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Story:
I have mild dementia caused by a TBI (drunk driver 4/2006.) Before the accident, I was a highly functioning, pharmacist. I lost 12 years of memory due to the accident. Age 34 at time of accident, so my reference point of memory is age 22. My memory drops information about every 2 days. Recently, I was evaluated by a neuropsychologist, orders of my neurologist. He agreed with the diagnosis of my neuropsychologist of 10 years. I also have occasional seizures. I have not had a seizure for a significant amount of time. I've had a sleeping disorder due to the TBI. I started having nightmares recently. They are terrifying. I have been observed while the nightmares (sleep studies.) I do not move. I wake up hot & scared. I feel I have to get out of bed, walk around my bed, realize that I am in the same environment & do not go back to sleep. I do remember the nightmares immediately. I know I had one two nights ago, but have no idea what it was about, Last night I remember well. Details are real events in my life prior to age 22, mixed with things I have only read in police reports post accident starting about 3 years after until the present.
I do realize that my and your mother's path and circumstances are very different, so I do not know if this is helpful. I will help in any way that I can.
Jeanne, thanks for the med tips. I have been on clonazepam for periodic alternate to ambien. It gives me an awful drug hangover. But I think klonopin is a BP med? She n I both have low BP. I use ambien ongoing, has that been used for ur DH? moms dr wanted to start w PT, to strengthen proximal weakness n improve fastinating gait. Mom has been pretty unwiling to cooperate, but has accepted some fall reduction environmental changes, n if I cajole often, does better getting 64 oz h2o daily. Thanks for the book reference. I believe I have delayed sleep phase D/O, sleep lab dr blamed on med's, but had symptoms since young child, long before ANY med's. Jeanne I hope u r hanging in there w ur husband, luv to you both, and Braida, welcome to AC. many great folks here. Let us kno how things r going, n hope u get some rear tonight. If u can get mom moving today, that may help. I also try to sit her in the sun some ea day, as well as open blinds after in bed to let light in room in am. Trying to keep her brain receiving reg day/night cueing, just in case it makes any difference. Best sleep pattern when we get her to walk ea day, but unwilling lately. Helps even if just a very short distance. Hugs to u both, and mom n DH, Kimbee
Braida, the RBD dreams usually involve being chased, by animals or by bad guys. Each dream is different but they follow a really similar pattern. When we dream our bodies are temporarily "paralized." But in RBD this mechanism doesn't work, and the dreamer acts out the dream. Legs are running. Arms are striking out at the bad guys or animals. (Bed partners get hurt!) That's why I asked if you have observed your mom in ther sleep.
Other possibilities are sleep terrors or regular ol' nightmares. Sleep terrors are treatable.
There is a fascinating book about all kinds of sleep disorders. It is "Sleep" by Carlos H. Schenck.
If your mother's doctor isn't familiar with sleep disorders and how to treat them, it might be worth asking for a referral to a sleep specialist, especially if these episodes are particularly disturbing to Mother.