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She is going to resist and be a total horror next week when we take her over to the place that provides these services. I knew it would be even worse if they came to her apartment (or to my part of the house) because she'd feel "invaded" - but she will pitch a serious fit when we take her there to meet their staff next week.
I just need to steel myself for her response and tough it out. It's the only solution to her wearing the same clothes 24 hours a day (she doesn't even put on pajamas anymore) and not bathing or cleaning anything. She was about to drink coffee out of a mug that had god-knows-what floating in it last night, and got really mad when I made her give it to me and I poured it out and washed it. What am I supposed to do? Let her get sick? She weighs nothing, so a good bout of food poisoning could kill her.
I'm at the end of my rope, my patience, and my desire to coddle her feelings. Her health and overall well-being have to take precedence over her desire to deny she has any deficits from Alzheimer's.
I realize her messiness isn't a choice now - I was just making an observation that things that send me into a worried tizzy are things that are "normal" for people who choose (or don't know any better) to be sloppy and not clean up. She knows how to dress, because if it's an "occasion", she does put on a different (although not recently-washed) outfit. And she does her makeup (well, oddly enough) when we go to the store, and combs her hair, etc... Like so many other dementia-based deficits, they're all over the place and she remains "good at" some things.
A new doctor will be a big help, although if I lied and said we were going to the store or something and then turned up at a doctor's she'd pitch a fit about me lying. She has no memory for anything short-term (where we're going, what's happening today, what she did yesterday, conversation details, etc... but she's not easily fooled and she notices facial expressions, fake smiles, sounding "too chirpy" (when I force a happy voice to avoid sounding annoyed, etc...). The one place I called about in-home help does bring in a Dept of Aging person to assess the person, so that'll be a big help (though she'll be a complete b*tch about it the day of) in terms of figuring out exactly what her status is, what services she needs, etc... without my either being in denial about or being too critical of her abilities.
Ever since her diagnosis, she's been on Aricept 23 MG, and Namenda 10 MG, and I also have her on a supplement she was in a trial for right after her diagnosis (uridine), and it helps (I saw a real dip in her abilities when she was without it for a week once, due to a delivery snafu). I will look into finding her a geriatric specialist - that's a good idea. You nearly have to forcibly stuff her in the car to go to the doctor's, so that'll be another fun event. She's SO belligerent that nothing is wrong with her, everything is fine and we're just treating her like she's stupid. And we're not. I run out of patience and I'm sure my voice loses its sing-song "That's OK!" quality after several hours with her, but I answer questions 10 times in a row without flinching, I listen to repeated and made-up-stuff-filled stories over and over, I take her to the store 2 or 3 times a week, we take her out to lunch every week, and in the summers, she goes to baseball games and spends all day in "her" garden (she's decided our yard is hers) ;-D The most frustrating part is not being able to take over things that she needs help with because she pitches such an ugly fit. If she'd be cooperative, I could spend an hour a day tidying up in her house, doing a little wash for her, helping her pick out something clean to wear, and she could take a shower (at my nudging) when I was in her place visiting/cleaning. But she WILL NOT allow any help - it's going to take a 3rd party coming in and saying it's needed and that it's going to happen - because she won't think they're just being mean, which is what she says I'm doing.
AAAAAGH!!!!!!!!!!!!!! Thanks for listening.
The not washing/changing/cleaning is new - like in the last couple of months - and prior to that, she'd been on a several-year plateau in terms of getting any worse in her dementia. We had quite a long run - almost 3 years - where she was no worse than when she was first diagnosed. I have a call in to a local organization that helps keep people at home and helps with chores, personal care, etc... and I hope to talk to them after the holiday. She's VERY resistant to any help and will NOT allow anyone in to her apartment to "treat her like a stupid old woman" (her favorite way to describe how "everyone treats her".
She has no money, and I don't have any to give her, so her going to live anywhere else is not happening. I keep her place from being anything worse that just cluttered, but it's a huge fight every time. She doesn't like other old people, so any of the places where she could go and hang out with other people during the day are a no-go. I've tried.
I'll report back after the "keep people at home" organization calls me back on Monday. I hope they have answers. I see from their website they accept medicare/medicaid as payment for their services, and I know they bring in someone from the Dept of Aging to assess (THAT'LL be a fun visit), so hopefully they can provide some of the help she needs that I can't provide.
Thanks...
Discuss her current status with her doctor. You cannot provide the services that Mother needs. That is perfectly understandable. But someone needs to provide supervision, cleaning, and grooming help. Do what you have to do to arrange that.