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These are tough years to get through. Try not to be too hard on yourself. Good luck to you .
"Aging and decline are normal. It only goes in one direction. It's not your fault, and it can't be changed, everyone who makes it to your age experiences it. Together we can plan and make what comes next as good as possible. Here is what I think will work for the both of us. I will help you every step of the way..."
You may wish to ease into a different arrangement by having her go to an adult day care. This gets her accustomed to being out of the house and interacting with other people. Then you can research some reputable local facilities and ask to visit while it's having activites or an event. People your Mom's age only have horrible perceptions about facilities. Still, no one her age looks forward to this sort of change. Just move it along as best you can, understanding that you don't need to have her full acceptance. You need your life back and she will gain from the 24/7 care and social exposure in a good place, if that's a solution you choose.
Could you have a discussion about AL with your mom? My mother also felt the same way - that she didn’t want to be a burden. I was honest with her and told her I was afraid that if anything happened to me, she had no one to take care of her. I don’t know how old you are, but take that into consideration, too.
Good luck, I know it’s a tough situation to be in. Your mom sounds like she has a good head on her shoulders and you would be able to have a frank, reasonable discussion with her. I hope you can work something out.
If mom knows she's a burden and is suffering anxiety as a result, then offer her an alternative to being a burden: AUTONOMY in her own apartment. With care available IF she needs it, but not if she doesn't. And you going to visit her frequently. With doctors coming in to see HER on site or a mini bus to take her where she wants to go.
You have nothing to feel guilty about; you took the woman into your home, for petesake, what more can you do, carry her to work with you when you leave the house? What you can do is offer her a better lifeSTYLE than she's living now so the both of you can have a better life as a result. It's not 'insulting' to do so, and if it's interpreted as such, then she's not as mentally 'with it' as you think.
Best of luck finding a better way than what's currently not working for you.
On a lower floor, perhaps she can rehab a little to do a few things around the house to feel more useful. Laundry folding is a good task (exercise for arms, too). Another task might be sorting the plastic storage bowls and matching lids (those always get out of control with me). You might give her a notebook to keep a grocery list going - when you're out, tell her to put on the list. Make her feel useful. Good for the body and the mind.
The aid is most useful to both of you. Allows her communication and social interaction with others and helps you with her needs. If her finances allow, increase the care to 3-4 or more times a week. Call her doctor and ask for in-home physical therapy as well. Medicare covers physical therapy (legs) and occupational therapy (upper body) for limited periods of time. If you do request therapy, ask the home health company to do one first and when it wraps up, start the other. It keeps the therapy ongoing longer. That means another person coming to the house (that you don't have to pay) to help get her stronger and outside social contact.
Finding ways to spend some quality time now will help you when she dies. You already struggle with feeling guilty, please mitigate issues that you know are going to be an issue for you.
Tell her these helpers are for you so you can have more free time. Reassure her that she isn't a burden and find ways to occupy her so she doesn't have sooooooo much time to dwell on negative feelings. Help her feel helpful.
Can she use a phone? If yes, find a local charity that needs friendly callers. She can brighten the day of someone else by calling and caring about them, by sharing herself her anxiety should improve.
Best luck, these are such challenging situations.
Impulsively I wrote every year ur here is as bonus for me.
Dont know how that will be recieved yet... Maybe get her 'thinking of u card' to celebrate that every year ur here for is a bonus to me.
Or how about... I'm glad I'm not an orphan today.
If either one of you has not finalized final wishes paper work, set that appointment with an Elder Law Attorney.
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