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This goes along with my other posts. For three years my wife and I were at home caregivers for a loved one very intense no breaks. The loved one hopefully will be in memory care soon. Now we are wondering if we gave it our all. We certainly have tried our best . Also siblings who did not help at all not even once are doubting our decision.

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“We certainly have tried our best” This says it all. Your best is all anyone can do, please don’t let doubt set in. Sometimes a situation simply becomes too much for a home setting, that’s the sad but true reality. And tune out the voices of others who haven’t lived your tough experiences themselves. Armchair quarterbacks are full of opinions but not experienced. You will still be involved as an advocate in your loved ones new setting, only you’ll rest knowing the person is safe and professionally cared for, and again, you’ve done your best
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I think it is normal to second guess your decision. I certainly have. We kept my mom in our home for 5 years but it became impossible to continue. We placed her and she did decline and passed 5 months later. I have tortured myself over the same question. Did I do enough? I am not in the stress now and can think more clearly. If I had kept her in my home, who knows what would have happened. She fell twice in two months before I placed her. What if I had left for a few minutes and she fell and really hurt herself? Then I would be wondering now if I should have placed her.

There are many folks on the forum who have made the same decision and got through this transition. Their loved ones did very well after they were placed.

You have to make the best decision you can make with the information you have at this moment. Siblings, who do not help, do not get a vote!!!

I will say when she was placed, my time with her was more mother-daughter. I was not just a caregiver and the time together was precious.

You can do this. I wish you blessings during this difficult time.
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RK, to the siblings, they can take the loved one and do their best or they can shut up with their opinions. They don't have a say other then they'll take over.

Of course placing a loved one is hard, placing my dad was the hardest thing I have ever done in my life. I bawled for weeks after every visit but, I knew that I could not provide the care he needed and that kept my head and not my heart in control.

It's not like you drop them off and never see them again. You are going from 24/7 caregiver to advocate, friend, son, daughter, spouse, whatever relationship you have. You get to help enrich their lives instead of feeling like they are sucking your life force.

You and your wife need to tell the siblings step up or shut up. We have made our decision and you have NO SAY in that. Prepare yourselves for the transition, remember, your lives have been on hold for 3 years, you'll need to adjust to the change as much as your loved one will, tears, upset, anxiety and anger will all show up during the adjustment period, expect them and deal with them and keep moving forward. You will all survive the change.
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Msblcb May 19, 2024
What a great response!
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I'm full-time caregiver for my husband, who has dementia. I think home care is overvalued.

What...? Wha....? Huh? How can it be?

We have AARP shoving us the idea of building on to our homes to make space for our LO's as they age. We have "It Was The Best Decision I Ever Made" articles from those who took in their dad with diabetes and dementia, their mom with dementia and double incontinence, auntie who couldn't walk, and uncle after his stroke - and the writer gained insight and fortitude and wants everyone to have this unique bonding experience with their elderly sick loved ones as well. Feel-good stories are just that - propaganda to make us feel good. They do nothing to address the real issues that real-life caregivers face every day.

Eventually Dear Daughter who built an ugly 1000 sq. ft. MomShed onto her house will be finding used toilet paper under the couch cushions and in the bed just like we do. She'll feel disillusioned, to say the least, that AARP didn't warn her of this. Dear Son will wonder what went wrong when he agreed never to "put" mommsie in Assisted Living - why is she so depressed? Why does she want him in her hoarded home to watch reruns of I Love Lucy every single evening, why does she want another cat when she already has 4 and can't bend over to scoop the litter box so he has to do it, and now he's started changing her Depends but there's no relief in sight BECAUSE HE PROMISED HE'D KEEP HER AT HOME? Oh, and his wife left him because he's never home with her and the kids.

We can change this. Every person approaching age 60 should look at what's out there in terms of care. People don't see options other than family because they've never visited an independent or assisted living facility. They want to live with Dear Daughter or Dear Son, and sometimes it's Dear Grandson or Dear Granddaughter whose life they're going to ruin. And they live into their 90s, which is a helluva lot of Depends.

If you know someone who is caring for an elderly sick relative, instead of telling them that it's their DUTY to care for Mommsie till she dies nonverbal in a fetal position as the result of Alzheimers, help them find a great facility where Mommsie and her Depends can live among professional caregivers who love them and take it all in stride. Where they'll have three meals a day NOT cooked by Dear Daughter, or worse yet, Daughter-In-Law.

If you're the relative who keeps nattering about how Sis should be cleaning up urine that Dad pees in the corner until he dies, try taking care of him yourself for three months. Then get back to me.

"OH, but I work, I can't take care of him!"
Mmm-hmm, well, we once had "real jobs" too.
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Anabanana May 19, 2024
Exactly. If I cared for my parent 24/7, who was going to raise my kids? My husband has a business to run. And I mean literally 24/7, because she’d sleep an hour here, an hour there, then phone me and pound on my bedroom door at 2am, 4am, 6am... often yelling

“If you don’t (fill in the blank), I’ll ruin your life!”

She’s now 99. I have her in care - a wonderful homey small place. Sometimes, when she doesn’t want to be changed, she bites, and it takes 3 staff members. They say she can be a real challenge. I dare ANY of the doubters to take her home with them. Heck, I dare any of them to visit her!

BTW Fawnby, we built a 990sq ft granny flat next to our house 20 years ago. It seemed like a good idea at the time. Then... it became a nightmare.
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The siblings who did nothing but doubt your decision to place the loved one can move said loved one into their home and take over the caregiving. Otherwise memory care it is.

Please stop beating yourself up about it and putting yourself and your wife on a self-imposed guilt trip on whether or not you did enough for the loved one. You did more than enough while your siblings did nothing.

Do you think your siblings feel guilty for leaving the demented loved one's care needs entirely up to you and your wife 24/7 for the last three years?

Believe me, they don't. Siblings never have a moment of guilt for the sibling they dump the needy often demented loved one off on. Just so long as it's not them. Sure, they will demand to be 'kept informed'. They will thinly veil their criticism of the sibling/caregiver under the guise of being 'concerned'. It's an act. They're relieved for not drawing the short straw so they don't have to change their lives in any way to accommodate the needy loved one.

You know, I truly detest the term "loved one". The only time it's ever used is when someone becomes needy and requires care. It sounds to me like you and your wife are the only people who actually loved the person you took care of because you're the only ones who took care of them and for three years

The siblings could have stepped up at any time to help with the caregiving or even to take over for you. They had three year's worth of opportunity to do so, yet they did not. They did nothing so they don't get a vote on the loved one's care and they forfeit their right to voice any opinions on how it's being handled.

In simpler language they didn't do sh*t so they need to shut the hell up.

Start living your life again because there is life after caregiving. Forget about what your siblings think. You and your wife are the only ones who did anything and that counts.
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Lovemom1941 May 21, 2024
I second that and third it for the grandson and his wife who led the band!! You are 100% right. I’ve been accused of everything but doing what was needed. They can all kiss my backside too!
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Only the very best of us question ourselves.
Only the worst of us question OTHERS. Those siblings? They would be the ones who didn't help much. Likely the ones who helped the least have the most criticism, because, frankly, they are quite simply clueless. They didn't ever notice they were needed, and they won't in future either.

You know good and well why it is now time for memory care. You don't need me to remind you. Just make certain that you don't assume the mantle of guilt, because you didn't cause this and you can't fix it and you have an absolute right to your own life. You aren't god. You aren't Saints, and it's a horrible job description anyway. You are human beings with limitations and this is your one (I think) life.

Will there be feelings and tears? Yes there will. This is worth grieving. I am so sorry. But I so congratulate your for doing what you could, and recognizing when you could no longer.
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I would definitely not be above telling those siblings that I'll be happy to help them move the LO to their home, if they don't like the idea of memory care. This is one life you have. You're not required to attain sainthood.
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Kwiemer May 19, 2024
Yes exactly. Tell them you'd be happy to hand over the reins. Then when they studder and stammer about how they can't... then tell them to shut up.
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Oh where would we be in life w/o guilt ruining it, huh?

Why are you even asking yourself such a question now? Because the Armchair Critics are doubting your decision? You, who have been in the trenches with your loved one for 3 years while the Armchair Critics were enjoying life and vacationing, guilt free and w/o a worry in the world? NOW they have free advice and fingers to wag in your face, from the comfort, yet again, of their armchairs????

Tell them this: please feel free to come pick up Loved One at 1pm tomorrow, lock stock and barrel. She'll be waiting for your expert care and management of her in your home forevermore and I and my wife will now assume the roles of Armchair Critics to supervise what you are doing wrong and what we dislike about her care!

That should shut them up permanently.

Do not doubt your decision here for one moment. You are giving your LO a safe and clean new environment where she'll have good care, hot meals, activities and peers to engage with every day. It's a fallacy to think ONLY home care is right for our LOs. My mother thrived in AL for 5 years and in Memory Care Assisted Living for nearly 3, living to the ripe old age of 95 with no hands on Care by me, her daughter. In fact, the staff saved her life 3x by catching pneumonia very early and getting her treated, either in house or in the hospital.

Best of luck to you.
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Kwiemer May 19, 2024
Yep. Exactly
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Really Over siblings who do Nothing having a Voice , delete them out of your head - They are not Paying rent to be in your head . 3 years is a long time . Is your heart racing ? Do you Not Know what you Look Like in the Mirror ? How is your health ? When is the Last time you had a Physical or got new eye Glasses . I find that we as caregivers really neglect our Needs . I use to think Jesus I am Going to have a heart attack - My heart would race . I still have Not gotten to a Good eye Doctor , went to fast Places and the Glasses sucked . The Last time I had a date was in 2016 . I Know I was at the Point of exhaustion September 2022 - Just really had nothing left In me . It Takes a Long time to recover from caregiving at least 2 years . I have aged tremendously In the Last 8 years . Remember you are Using Your Life force to keep someone else alive and it does take a toll on your Body . One time I went to 3 chiropractors several times till I went to my Old Chiropractor and he said " Karen your back is like this because of the stress . " Not Just when I had to Pick my Dad up off the floor . I had to Lift my Mom from a wheel chair and into the car - saw the chiropractor that time too . How Much More can your Bodies and Psyches tolerate ? That is your answer .
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Isthisrealyreal May 19, 2024
Stick a sock in it!

That's what comes to mind about siblings that do nothing but have much to say.

Yours is such a cautionary tale about giving yourself up completely to prop up another.
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Listen to your own self which is telling you it’s time for memory care .

Your siblings have no clue .

It’s hard enough to place someone without the doubters voices . I had the same problem with siblings who did nothing , giving me grief over placement .
One of them was purely looking to preserve inheritance , told me I was wasting money on “ an expensive hotel with meals “. I still do not talk to this sibling 7 years later .

Either ignore the siblings or tell them they can take over loved one’s care at their home . Know that these situations can kill sibling relationships .

Sorry that you have to deal with the critics on top of an already difficult situation .
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