By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or
[email protected] to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
*If I am consenting on behalf of someone else, I have the proper authorization to do so. By clicking Get My Results, you agree to our
Privacy Policy. You also consent to receive calls and texts, which may be autodialed, from us and our customer communities. Your consent is not a condition to using our service. Please visit our
Terms of Use. for information about our privacy practices.
Please get yourself some more help. A few hours a week is nothing compared to your husband's needs. Don't feel bad about it. If you have some substantial help, you will feel better and will not be so angry with your husband.
I'm sure you are also grieving your husband. You are losing him little by little. That's certainly sad.
Please take care of yourself first cuz you are no good to your husband or any one else if you're stressed out.
Best of luck.
That's quite normal early on, but eventually you have to move on from denial to acceptance.
Your husbands brain is now broken and will never get better. While you may think that he's ignoring you, can't hear you or won't do something you want him to, the reality is more than likely that he doesn't understand what you're saying, as comprehension is one of the first things to go with dementia. He also probably has forgotten how to do some of the "normal" things he used to do, thus why he doesn't do them when you ask him to.
At this point the best thing you can do for yourself is to educate yourself on the horrible disease of dementia. That way you'll be better prepared for what is yet to come. The book The 36 Hour Day is a great place to start, and Teepa Snow(a dementia expert)has lots of great videos on YouTube as well as several good books she's written.
Make sure too that you're taking care of yourself, doing things you enjoy as that will help cut down on your frustration.
And find a local caregiver support group as that is what saved my life while I was caring for my late husband.
Also if your husband has Parkinson's and dementia, I'm guessing that it's more than likely Lewy Body dementia as that often goes hand and hand with Parkinson's. It is one of the most aggressive of the dementias with a life expectancy of just 5-7 years, and the progression is pretty fast, so please don't waste precious and valuable time with the man you love being angry at him.
You can be angry at the disease yes, as those of us that have been there done that have, but try and enjoy whatever time you may have left with your husband, because there will come a day when you will wish for just one more day. This I know all too well.
Such a great answer, it is so true.
Grieving process should begin before the event as we already lost part of relationship and potentially future with that person.
Anticipatory grief is good tool to get to acceptance.
Potentially it can reverse PD by 10 years.
Otherwise all of it is going to get worse. How fast, nobody knows, but it is always progressive.
I don’t know how you do it alone or with little help, because just dealing with Parkinson’s and complications and about 40 other symptoms, but no dementia at least is hard enough.
But he had really bad fall as well and choking episode lately, it is getting to advanced stage rather quickly, he is still independent with dressing, taking meds, making appointments etc. And mild and most agreeable person, but this cruel disease is getting to me at times. I learned to detach.
One thing I know no matter how much we watch, protect, prevent, falls will happen.
If dementia shows up, I know with decreasing motor skills, level of care he potentially would need is not possible at home.
His brain is broken, easy to say, hard to think about.
I have a friend whose hubby has Parkinson's. She has been amazing as she's cared for him for 15 years (he had some kind of electro-shock tx and it basically reset his clock as far as the disease--they were lucky).
He has just recently begun showing the signs of advancing PD. His wife is amazing. She has learned sign language, along with him, so they will hopefully always be able to communicate.
Every person's journey through PD is their own. I am so sorry for your pain. Watching my brilliant dad slowly 'lose it' was the worst thing I've ever had to watch. If I were you--I would seek to learn as much as possible about the disease and how to handle it.
And be patient with yourself and your DH.