By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or
[email protected] to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
*If I am consenting on behalf of someone else, I have the proper authorization to do so. By clicking Get My Results, you agree to our
Privacy Policy. You also consent to receive calls and texts, which may be autodialed, from us and our customer communities. Your consent is not a condition to using our service. Please visit our
Terms of Use. for information about our privacy practices.
I'd see if a doctor or nurse practitioner with a focus in geriatrics might be able to assess her, set what meds might not be needed anymore, and maybe what could be added to reduce discomfort/'nit picking" (a kind of agitated anxious repetition of an idea or question, usually.). Hired help in the house to give you some support would be good...mom won't like it, but often the hired helper and the elder get along ok after a few visits..as long as there is no audience for mom to play too!
If Mom has the funds, consider a mini-van with a rear wheelchair ramp installed. They can be purchased used for $15,000-$20,000 and maintain their resale value pretty well. The back bumper area folds down into a ramp which allows an occupied wheelchair to be loaded into the center rear area while allowing 2 bucket seats of the rear row to still be usable. You can have 4 people (including the driver) in the minivan plus the wheelchair-bound person. There are seatbelts to strap the wheelchair into place and the occupant in the chair. I first saw them in action by a regional transportation service the state supports in our area. They picked up my mother at the door and transported her to Adult Day Care (ADC) and returned her in the afternoon. I think Mom may have liked the rides to/from ADC as much as being there.
If Mom cannot afford the minivan herself, check with the Area Agency on Aging in your area to see if there is a similar transportation service available. Here in East TN the rides cost $2 a trip and you need to be a bit flexible in the scheduling (stated one-hour window but they usually arrive in a 10-15 minute window).
BTW, the second-row seat of a minivan can be a lot easier to get a disabled/challenge person into. Having the door slide away provides easier access and the person has more room to get their feet into the vehicle. While my mother had mobility challenges, most of the time she could stand and turn to assist transfers. Rolling the chair up to the minivan, having her stand and use a walker to turn 90 degrees and sit in the car seat while her feet remained outside, then slide around forward and get her feet in worked well for a long time.
As far as finding something else to occupy herself, I always advocate for people to jot down their memoirs. There are tons of websites with prompts to get her thinking about things to write down. One's memoirs need not be chronological, or cover every year's activities in painstaking detail, and prompts help you start thinking about a time or place, then that leads to more memories.
Get her a pen and paper or a digital recorder, and give her a list of prompts. Maybe she can get through one every day or so.
Here's a good site with prompts --
https://authority.pub/memoir-writing-prompts/
Coz really, unless she can stand well enough & transfer into & out of the car with just minimal help.. it's heavy-duty lifting, pushing, pulling. This + wheelchair wrangling = back breaking.
So, outings are necessary only, in wheelchair taxi imho.
IF you are willing to compromise, have a team of sturdy helpers or are built like Popeye (after his spinach) - agree on 1-2 outings a week.
I get that the lady sadly has no other interests left. But also has no insight left that this physical task will ruin her best caregiver.
So my 2c is;
1c Look after yourself.
2c Think about what gives her pleasure from these outings? Attention? Fresh air? Seeing other people? Birds?
How can you replicate that at home instead?
My relative is the same. Nag nag naging for drives. (Not to me.. I maintain a Hard No). Wheeling to sit out on the porch is my limit.
I suggest you get her some sounds of nature CDs and a few beautiful scenery videos and put them on the tv set for her to watch while propped up in her chair. Leave the room while she's enjoying the video and take a break yourself from the nit picking. Don't expect your mother to do anything much, with dementia at play, and learning a new hobby isn't realistic.
Wishing you the best of luck with a difficult situation
Gas is expensive now, no question about that. But can you double up on other errands or trips to allow her this indulgence?
As to the entry and exit from the car, I can understand that, and the challenges it presents. Are you using a slide board to help her get in the car? If you're not familiar with them, they're smooth boards that are placed underneath the left hip of the individual while still in the wheelchair. The person then scoots from the wheelchair onto the slide board, as far left (and into the car) as possible.
Then she tips to the left side, enough to allow the board to be gently removed.
My father made 2 of these boards for my mother, one longer than the other. They made transferring from a wheelchair so much easier.
Slide boards of varying configurations can be seen here:
https://www.elderdepot.com/transfer_boards.php
Transfer method from wheelchair across a board to a car:
https://www.youtube.com/watch?v=_dcUemgT6Go
If this is the only enjoyment in her life, I think I'd try to make it enjoyable for myself as well. She probably doesn't have much about which to be happy otherwise.
The second question is how to handle that she “makes our life miserable with non stop nit picking”. There are lots of answers on just this question, mostly about walking away saying ‘I’ll come back when you are feeling a bit more cheerful’.
What is more important is “she has severe arthritis so she is in severe pain”. She should have enough pain killers to stop this. If her doctor is one of those who are now too scared to prescribe enough codeine to control the pain, find another doctor. Addiction in someone who is 94 is a crazy non-problem. Even if she does get addicted, she won’t be out robbing banks to pay for her ‘habit’.
Do you have a bird feeder at window she can sit by to watch? My mom spends a lot of time bird watching. Also, stuffed, mechanical "pets" seem to be very comforting to some people with dementia (my Aunt has a weird, multi-colored stuffed Llama that is alternately her baby/boyfriend). You will just need to keep trying things until something "works".
I had to stop taking him for rides when it became unsafe for him and for me to get him into the car.
Use that basis for your decision taking her out.
would she enjoy it if you took her for a walk?
would she enjoy just a bit of time out sitting in the sun getting some fresh air?
If she wants to go for a ride, that being the key here tell her...
The car does not have gas right now, I will get gas tomorrow.
The tail light is broken, I can't drive it until it is fixed.
I don't have time right now to go for a car ride, maybe later
Are you living with her? Because she will not be able to live on her own as time goes on.