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Take care,
Carol
I am not sure how much consolation it is, but a HUGE number of brain autopsies reveal incorrect diagnoses, even from some of the best dementia centers in the country. Finding biomarkers that will enable better diagnosis earlier is one of the hot topics in research right now. Last year I volunteered for a spinal tap for a study conducted by the M J Fox Foundation for that very purpose. Researchers are taking this very seriously.
I understand the "what if" scenarios you must be going through. Know that this misdiagnosis was Not Your Fault, and also not the fault of the medical professionals doing the best they could with what is now known. Someday we may be able to diagnose neurological conditions through blood tests or body scans or spinal taps, etc. Science is just not there yet.
Condolences on your husband's recent death.
(her husband, an old man, a younger man, a woman, & others that work in the "home." At first I tried convincing her that his is our house & home, that no one lives or works here but us two people -- husband & wife. All to no avail. So I have taken the advice of many caregivers and caregiving websites -- if her belief is not hurting her or someone else just go along with her. I must admit at first I felt like I was lying to her but I've come to realize that is her reality and I am just entering into it and agreeing. Her dementia is much more stressing than the PD is. Her dementia was dxd as Lewy Body Dementia and the symptoms are different from Alzheimer's but care needs are the same. I have come to realize that: "that Love covers all" Those we care for didn't ask for the disease (and we probably were not asked to be the caregiver) but at the end of the day (or life) no matter what has to be done our love and loving care is all that counts.
I don't know if Parkinson meds would have been better for him than the Alzheimer's meds. I shouldn't beat myself up, but I have been crying since getting this report. I always felt Bob knew more of what was going on than what one would assume from an Alzheimer's patient.
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