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Calmly and sweetly request that you DH do a serious reality check. When you’re attempting to balance a human being over a potty while simultaneously attempting to remove a loaded disposable under garment and keep her from sneezing into your ear and falling on the floor and wondering what the crashing, crunching sound was coming from the room where you THOUGHT your three year old was concentrating on Daniel Tiger, THE VERY LAST THING you have time to think about is the opinion of a HALLOWED ANCESTOR!
The WHOLE FAMILY should be addressing overall scheduling needs and where, when, and HOW to implement FAMILY SUPPORT.
MIL needs ABOVE ALL to be kept SAFE, Provided with physical needs, and treated respectfully by all who deal with each other, but her caregivers ALSO DESERVE RESPECT.
Your husband is speaking for a dead man, which is ludicrous, when you think about it. What's shameful and disappointing here is that he expects his mother to be shuffled around the family like a deck of cards instead of living in one place where she can be cared for 24/7 by a trained staff of care givers. Nobody there is angry, guilty or resentful because it's their job to care for elders with Alzheimer's and dementia. Plus, there's a ton of activities and socialization situations to keep them occupied.
In reality, truly caring people SEE this disease for what it truly is and choose to look into all the care options available. Relying solely on unqualified family members to care for someone with Alzheimer's is unrealistic and even dangerous, once the disease progresses. Read up on what to expect:
https://www.alzheimers.net/stages-of-alzheimers-disease/
Wishing you the best of luck moving forward
Your husband needs a wake up call. Please do not take on this responsibility. You have your own responsibilities. Remind your husband that your priority is to your children. Tell him you will not be involved in your mother in law’s care.
Tell your husband that not doing the day to day care is not letting down his dad. Explain that seeking professional trained help for her is in her best interest. That not doing so is shortchanging her.
Best wishes to you and your family.
Seeking professional help is doing the right thing for her, burdening you with her is not.
Your children come first, they will carry their childhood into adulthood, whether you admit it or not, this will effect them, they hear and see everything regardless if you don't think they do. Good Luck!
Moving from one "home" to another can be very confusing. She knows one place then to have to adjust to another can take a while. Then being taken to a third home she has to adjust again. It would be far better if MIL could stay in one place. Some solutions might be one of the three have an "In law" suite built and whoever is caring for MIL can stay with her at the time. This would give her a familiar place that she knows is "home"this might lessen the frustration, impatience and stress.
Now to caregivers.
Hiring help is not a sign of giving up. It is a sign that you care enough to get the help that is needed to provide better care than you alone can provide.
As a person declines they will need more help not less and it can be very stressful. Does your husband take his mom to the bathroom? Does he clean her? Shower her? or does this become your responsibility? While you do these tasks he can be a son and you are the caregiver.
What would happen if you or he were to get injured while caring for her? Who then would care for you while you recover?
Not to mention that you get MIL on the weekend...I am going to assume that your husband works and weekends are a more free time. Does he not want to spend some quality time with his children? Hiring a caregiver to come in for a day would enable you to go out and have some family time.
If he truly does not want to hire caregivers to help out then I suggest that one Saturday you plan an outing with the kids. Leave around 8 am and do not return until about 5 pm. Oh...and "forget" your phone on the bedside table or in the bathroom. I think a nice breakfast with the kids, then a park or the zoo, lunch then maybe a movie.
Perhaps no one in the family, even you yourself, realise fully what caring for someone with dementia entails. I think everyone involved with your MIL needs a reality check because this roster will eventually cause more harm than help with your MIL. Although it is a good routine to share caring ... and kudos to you all thus far ... it will eventually become a burden especially when sundowning really sets in.
Perhaps a family conference withe the fa ily doctor is indicated. Get him or her to lay out the awful future your poor MIL will experience, and how testing that will be for everyone.
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