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I admire you and applaud you.
I went down the slippery slope of allowing my mother to be a guest in my home for the last 1.5 years. I did NOT know she had dementia when she came here. But she does and horribly so. Needs care and watching 24/7.
I am proud of you for setting up boundaries and knowing that doing more could possibly suck the life out of you - which has happened to me.
I'm glad you posted as you give support for others in your situation for not letting this caregiving thing get to the point that I have letting it take away my life.
Hugs and praise to you--
LastOne
I think you would start lobbying by contacting your state and federal congresspeople and senators, and continuing to do it. Another way is to lobby as part of an organization, such as AARP. However, I believe AARP sets its own agency and has its own lobbyists.
During my political activist days I joined grassroots organizations, went to DC for meetings, participated in a few nonviolent protests and rallies, and got involved heavily at a local level, even making one fundraising speech, and once I even ran for a low level political position.
Still, individual voters can't lose by sharing their individual opinions.
Sometime ago GladI'mHere posted information on a lobbying group. I wasn't able to locate that information immediately; perhaps she'll stop by and respond.
I personally think grassroots organizations are great ways to get started; not only does it bring people of similar minds together but it builds confidence as ideas are shared and plans are developed and implemented.
The issue for caregivers I think though would be the time. Many of us just don't have much spare time.
Seniors in high places, right faces, and in the money! They have no worries. Their money can buy them care, not happiness, but care.
LastOne
They are up close and personal with Medicare and Social Security, or soon will be.
One has to remember, The Donald said he won't listen to any lobby groups. Oops. It's us seniors who are the largest demographic to come out to vote in national elections. Some 61% of citizens age 65 and older voted in the November 2010 election, the best turnout of any age group.
"This Week with George Stephanopoulos", George kept telling Mr. Trump that he wasn't answering the question, Trump would say something, and George once again would say he's not answering the question.
Got to admit, it's been a very entertaining political race so far :)
FF, I think Christie is sophisticated enough to know how to play to the voters. Remember when he cozied up to Obama after Hurricane Sandy? I think he knows where his bread is buttered.
Back to the caregiving issues.... I don't even want to think about growing old anymore.
There are so many logical ways the Government could increase income for the elderly, plus implement programs that would allow for free in home help and/or provide more good professional NH's.
I've heard it said and read it many times that AD/Dementia and related diseases is becoming a Worldwide epidemic as well as the caregivers who have to care for their parents.
Just how would one start lobbying for better care of our elderly?
I doubt that Trump will make it to the primaries and nominating conventions. I can't see the older more mature and rational people in the Republican Party choosing him as its standard bearer, but that doesn't mean he isn't going to stir up a lot of hate mongerers while he's out stumping and trying to keep his hair out of his eyes.
Maybe his businesses are failing and he just needs some publicity. If so, he should at least get a well fitted wig.
Maybe a little exaggeration..........
It is a sad thing that some people don't have enough to live on even earlier in life. What they tend to get is a cluck-cluck, shoulda worked harder and saved. No one listens to the poor.
So it is up to the middle class 40-60 year olds, I guess.
I'm wondering if as the current group of caregivers moves into our own years of needing care that we'll be more aggressive in lobbying and demanding more rights for medical and legal support to make the decisions we feel appropriate, rather than as you so poignantly describe, "sink into the abyss of old age and dementia".