want to do it..... if there is no problem with the outcome, I compromise.... but if I have a more effective way, I try to suggest it..... if I am met with resistance... then doing it their way is no problem, as long as the end result is what is desired by all..... if it is detrimental to my charge, then I do it my way.... especially after we have had conversation about it....
It's a shame to me that these situations turn into power struggles... which tells me right off the bat something is not right with these caregivers.....
I wish you well.... and have the courage to stand your ground.... it's your fathers welfare we are talking about here...it is YOUR home....and please come back and let us know how this turns out.......just because someone is a caregiver, does not mean they are a fit for the family...... sending you hugs.... the added stress of having someone you don't trust in your home is harder on you.....