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Tube feeding is not without it's problems, it can be very uncomfortable especially if you wear something with a waist band. It can cause the gut to go into spasms which can be very painful. There is also the nausea that happens plus diarrhea when using a very high protein feed. I have had a J tube now for over a year and still can only eat about half the nutrition I need by mouth. I only need one can a night now and can easily manage the whole thing myself which is just as well because hubby soon got tired of setting it up. I would get intense diarrhea about two hours after setting up the feed but have now solved that problem by diluting it with water and slowing the feed. My problem in the begining was keeping the ends to stay together so I had many spills and it sets hard like caramel because of the high sugar content.
Another suggestion is to wrap her good hand if that would not agitate her too much.
as far as her pulling the feeding tube apart. the nurses at the home where she lives 'hook up the feed for her and walk away. if she pulls the feed they come around after the feed has run all over the floor or in her bed and put everything away \until her next feed. as far as her doctor is concerned he tells me he has no control over the nursing home people. he tells me he is only a medical doctor with no power at the nursing home therefore he c an do nothing.
before my dauther was placed in a nursing home she lived in the hospital. she received 'speech therapy and other rehab. however when she was placed in the nursing home all this stopped. the reason being is that if you are a resident of a nursing home you do not qualify for rehab. a nursing home is only a place for old people to live to enjoy the final days of their lives.
I take my daughter home 3x a week. I purchased a handicapped van. however she needs a new van. the present van is over 20 years old. she will receie this c oming sept some settlement money. however the dept of health is going to take all of this money. once again the reason being: my daughter is being taken care of at the nursing home and does not need to leave the facility.
it goes on and on. I have a lawyer. but the government runs the game and they call the shots. thanks for listening to me.
That connection can be taped securely. The nursing staff should also try to hide the connection, as best they can, instead of leaving it out in the open. They could try covering the connection with a large piece of gauze or even a towel & taping the gauze/towel down so she doesn't have access to it.
Or----here's a novel idea----the nurses should be doing frequent checks on her to make sure she isn't fiddling with the tubing instead of just hooking her up & not checking it until the alarm goes off on the pump 4 hours later. That's a nasty thing to say, and it has to do with staffing levels at nursing homes, not the fact that nurses don't care. Nurses don't have time to care. That's a sad situation.