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Lewy Body Dementia Association
Nonprofit organization
Description
The Lewy Body Dementia Association is a US nonprofit organization based in Lilburn, Georgia, and "dedicated to raising awareness of the Lewy body dementias, supporting people with LBD, their families and caregivers and promoting scientific advances".
Best regards
Once again thanks for your response!
88-year old Mother has Lewy
Body Dementia. One very useful
resource that I found is a book called "A Caregiver's Guide to
Lewy Body Dementia" by Helen Buell Whitworth and James
Whitworth (Second Edition).
I found it at the local Library first and then wound up ordering myself a copy online. Jim Whitworth is one of the co-founders of the Lewy Body
Dementia Association (LBDA).
You might find this book very helpful- I have! Good luck to you.
Appreciate you taking a moment to respond.
Inform yourself (and be prepared to inform medical professionals) about adverse reactions to common drugs. Drug reactions can be severe and long lasting, including exacerbating the hallucinations.
https://www.smartpatients.com/communities/lewy-body-dementia
There is also a section for info and resources on that site.
Also, there is a website you can sign up for specifically for caregivers to folks suffering from FTD, here:
https://www.theaftd.org/
Best of luck
So, it’s a matter of managing symptoms that pop up, as well as the balance issues that come later.
Stay strong, and remember to take care of yourself. You won’t be able to help him if you get run down. The most important thing you can do is to get someone to spell you so you aren’t in the house 24/7. Hugs from me to you.
Hugs back atcha!
Appreciate you!
I'm doing ok. Thanks for asking.
https://www.agingcare.com/topics/12/lewy-body-dementia
I just have not had time to check in as much as I would like.
So many wonderful, caring humans out there!
I wish you good luck. There is so much information out there, but an individual's progression is as individual as his or her own fingerprint.
my husband had Lewy body .. it’s actually 2 illnesses… dementia and Parkinson’s… much more aggressive
and not at all like a gentle Alzheimer’s. A lot harder to manage hallucinations
behavioural and anxiety .. need meds to control … at beginning and
later Parkinson’s kicks with balance mobility issues … but there’s tons of info on google / utube … it’s usually aggressive but everyone different ..
sometimes more cognitively aware
than others . Best luck !