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So I watch as my husband changes, tells me things that aren't true, can't find his glasses that are sitting on top of his head, and enjoy those moments when we may have a few easily shared thoughts together. It can be hard to not correct, or become overwhelmed by dementia, unless you've willingly trained in the medical profession to deal with this disease, who on earth is prepared for this?
A good friend told me this years ago, "roll with it, or it rolls over you". Unless things have gotten totally out of control, I just let go of the illusion of control and it keeps my husband's stress levels much more manageable too.
She cannot reason any longer. Whatever you say will make no sense to her and embarrass and agitate her. It will frustrate you and agitate you, as well.
Learn to live with it. Learn that her having correct information is not that important. What is important is that you learn to accept and live with her diminishing capabilities.
No, it doesn't change her mind one iota. But it makes me feel better!
I had tried this with my mother who had Alz. I even recorded her saying what she later denied, and she still didn't believe her own voice. It was NO use.
So you can go mad waisting your breath trying to correct Mother with reason.
Or you can go mad agreeing with non-sensicle statements.
Or you can accept what is, this moment, with humour & peace. Accept this new version of your Mother. Still her, but with some wear & tear to her brain cells.
A painting that came to life & took things in the night was a story that made sense to a lady I met. It still makes me smile 😊.
I suggest you read this 33 page booklet (which is a free download) which has THE best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Here is a list of useful tips for you to use when dealing with mom nowadays:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The "Do's"
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Care Needs
· Recognize that receiving personal care feels intrusive
· Reassure with your tone and manner
· Do one thing at a time
· Talk through the care “play-by- play”
· Be aware of your body language and use it to communicate relaxation and reassurance
· Be sincere
· Use a soft, soothing touch
· Be aware of the individual’s unique triggers
· Be aware that a person with dementia may not accurately judge whether a situation is threatening to them
· They may respond to fear, pain or anxiety by defending themselves with what we call “aggression”
· If they become distressed, stop immediately and allow them time to calm down – don’t try to restart the activity right away
You need to change your behaviour to adapt to the dementia because the person with the disease cannot.
A good book to read is Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's, by Diana Friel McGowin. Learn all you can about AD/dementia b/c knowledge is power!
Wishing you the best of luck with all that's going on.