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Please make sure that you're hiring more folks to help you or try and get some volunteers from your church or from the Senior Center to come relieve you some, so you can get out and do things you need to and or enjoy, as you matter too in this equation.
Also see if your city has an Adult Daycare Center, as that would be very helpful to you, as you can take your husband there up to 5 days a week and up to 8 hours/day.
They will feed him breakfast, lunch and a snack, and will have different entertainment daily and perhaps even a spa day where they will give him a bath or shower and will shave him and even cut his hair if needed.
And if money is an issue for the daycare, they do offer financial help, and if your husband is a veteran the VA will help pay for some of it as well.
And other than this support group, I would see if your city offers a local support group for caregivers that meets in person(my preference)or on Zoom.
I know that my local support group literally saved my life when I was caring for my now late husband.
You will get through this and when it is all said and done, you will be a much more empathetic and compassionate person, and a whole lot stronger than when you started this journey.
May the Lord bless you and keep you as you travel this very difficult road with your husband.
One of the hardest parts for me is support….I feel so isolated and have very little help. We did have an aide coming in but after going through savings and 401k I had to let her go. I am now going it alone and don’t feel I am doing a very good job. He is a Veteran but I have been fighting to get him covered since Feb! I have contacted hospice but they are needing copies of 3 doctors records and we all know they are slow in doing necessary paperwork.
Being on this forum I feel I can be heard and related to. Hang in there, life will get easier for us all.
Or Have you considered placing him in a care home since he needs constant care ?
It sounds like you may have reached your limit. Then you could visit him as much as you like , but can go home and rest as well . I’m sorry , this is very hard .
We started with Fridays (9-2) and he did so well, we now go on Wednesdays, too, same times, although he could stay longer if he wanted to, 5 hours is about right for him.
In addition to the time off for me, I also joined the VA Caregivers Support Group, which is also giving me wonderful support and some great information.
Check out all your options and you might want to call your Area on Aging for suggestions.
God bless you, Sweet Lady.
DeeDee, I’m so, so sorry for your loss. I hope you will stay on the forum for those of us who can benefit from your perspective.
Rubygirl, I’m right there with you!
I'm so sorry you are going through this. Welcome to are forum
i hope you can find help and refuel -
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