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PLWD can feel pain but they cannot identify, describe nor isolate it. They can say "I am fine", but you can see that their behavior changes. And this change can be extreme - aggression, anxiety, pacing OR they withdraw completely.
There is a huge misunderstanding in the world about feeling pain in dementia. Instead of being given pain killers, they get antipsychotic medication. Because we see aggression as dementia symptom, whereas the reason for aggression is untreated pain.
Watch this video: youtube.com/watch?v=9kSjHtHSJCw
It is an eye opening knowledge.
My Husband had a very high pain threshold for as long as I knew him.
My biggest problem was he became pretty much non verbal very early on in his diagnosis so I had to look for facial clues, a grimace or furrowing of his brow to determine pain. But often that did not work either.
I think what happens may be two fold.
The pain is constant so a particular level of pain then becomes "normal" that combined with the brains inability to express in words the pain. And I think since the "wiring in the brain" is short circuiting anyway the misfires may not transmit to the pain receptors.
I think many people with chronic pain become so used to the pain that they would not know what "no pain" would feel like any more.
I also think that many of the very old are so used to experiencing generalized, chronic pain that they just accept it in the same way they accept the other infirmities the now live with. It doesn't mean they couldn't feel better without regularly scheduled pain medication though.
And finally, I know my mom is unable to articulate when and where she has pain, so when she seems "off" it takes some investigating to try to figure out what the problem is. And since she isn't on anything stronger than tylenol the nurses tend to dismiss her pain as minor rather than take it seriously, I think poor mom just survives in a near constant low level of misery.
wikipedia.org/wiki/Congenital_insensitivity_to_pain
Some medical papers say people with dementia become more aggressive when they are in pain, or they may become even more sensitive or lose the words to describe pain.
There can be head pain, bone pain, joint pain, meds pain, wrong shoes, trousers, diapers, hair etc. Thousands of reasons. There can be a spiritual pain as well. They do feel pain - but we are so focused on dementia symptoms, that we do not read the signals, they send to us. We need a new approach to dementia care.
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