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It bothers me that my mother is as healthy as she is..........b/c she's 100% miserable 100% of the time and constantly saying she 'wants to die'. Knowing that the dementia is NOT going to take her life any time soon is a point of frustration precisely BECAUSE she says she is ready to die. She has a lot of pain in her legs/feet from neuropathy, which is an ongoing thing too, but not life threatening.
Could it be that your SIL is feeling frustrated that her sibling is 'as healthy as a horse' and nowhere near the end of her life at this stage of the game?
Also, I wanted to mention that I stopped getting mammograms and colonoscopies for mom because if she did have cancer, I would not put her through chemo or surgery to prolong this demented state that she is in. When mom was in her right mind, she wanted quality of life over length of life. I am following through with her wishes.
But, the brain, a different story for both. She is fortunate to not have the physical issues as that would make the caregiving even harder.
I wouldn't think this was said out of ignorance as in some ways she is as healthy as a horse. Let it go.
Horses can't use toilets, clean their homes, cook, etc either.
In terms of defense mechanisms that folks employ, denial is the one that is most protective of the individual. Seeing that a sibling has significant deficits, that she has a life-limiting, progressive disease must be devestating to a sibling.
I must say, if I had dementia, I would NOT be getting colonoscopies or mamograms. I would not want treatment for anything that ailed me.
I think I would tell her siblings that horses don't get Alzheimer's!!
I know you understand that her brain is broken, but they need to educate themselves about the disease! As they are her siblings, they need to be aware of how the brain controls the body and that they too may be susceptible to Alzheimer's.
My heart goes out to you!
It's hard to make someone understand!!
Hang in there!!
Second, anyone with dementia I would not push to have a mammogram, colonoscopy or other testing along those lines. I say this for several reasons.
1. to put someone with dementia through some tests is difficult and in some cases they would have to be sedated. Dementia and sedation do not do well together.
2. IF they were subjected to the tests and IF one came back indicating there was a concern would you actually opt to put someone with dementia through surgery and possibly chemo and or radiation? (I would hope not)
I have to say my Husband was healthy in all respects EXCEPT the Alzheimer's (and maybe Vascular dementia) and I opted not to have him have a colonoscopy. I went through 1 bout of Norovirus with him and after cleaning diarrhea for a solid weekend and doing 40 loads of wash I can not imagine having had him prep for such a test! Toss of the coin what would have killed him faster the Dementia or colon cancer.
However, many relatives are in denial because they don't understand how a person with no other health issues can possibly have Alzheimer's disease. There is also a big myth that if you "stay active" and do crossword puzzles daily to stimulate your brain, that you are protected from this awful disease.
This is one of the heartbreaking things about early-onset Alzheimer's - especially when people in their 40s and 50s get it. Many of those people are quite healthy otherwise, have full-time professional careers, etc. (A friend of mine's mother was a college professor - and got it in her early 50s.)
Her body is as healthy as a horse, it's just that her brain doesn't work as well as before.
You can have alzheimers for years and years and years if you're as healthy as a horse.
If you're sickly tgen you will die from something else before the alzheimers takes away all your brain.