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Check out the... Well Spouse Association
which is an international self-help (i.e., member-run) support group, started and run by spouses, just for those spouses for have a partner with any chronic or disabling condition. Members have been helping one another since the organization was started by spouses in 1988!
Their motto is "When one is sick, two need help." In addition to their website, they have over a hundred local mutual support groups around the country, each of which is most savy on all the different caregiving services and agencies exist, and which needs spouses need to fight for! Their one small office is here in NJ.
The national Alzheimer's Assn. has very few local community groups for Early Onset in our state of NJ. But check out their resources in case a support group is near you:
While your husband Alzheimer's was early onset, and I regret to hear that it's now advanced, if other caregivers here with spouses who are just in the early stages of early onset Alzheimer's or any other dementia, there's another volunteer-run independent international self-help support group organization started and mainly run by and for those persons with early onset! They have two chatroom meetings each day. Many caregivers also help out, especially when their loved ones can no longer help with the organization. I know with the economic problems worldwide and donations down, despite their being an all-volunteer organization, they are having a really rough time keeping their pioneering member-run mutual help organization going. They truly have been pioneering self-help empowerment efforts by and for those with early onset for over the last 12 years. But for those with interest, they are at:
Lastly, there are a few local non-profit self-help group centers serving a few areas in the States and around the world, that can advise you of any local groups in your area (especially those support groups not affiliated with a national or international organization). The centers also provide free help to those who want to join with others to form any type of community self-help group in their area. The list is at:
Hope one of these support group contacts may be of help and comfort to you.
Take good gentle care of yourself and your husband,
- Ed
"all our caregiving articles can be related to your 'elderly loved one.'" Well, sort of. Obviously I find enough applicable that I participate, even though my edlerly loved one is my husband.
But caring for your parent is not the same as caring for your spouse. It just isn't. The nature of the relationship is different. The nature of the history together is different. The impact of watching a decline and the daily losses is different. (Notice that I'm not saying better or worse or more or less serious. I'm just saying different.)
Thank you and the whole team for all you do to provide an opportunity to be in touch with other caregivers.
We are working on developing some content caring for your spouses. In the meantime all our caregiving articles can be related to your "elderly loved one."
Hope this helps and thanks for the advice!
Karie H.
The AgingCare.com Team