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At times she makes very lucid comments but for the most part she has difficulty processing and communicating.
She is always unhappy mostly about what she can’t do. She doesn’t see the disease as the primary problem, thinks we are restricting her. She is unable to walk unaided or get up.
I asked my original question because I would really like to make her life as pleasant as possible and would like to take her out etc but she is not interested
In 2017 she had an MRI which showed severe ischaemic changes. She has been diagnosed with Parkinson’s but doesn’t have tremors . She has slowness of movement and very unsteady gait. Her tone of voice is very soft
Her short term and long term memory are okay.
we haven’t been able to see neurologist because of COVID and telephone appointments are not helpful because my mom doesn’t partake. When I ask GP anything he says it’s the condition.
My Husband I think started sleeping 12 hours a day then over the course of a few years he slept more until the last 6 months he slept between 20 and 22 hours. Awake briefly when I got him up, got his shower then breakfast. then he would sleep until lunch, sometimes through lunch until dinner then he would sleep through the night. The times he was awake during the day was when I changed him, sometimes when I changed his position.
(There is a pamphlet called Crossing the Creek that has a great explanation as to the "why" so much sleep towards the end of life. It is not a scientific reason but maybe a philosophical one. )
Also, get in touch with the Alzheimer's Association. Their stuff is very helpful for anyone dealing with dementia, of any type. There is also support at your local area on aging. www.eldercare.gov
Good luck.
As you are already aware, vascular dementia is the most aggressive of all the dementias, with a life expectancy of just 5 years(my husband died in about 3)so she may just be nearing the end of her life.
Perhaps it's time to get hospice involved, as they can be very helpful with letting you know what is going on, and they are covered 100% under your moms Medicare. It's never too soon to get them involved. Best wishes.