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there is a locked yard where residents are free to go outside
most residents are about 80ish - some younger and some older
your mom's facility has a good ratio at 6 to 1
many residents, my mom included, have private caregivers on top of the outrageous facility cost as understaffing is chronic especially given the behavior issues which surface with the disease
Alzheimer disease most commonly affects older adults, but it can also affect people in their 30s or 40s. When Alzheimer disease occurs in someone under age 65, it is known as early-onset (or younger-onset) Alzheimer disease.
https://www.alz.org/alzheimers-dementia/what-is-alzheimers/younger-early-onset
Causes of early onset including genetics
Doctors do not understand why most cases of early-onset Alzheimer's appear at such a young age. But in a few hundred families worldwide, scientists have pinpointed several rare genes that directly cause Alzheimer's. People who inherit these rare genes tend to develop symptoms in their 30s, 40s and 50s. When Alzheimer's disease is caused by deterministic genes, it is called “familial Alzheimer's disease,” and many family members in multiple generations are affected.
People with dementia can't be trusted to go on outings or walks outside the facility unless there are is very high number of staff or trained volunteers to keep an eye on them. Those of you who have mentioned facilities that do so amaze me, I can't imagine how difficult it would be to keep track of multiple people who might be prone to wander or motivated to "escape" and can't be trusted to follow directions - throw in a few bathroom breaks and incontinence difficulties just to make things interesting.
(I just wanted to add - yes there were outings at mom's NH, but unless those with dementia had someone to accompany them they weren't included)
My mother is great at showtiming...........leading others to believe she has NO business being in memory care, even though she's got moderate to severe dementia. She relies on muscle memory to make small talk with others, fooling them, in other words. She's even had care givers ask her what she's doing there...........leading me to get aggravated, to be quite honest. Nobody is going into a memory care community who does not have to be there. Period. So, let others think or believe what they'd like............your mother is where she belongs, care wise, which is all that's important, right?
At the MC where I work we have a 60 year old resident who's been here since the place opened in 2014. Dementia & Alzheimer's strike people at all ages. The why's and wherefore's of disease make no sense, so there's no point in asking 'why'. Why does a child get diagnosed with leukemia at age 6? Life on life's terms, I suppose.
Just because your mom has dementia does NOT mean you will necessarily develop dementia and require memory care! If I were you, I wouldn't be worried about such a thing at 47.
Best of luck!
A strange thing I notice is that they do not give the residents milk, only a glass of water and a glass of what looks like KoolAid with their meals. Does anyone know why they wouldn't give milk to the residents? I'm thinking of bringing this up with the director.
There is another all memory care facility in the area that does outings, but I witnessed lack of care for the residents while I was touring the facility. I live in southern CA, so maybe it's harder to find a good facility than in the area you're at.
Or, are the people going on outings in assisted living, and not memory care? All of the assisted living facilities with memory care where I live have outings for their residents. Maybe the reason there are not outings is because my mom is in an all memory care facility, no AL?
The memory care my mom was in had outings on the fAcility bus for the dementia residents. My mom had also attended a day care facility that had outings. Eventually the day trips were stopped for mom because she would become so terribly confused and agitated following a trip. In memory care they only took mom out once because of the agitation upon returning.
There are good reasons for not having outings, but facilities have different policies and practices. Can you imagine how difficult it would be for staff returning from an outing and having ten or more agitated residents?!
The same is true of how long a person will live after diagnoses. All of that is, in my opinion, just a WAG.
Most facilities do not have the staff to take patients on any sort of outings. At the most it is just as you have seen. All indoors and seated somewhere. Not to mention the liability insurance issues.
You could talk with the facility about you taking Mom out for things like an ice cream or burger,even a really good lunch. But it will be on you not them.
I wish you the best in what is to come.