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I would think you would get burned out pretty fast if you’re the only one there 24/7. And it probably also turned into cooking & cleaning if I’m not mistaken. Check websites for cost of daily caregiving & tell them you want to be paid accordingly.
Hattygirl you absolutely need a minimum of a couple of hours off during the day. You are a hero and a blessing to your loved one.
I cared for my Husband 24/7 and it was not until his last 2 years that I hired part time caregivers. A few hours 4 days a week. Other than that I worked 24/7/365 and did not get paid.
There are plenty of people on this site that are caring for loved ones and they get no pay and little time off.
If however you are a paid caregiver, unrelated to the person you are caring for then it would be determined by state law how many hours you can work, your time off daily. And I do hope the people you are working for are paying Social Security for you as well as paying any taxes that are required and not leaving the taxes as your responsibility at the end of the year. And I do also hope you have insurance in case or I should say when you become injured doing your job. And there is a minimum wage.
Just for a base line you might want to call several agencies in your area and see how much a Live In Caregiver would be paid and how much time off they get.
I'm sure Tacy is right. You should be able to look up that kind of labor law / regulation guidance on your own state's website.
My MIL has a caregiver from Sunday night to Friday night. The person stays with her all of the time, except when she's in bed asleep. But my MIL does not have significant dementia, and the actual work required is minimal - pretty much the ordinary routines a person does for herself in a typical day. What's more, her caregivers come from an agency, and the agency employs three regular caregivers who each spend several weeks on this one client. Whether weekends off would be enough for you very much depends on what you're coping with.
You're the only caregiver - is there anybody else in the household at all? Other family members, cleaners, visiting therapists, anybody?
What agreement did you make with your client or her family? Agreements can always be renegotiated - I'm asking so that we know where you're starting from.