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Same goes for your father. He may need more care than an AL can provide him with, however, at least eventually. Look into Skilled Nursing in case AL threatens to ask him to leave at some point for being more than they're capable of handling. That's what happened with my dad. Right then is when I DID get him an MRI at the ER and found out his tumor had grown and he was given 6 months to live. THEN I was able to get him on hospice at the AL and they agreed to keep him until he passed. I did not want to transfer him into a SNF b/c my mother was alive at the time and separating them would have hurt him tremendously. So that's my suggestion to you: to look into hospice care for dad in the AL he's in now when he declines further. Rather than moving him to a SNF, etc. Make sure with his current AL that they'll agree to keep him until death as long as hospice is coming in to care for him. My dad was kept very comfortable with hospice for the duration, thank God, and it was the best of a bad situation.
Wishing you the best of luck with this whole scenario. I know how hard it can be to go thru this with a loved one. We hate to see them suffer yet there's not much we can do to help them, but be there for them to hold their hand and love on them.
They will adjust meds, and so on, PT helps, freezing is common in later stages.
We went to every specialists, all the tests done, twice, thrice,
MRI, 3 surgeries.
He does not have dementia, highly functioning, my only objective is providing the best quality of life
But, knowing there is no cure, acceptance is the only solution. It is horrible, cruel disease.
If Dad feels he is done with Drs. then go with him. I agree, they get tired of being poked and prodded. But, he may eventually need more care than an AL and aides can give. You may want him evaluated for Hospice care. There are advantages, like free supplies. You don't have to except it but Dad will be assured that there will be no hospital visits or hour long drive to a neurologist. He will be kept comfortable.