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One thing that happened when our friend was getting close to the end was multiple calls 24/7. She was scared to sleep, so on top of the cancer eating her alive she dealt with sleep deprivation, which led to a kind of psychosis, not easy to deal with at all. She became convinced that her mom (24/7 live in caregiver) was trying to kill her. For 7 weeks she wanted my husband by her bedside, she felt he would protect her, obviously he could not stay 24 hours a day, she wouldn't let him sleep either. So the phone calls. My point is that cancer is a brutal nasty disease and it literally eats the host body alive, so prepare yourself for the bizarre heart breaking journey. Please find a group near you and force yourself to go get the support you need. Take a walk even if you feel to exhausted, make yourself do it, you will feel so much better after a week or so of forcing yourself. The body releases stress relieving hormones when we exercise, look at the sky, flowers, animals, whatever helps you smile and be right in that moment. You are a loving, caring daughter and your mom is blessed to have you to travel this journey with. Stop beating yourself up over what you can't do and start seeing what you do and know that giving of your self is more precious than anything money can buy and give yourself credit for that. It is okay to not go every day, sometimes we need a break from it. Someone who has not walked in your shoes will never understand all it costs to be the one that is there till the very end. Please start taking care of you, your fury kids need you.
I wanted to say also that i would be surprised if your mom could find housing as cheap as what she pays now. Do you take advantage of the local food bank, food closets, etc. There are many ways to receive food aid in this country you just have to look.
God Bless You and your Mom on this path she has chosen for her last wishes and may He give you strength and peace.
Then sort them by priority : #1 is a necessity, #2 is needful, #3 would be nice, #4 if there is nothing else she needs and you have extra, and #5 when I win the lottery.
Take the list with you so you can get it if you have the funds.
If you do have the funds for priority # 1 get that. If you don't, then
talk to her about not having the funds and can she give you the
money for it and try to work out a plan for that.
If you do have the funds for priority # 2 get it. If not, then don't.
Same for # 3, 4, & 5. If she asks, explain it is on the list and you
will get it whenever you can afford it.
The answer is always "yes, as soon as I can afford it."
My mom has been calling me most days up to 15-25 times a day & even though I have her number blocked (was told by her doctor to do that or I would go insane) & check my voice mail periodically, how can I get her STOP??
I had given her a cell phone a few years ago but had to take it back because she of all the calls she was making but she still has her landline & she uses that to call me.
What else can I do to get her to stop this??
She calls day, night, early morning, late at night, when I’m working, sleeping..it’s just too much..please help.
So what I am saying is sometimes parents can afford they just have to change their spending habits. Just like most of us who find the cost of living goes up and up but our SS and pensions don't. I pray that we as parents make choices that will help their children not put more responsibility on their shoulders. We r living in a different world than our parents did. It takes two salaries to pay the bills now and I think it will be worse for our children. I plan on downsizing. If my husband passes, its a deffinate. That way all my kids have to worry about is cleaning out an apartment.
guilty if we cannot provide what they request. So many of us are
juggling so many balls in the air, we just have to prioritize requests.
If we set levels A, B, C, etc then assign requests to the level. I have to write things down so I don't forget. Then do as I can. Of course
take out would go down on the list at D or lower. It IS on the list, but if there is ever money or time to do it is questionable. That way
it is acknowledged as a request, but you are not under commitment to do it now. I hope that helps.
Your poor mom will need to give up her pseudo independence and will in all likelihood have to suffer the indignities of total personal care as her body fails whether she is in a facility or is at home. Don't let fear of the unknown be the thing that keeps you and her from reaching out for help or starting the process to find and pay for an appropriate facility. Even with Hospice there is not around the clock care in the home. In a facility there will be shifts of caregivers 24/7, she will never be alone and the horrible burden of caring for her at end of life will not be solely on your shoulders.
Anyway, most of you are correct in your assessing my financial inability to help my mom more.
I am single, no children, but have animals (that I consider my “fur kids”), I have no siblings.
A few cousins who live out of state but they have their own responsibilities caring for their mom (my great aunt) who is in hospice.
I don’t drink, smoke or do any drugs.
My only vice is food.
I use food as a “narcotic” to numb my feelings of inadequacy in terms of being able to help my mom more (both financially & emotionally) so I have put on a lot of weight because all I do is work, go and see my mom every day, come home, eat & go to bed.
I have no social life because all this has caused me what I call a “low grade depression “.
Not enough to totally incapacitate me from work, responsibilities, etc but just enough to make me not want to be around people & socialize.
I have no time and/or energy, desire, whatever you may call it to do anything pleasurable.
My mom has always bailed me out growing up as a child & young adult & I am forever grateful & appreciative to have her as my mother, however since her illness has taken hold she has become a very lonely, scared & needy person who is requiring much more then I am capable of giving her.
And that realization has me feeling very sad, helpless really to change anything & very, very tired.
All I want to do is sleep.
Sleep curled up in my bed w/my fur babies around me.
My mom doesn’t smoke, drink or any of that.
She’s never been “sociable” w/friends or neighbors even when my dad was alive.
The 2 of them pretty much avoided friends because they were secretive.
I know why my dad was, & my mom became the same way after she married my dad.
My mom doesn’t receive any food stamps but I’ve applied recently for her to get her some so hopefully that will happen.
She has breast, lung & possible brain cancers, asthma, spinal issues, chronic dizziness, she’s very unstable when she walks even w/her walker she has fallen x2 in the last year.
She has horrible anxiety and often will call me up to 30 times a day, some calls are within minutes of eachother.
I was advised by one of the ER doctors to block her number, & periodically check my messages as often as I’m comfortable with so I that’s what I do, I check my voice messages every couple hours or so & sure enough there’s a succession of calls, minutes apart then I know it’s gonna be bad when I start listening to what my mom says..
She is choosing not to receive any treatment for the cancer because her mom (my grandmother) died of breast cancer and she did everything the doctors advised her to do, surgery, chemo, radiation & it made her horribly sick & she suffered greatly.
My mom was her sole caregiver & after seeing how sick her mom was, vowed never to have those same treatments if she should one day get cancer.
She won’t leave her house to go to assisted living because those places scare her.
She once said “promise me you’ll never put me in a nursing home”.
“Those places are Hell holes”.
“People go there to die”.
She wants to die in her own home.
Medicaid only allows her 20 hours a week for a caregiver, which at this point is not enough.
Because the 4 hours a day, Mon - Fri that the cg is there is good but my mom is alone for the remaining 20 hours & all day/night on the weekends.
I’m only able to see her once a day for a few hours then I have to work & some times I can’t go every day because I’m so damn exhausted, I have to go the next day, then I feel like crap for not being able to see her the day before.
My dad actually died while he was in a nursing home.
He had 3rd degree burns he suffered because he was set in fire.
We never learned how it happened.
The attorney we had representing my mom turned out to be a substance abuser & missed 2 court dates that resulted in our case against the nursing home being dismissed.
My mom gets $755 a month as income from S.S & SSI.
She pays her property taxes ($180 a month), homeowners insurance ($185 a month), her phone ($40),cable ($40), electric ($100), gas ($87) & water ($120).
Doesn’t leave her much at the end of the month.
This forum is for offering support and advice.
Advising, NAY DEMANDING that someone pay for things they cannot afford is NOT supportive or good advice. There is a HUGE difference between denying something and not having funds to pay for it.
Lambasting EVERYONE and name calling is NOT supportive at all. It is very disrespectful.
You are taking your own hate of your own family out on others. As I suggested before, go find a hatedotcom site and spew away. We do NOT need your kind of "support" or "advice" here.
The selfishness and ingratitude demonstrated here is UNBELIEVABLE!!!!!!!!!!!!!!
If she has the money, I would ask her to put you on her bank account so you can have a debit card to make her purchases.
If she does not have the money, she should not expect you to pay for these things out of your own pocket. You have set a precedent by continuing to pay for her every whim. Stop doing that since it is obvious you can’t afford it.
You need to learn that it’s ok to say “no” to your parent.
We need to ignore those who have used this request for help to vent their issues without the thought or consideration of the person in need.
We also need to, although it is very difficult not to do this, try our best to not vent our frustrations regarding the person(s) who has created the situation of self imposed need rather than thinking about the person who has requested help by having arguments between each other.
This back/forth does not help but places more stress on the person who has asked for help.
Thank you for allowing me to vent regarding the venting☺
I know for fact that Trump donated (past tense),all his first year salary to a non profit. To me, that is a decent generous person. Don't hate people just because they are luckier, or wealthier.
Hangingon61, as most people have said, If she is In her right mind, just say "no". If she has dementia tell her you will get it the next time you go shopping or something else.
I remember one time my mother, who was in her right mind, was mad because she had a hard time getting in and out of my car. She told me to get one she could get in and out of easier. I just flat out told her "This car is paid for, it is all I can afford and you should be grateful I even have it and pick you up in it". I said it in a calm tone of voice, no need to yell.
My dad used to lie to her about how much things cost because he didn't want her to bitch about cost. She never worked outside the home. When he died it was a HUGE wake up call for her. She was yelling about how much a motel cost. With, "Well, I am not going to stay in something that cost that much money! Jake always found cheaper hotels." I just told her, Dad lied to you because he didn't want to hear you bitch.
My Mother would see those magazines,Tabloids at the grocery store check out and always want me to buy her 3 or 4.At $4.99 and up,there ws no way I could afford that and it was just a whim anyway but when Mother truly needed something I did my best to get it for her.All you can do is the best you can.Take care~
Provide a very large bucket of eco friendly pellets for the snow. Have the caregiver place in an area where your Mom will not be able to access.
Try to add about 10 minutes to your morning work travel time. If there is snow in forecast, spread the pellets and tell her that's the best you can do for her that day; then stop by on way home to check on the melt pellets.
Again, talk with caregiver about how the day went for her.
When she asks for fast food, tell her that her Dr has told you that there is way too much sodium in fast food and he does not her to have it because the sodium is too hard on her heart and blood vessels. You're not going to buy it for her.
As for your working and making money....remind her about how much she receives for SS. Give her a comparison of what you 'make' and what you have 'left' after bills, groceries, gas, caregiver etc. Make sure the $$ amount comes basically to what she receives.
YES, LIE TO HER!!🤔
As long as she knows she is able to control you by making you feel guilty she will keep doing the guilt trip.
Check the caregiver's daily diary too. If this person is working for a certified caregiving company, they must keep a diary at the house for review. They must log everything they did or issues they had with the person.
Read it back to Mom and make her feel like she is in time out. It's your turn now to be the parent.
Hope this helps. Merge your way into this role. Good luck.