By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or
[email protected] to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
*If I am consenting on behalf of someone else, I have the proper authorization to do so. By clicking Get My Results, you agree to our
Privacy Policy. You also consent to receive calls and texts, which may be autodialed, from us and our customer communities. Your consent is not a condition to using our service. Please visit our
Terms of Use. for information about our privacy practices.
Just a thought and not assuming this applies to your loved one;
my husband has significant fear of falling. He too, would not move his legs. We eventually determined this was more of his reluctance. Due to lack of activity, weakness exacerbated his mobility difficulties. In his case, it’s anxiety and sedentary lifestyle. Thank God he’s making limited improvements with PT and Cymbalta. Although there’s a long way to go, It really helped him both physically and emotionally.
Matilda
https://www.healthline.com/health/paraparesis
https://www.medicalnewstoday.com/articles/318751#causes
https://www.nejm.org/doi/full/10.1056/nejm199009133231107
Not that I am any expert, but it appears to be from one of two origins:
1) a very rare genetic disorder inherited and which may present in certain families who have the genetic mutation which causes this condition
OR
2) from a viral infection more commonly found in tropical areas of the world
Knowing which is the cause -- genetic or past viral infection (could have been when traveling to a tropical area) -- will likely determine which treatment path may be warranted.
If viral in nature, perhaps getting with a board certified infectious disease physician would be a good idea. https://www.idsociety.org/
If genetic, perhaps contacting NORD -- National Organization for Rare Disorders -- might be helpful. NORD perhaps can point you to an expert in this rare genetic disorder. https://rarediseases.org/
Hoping for the best, sorry you are having to deal with this.
of the decline … messages from brain aren’t able reach legs.
Some things are mysterious and we may never know the reason why some people stop walking.
My friend was the caregiver for her younger sister with Down’s syndrome. When her sister developed dementia she no longer walked. She went into a wheelchair. She became bedridden for a long period of time before she died in her 50’s.
It surprised everyone that she stopped walking. In her younger days she was involved in many activities. She swam competitively and was very active but suddenly refused to walk.
Initially we thought it was muscular weakness due to inactivity, so she was doing PT for a while. But when she wasn't improving, the doc told us this.
Yet, she can still help with transferring, and all of a sudden she will swing or move her legs to a more comfortable position.
My Mom fell about 2.5 years ago. She was backing up while bowling, and tripped on her purse straps (left purse on the floor) She was not hospitalized or anything, but slowly she began to have numbness in the left leg.
She has gone to chiropractors, gotten massages, had x-rays and MRIs, and we have no answers. It's not pinched nerves, we are at a loss.
She used to be able to get around with a walker, and could barely clear the floor with the left foot to move it forward.
Now she can't walk at all. She's a two person assist to a wheelchair, chair, etc. She needs help to stand up, and sometimes she can bear weight, and sometimes not. She has edema in both feet, they are red/purple, and cold. Circulation tests show no issues.
We have no idea WHAT it could be. Mom keeps hoping it will be fixed. But she also has a 2 year pattern of getting angry at the doctors, cancelling appointments, and still declining. I don't know if we are too late at this point. She needs home care, which she refuses. She has fallen over a handful of times, which has caused her to be so fearful. She gets up and sits in a chair all day. From about 7:30a.m. til 10:30 p.m. Doesn't drink much at all in order to not have to use the toilet.
This is a lot of information, I apologize. But I don't know anyone else in this position. And I don't know what to do. I am POA, but I live out of state. I just came home to arrange care for her, and she refused it. She cancelled what I had put in place. So now I play the waiting game until she sees that if she wants to avoid a nursing home, she will have to pay for home aides. I have a social worker who is paying a home visit soon to assess and hopefully talk her into it.