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Just have been dealing with this issue this month for my 90++ yr old mom in LTC.
Bit of background: she has LewyBody dementia (which is more episodic) and moved from IL to NH/LTC in January because of a more than 10% weight loss and general inability to function on her own and a TIA in Dec. Because of the weight loss & advanced age, she went to LTC rather than AL.
At her care plan meeting last month, I asked how the NH did hospice. I think my mom has now entered the final stage of life as she is not eating, still serious weight loss and is starting to loose muscle use of arms and legs. She is DNR.
What I found is each NH is different: some move the resident to a separate floor
where everyone is on hospice, others leave them in their room, some NH do not allow hospice. Hospice has to be done by a licensed hospice agency - they will be separate from the NH staff and hospice comes to the NH to see the patient. Most NH have a short list of the ones they work with. At my mom's NH there are 4 different hospice agencies that see residents. One factor to look for is how the hospice handles drugs - some have a kit with medications that they carry from site to site while others have to contact the residents MD and ask for an Rx to be done and wait for it to come to the NH and call them to let them know the med's are there then return to administer. Ask the staff @ the NH, which ones do this. The drug thing is all about one's license to handle class 4 narcotics (which matters especially for cancer patients with severe pain) and how each state regulates it.
Some hospice companies have a free standing hospice facility (either in a wing of a rehab facility or their own free standing building, that probably was a hospital or clinic in it's past life) that take patients with 6 mo expectancy or get transferred to for "end of life" care in addition to going to take care of them at the NH. IMHO one's that have this is going to be especially good if the family lives miles away.
Hospice is paid by Medicare - the hospice will bill medicare directly and not the NH/LTC. An MD will need to make an order for hospice evaluation. This can be written or by phone. We got one place in her chart so when it seems "time", hospice can be contacted to do the evaluation. Keep in mind, although Medicare pays for hospice, the "room & board" at the NH still needs to be paid - either through Medicaid, LTC insurance or private pay.
You need to make sure the AL/LTC/NH knows that you are having them evaluated for hospice and that you, as MPOA, have requested it & the doctor has done an order for it. You may need to send a fax over for this. Otherwise the hospice RN
&/or social worker won't be allowed to evaluate. This can be sticky......
Hospice also does at-home care. I don't know how that works as my mom is in NH. For my MIL, she fell at her AL, then went to the hospital. From the hospital to a hospice facility (her AL which is also a NH facility did not take hospice residents) where she died after a few days in May. The hospice staff was great, compassionate and contacted the son's twice a day.
VITAS and Compassus are the big players in hospice care.You could contact them to see what is available in your region.
There is no time limit on hospice once they are evaluated and approved. What happens is that they get certified and then after 90 days again, then after that every 6 months(? if not it's something along those lines). You shouldn't have to deal with this part, the hospice does this.
Remember hospice is all about comfort and palliative care. There is nothing that will be done to make them get better or get cured. If you haven't had a reality check talk with your parent's MD then you really should do that before requesting hospice evaluation and placement. Good luck none of this is simple.
I think hospice provides the most humane environment for end of life care. If possible, the patient can stay in his or her home, family member's home, or they can have care in the hospital, ALF, or NH too.
They will provide basically everything the patient needs including medical devices, pull ups, etc. They send whichever personnel is needed including: nurses, aides, and spiritual advisors. Hospice also helps the family prepare for all the end-of-life issues.
You can check out several websites for qualification requirements. There are certain diseases that are covered. Also, a doctor does an evaluation and makes his or her recommedation. Then the representative of the hospice will come out for a visit and to get the paperwork signed. Then they send a nurse and an aide out. You do not have to have all the services they offer...which is great. Too many people coming and going agitates most seniors who are ill.
Btw, the patient need not be terminal to begin care. The doctor needs to determine "decline" and current quality of life.
I think it is the best thing our government ever created for elder care.
The hospice itself, was just beautiful, as well as the people working there. I can't say enough good things about a hospice house. It made a very difficult time a tad bit more comfortable. They deal with death and dying everyday. In my mind, a nursing home is still for the living.
Usually, a hospice patient is expected to live 6 months or less. Hospice care can take place
At home
At a hospice center
In a hospital
In a skilled nursing facility
Hospice can be given in the Home or a facility, whereever the patient and or family feels most comfortable. Hospice is covered my Medicare and or Medicaid as long as the patient qualifies. Hospice is a great program.
Blessings,
Bridget