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She failed to understand the basic concept, that I was not her servant, that I was helping her out of the goodness of my heart, that her every wish and whim was not my command. She could speak the words but couldn't really grasp the concept. So I gave up. If she had had dementia (she didn't) I probably would have given up a lot sooner.
Surprisingly, she became immensely grateful and loving in the final weeks of her life, when her own situation was the most dire. She was grateful that I brought her home to die and stayed with her the whole time. So the end of my time with her, although harrowing and painful, gave me the acknowledgment and the closure that I needed to move on. Who would have thought?
I work as a receptionist in a Memory Care community, and the management allows 2 residents to come into the lobby area when they knock on the door. One woman does so continuously and drives me batty every day. I've witnessed her decline over the past few months to the point where she repeats herself incessantly, saying the exact same thing over and over and OVER again until I'm ready to scream. She has no idea that I have work to do, and that I'm not there for her entertainment! Dealing with a person who suffers from dementia can be frustrating, thankless, and the hardest thing anyone can ever do.
My own mother is almost 93 years old, lives in Memory Care herself, and suffers from moderate dementia & is incontinent, similar to your mother. While she does thank me profusely for everything I do for her, she irritates the living hell out of me in many other ways, making it impossible for me to ever consider living with her. I love her, but co-habitating would not benefit either of us. I've always known that, but nowadays, with the dementia, it would REALLY be unmanageable, especially as it progresses.
Don't expect anything out of your mother, that is my advice to you. Expect nothing and you'll never be disappointed. Dementia makes no sense, so don't try to apply your logic to it........you will never win. They can't learn anything, so don't try to teach, it's a losing game. Tour some Memory Care communities in your area so you'll have your ducks lined up for the future, if and when the time comes that you can no longer manage your mother inside of your home, if she starts to wander, becomes too aggressive, starts cooking or creating other dangerous situations for you and your hubby. Go online & read everything you can on the subject of dementia so you can arm yourself with information. Knowledge is power, or at least a good tool for your toolbox. Read the book The 36 Hour Day which is a great guide for caring for people with dementia.
Best of luck; I feel for you. This is such a difficult situation.
First things to go, besides short term memory, is reasoning, being able to process what is being said, comprehending and empathy. The brain does nor work anymore. Dementia tends to hit certain parts of the brain at a different times killing it. Its not so much she doesn't care is she no longer has the ability to care. Think of her as a small child. They have no empathy. Because...the brain is broken. I tried to make Mom understand but my RN daughter said, lost cause.
We had a shower put in a powder room for my Mom. Family friend did it who had done a lot in her house. He did a beautiful job, over and above what I wanted. He took her in to show hervwhat "he" did for her. She showed no emotion. It was like "oh, nice". She was not aware he did it for her special.
You can no longer "expect" out of Mom. She is in a world of her own and there is no coming back.
Have mom hire an aide to take her out or sit with her while you and your husband go out. She probably won’t say anything nice about that either. It’s very hard to do what you are doing. Believe me a thank you will only go so far. Find a good therapist.
My mom, without dementia, would start complaining the minute I walked into her house. I was coming once a week from three hours away to clean her house, bring her food, check on her etc. I told her that when I came to see her to please say something nice before she started complaining. The next week when I came in she said “Nice to see you.... (long pause)...I guess”. It was so unexpected. I burst out laughing and gave her a hug. Elders are extremely focused on themselves. Set boundaries. Decide just how much you are willing to do and try not to go beyond that. Get away often. Remember the changes are hard for her too.
My aunt who does have dementia (93) was rude to me the other day. I said to her,”you have never been mean to me before in all the years I’ve known you”. She apologized immediately but I doubt she remembers any of it today. I took it as a sign her dementia was progressing. I know she speaks rudely to others sometimes but it was true, she hadn’t to me. I wasn’t upset with her, just surprised. But I don’t live with her. I would expect her to use her manners and remind her but not really expect her to change. If she was accustomed to saying thank you, she probably will continue. Do you say thank you to your husband in front of her? That might be the prompt she needs to remember.
But, seeing from your profile that mom has dementia, I'm afraid that you are just going to have to get over it. You won't be able to teach her her manners at this stage in the game.
I think it's safe to say that your pre-dementia mom IS very thankful to you for all you're doing for her. Let it go and let that be enough.
You are doing a good thing for her and need to feel good about without her verbalizing it to you.