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You can hope that once the shift is over, his mood will change (people often improve with more care by strangers), that your tolerance will go up, and that things will get better. You know that things will get worse if nothing improves at home. Best wishes, Margaret
https://www.seniorlink.com/blog/50-tips-on-transitioning-a-loved-one-to-memory-dementia-or-alzheimers-careyour-blog-post-title-here
I also suggest you read this 33 page booklet (a free download) which has THE best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
She also has published a workbook entitled, “It Isn’t Common Sense: Interacting with People Who Have Memory Loss Due to Dementia.”
https://www.amazon.com/Isnt-Common-Sense-Interacting-Dementia/dp/1481995995/ref=sr_1_4?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468655&sprefix=jennifer+ghent%2Caps%2C631&sr=8-4
I think her books can be helpful for YOU as you process the loss & grief associated with your husband and the dementia you've lost him too. I'm sorry you are faced with all of this; I know how hard it is as I dealt with my mother for 6 years who had advanced dementia and lived in Memory Care AL. It was quite a brutal road to travel, for both of us.
Wishing you the best of luck with all you have on your plate.
Keep coming back and let us know what is going on with your situation. Even though each dementia patient is unique, being here, makes it much less so, and you will find a lot of other folks dealing with challenges like yours.
Yes, this is why I love coming here, it has helped me tremendously (caregive for mom, 93, with dementia)! I LOVE to read the responses/advise from BurntCaregiver!!!
please join me in a Zoom caregivers support group, next Thursday, at 10:30 AM, EST. We talk about issue like this and other caregiving challenges.
copy the link and paste it in your browser.
https://us02web.zoom.us/j/85885877283?pwd=ZjNJWTFOeVJXd2VvYzgyNWRRemt3dz09
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