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Just say and talk in a way that shows love.
Just remember fir the 1st couple years of your life, your mom couldn't understand you either but as a mom, she just offered what she thought you as baby needed.
And now it's your time to return the favor.
My Dad is 96 and he doesn't remember much but he knows when he's feeling happy or sad, he knows when he feels good or bad, he knows when he's hungry or thirsty and he knows if he feels over and safe.
Going thru daily tasks, like cooking or cleaning, I often just explain what I'm doing. Browning the meat, cutting tomatoes, turning on the vaccuum.
Or we sit on the couch together and look through a magazine and talk about what we see. Don't turn the page often, which can be confusing. Point out details and talk about them. Oh, this is such a pretty pillow. I would love a pillow like that. I bet it's really soft. I can just picture a kitten all curled up on that pillow. When I was little I had a kitten named Mittens.....
We did a similar thing with a big painting she had on the wall. 'Those ladies are all dressed up. I bet they just came from church. Too bad it's raining, they will ruin their fancy gowns. I bet there was a wedding in the church today."l
Or sit together and read fairy tales to her. Illustrated books can be enjoyed as the story or just a series of pictures.
Best of luck to you.
The authors, both experienced hospice nurses, first introduced me to the concept of "nearing death awareness," and it changed my experience with my dear uncle, and his with me as his caregiver, I have no doubt, into a pleasant experience for both of us!
As we near death we grow ever more aware of the next world and therefore less and less aware of this world. We may speak of seeing a loved one who has died before us. We may speak of some mode of travel; with my uncle, it was the train. I learned to go with his flow. I told him that I would like to sit with him while he waited. That my ticket was for a later train, but I would not be far behind. SO, SO much better than trying to correct him in my ignorance!
I learned that to some extent we may have some control as to the timing of our death, after "Last Rites" can be given, waiting until Jimmy can get here or simply waiting until our spouse has left the room or has the support of family members; and perhaps we wait until given permission to let go by those we love.
My service dog, Jazz, and I stayed in his hospital room with him, and in the hospice wing of his nursing home following that. Every time I needed to take her out, I told him what I was doing and how soon I would return.
To this pleasant environment I added a mix of soft classical music, a proven calming benefit (It is even used in many animal shelters for this reason!), and a diffuser for calming essential oils. And I bathed our entire experience in prayer.
There were so many precious moments. Although he could agitated in the night, twice he sat up, pointed up past the ceiling, and exclaimed, "Look! look! There's a guardian! There's a guardian!"
I always placed my wheelchair close by his side and up at his height. At one meal he was eating pea pods. Suddenly, he ducked under his overbed table; I assumed he had dropped one. No, he found my hand, gently lifted it up…and kissed the back of my hand! Non-verbal though he was, he melted my heart with his loving gesture of thankfulness.
Several times he rose out of his dementia to say, "You could hold me if you want to." But try as I might, I could not.
My occupational/massage therapist came to the hospice to treat me, either in the rehab clinic or in the room. The morning I called the hospice nurse to come, we stayed in the room. At one point my therapist said, "Jane, I think you'd better get up." As if we'd rehearsed it, I came alongside him nearest me while she went to the other side. As one, we picked up the draw sheet and moved his thin body toward her side. I transfered into his bed, and somehow I found myself cradling him. "Uncle Ed, I'm holding you now," I said. A moment later, he died in my arms.
I could not be more thankful for the many "final gifts" those two hospice nurses-cum-authors gave to me and my dear uncle. May their little book bring blessings to the two of you as well!
So you won't figure out what she's saying but do your best and don't stop talking to her. Knowing you're there with her may bring her some comfort.
I just go along with whatever she is saying. Like she wants to know where her Mother is, why she hasn’t seen her.
I simply tell her she hasn’t gotten home yet, or she wants to go home. I tell her she can’t because they are remodeling the house when it’s ready I will let her know. By going home she means 1930’s
with her family in Lawrence MA. It really doesn’t matter what I say she won’t remember in a couple hours that we even spoke.
The patients have a deteriorating brain disease , but their feelings and emotions are among the last to go. They can sense and enjoy your love and care even though their brain can no longer find he words to communicate.
* People with dementia ARE VERY SENSITIVE to feelings so 'try to' convey compassion and understanding, no matter what words are used (by them or you).
* Keeping them as calm and emotionally even as possible based on how you verbally communicate is important. If you can, hold their hand, look them in the eye, smile.
* Do set boundaries; do not allow yourself to be verbally abused. Leave the situation for two minutes, two hours, a day - whatever you need. Do not burn yourself out staying in the muck. If you do, you won't be any good to them or yourself. Maintaining your own well-being is priority so you can assist them.
* * * * * * * * * *
You take their lead and keep answers / responses short.
Important to remember:
* Do not argue or correct a person w/dementia.
* Acknowledge / 'reflect back' their words to you, i.e., if they might say
"I need to get out of here now, take me home"
Response:
"I hear you want to go home. What clothes would you like to take with you?" or "we're working on setting up your room just as you like it."
3. Shift the focus of their comments to one that validates what they are saying, i.e.,
"I'm miserable and you aren't helping me at all. What's the matter with you?"
Response:
"I'm so sad to hear you feel miserable. How can I help you feel less miserable"
DEMENTIA IS LEARNING A NEW LANGUAGE and it often isn't easy, even for those of us working with people for years (as I have been doing). If you get stuck, validate and acknowledge their words and say "I'll get back to you on that,
(1) you're making a valid point" or
(2) I need to give that more thought (or consideration) - and switch the subject / focus.
* BE GENTLE with YOURSELF. This is not easy to navigate. Some people are so smart (one of my clients has a Ph.D. in law and held very high admin positions in the healthcare field years ago).
- I've been thrown off several times- needed to set boundaries as best I can, i.e.,
"I can't call AT & T now, their office in New York is closed" . . . or
"I already called them and they said they're on it, giving you a priority."
"They won't take to me as the account is in your name. Often calling customer service is a long phone wait time - and often I've experienced cust service reps 'trying to talk' to my client w/dementia and going in circles, and they don't know what to do. When they start asking her questions to validate who she is, she can't do that and hangs up.
* When she asked me why her cell and home / landline couldn't be the same phone number, I had to think about that. YOU DON'T WANT TO get into details or specifics of common sense. I ended up saying that they are two separate companies . . . they don't work together. That sufficed her although it took me a while to come up with it (which is true).
* IT ISN'T going to be smooth sailing. It is about learning, compassion and re-directing.
* Is important to know that sharing 'your truth' regardless of the truth is okay as you are dealing with a brain that doesn't process information as it did - they are often in their own world, if not always - although there are OFTEN moments of lucidity (which always surprise me)
* One client years ago said "what do you call a person like me who needs a person like you?" I said "a person who needs some help or support." That was the end of it.
* Navigating this language / brain chemistry terrain is learned. It is not a natural way to communicate as we usually / always have. AND families are 99.9% thrown into this situation without any knowledge or experience in how to deal with it. Gena
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