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"If you are younger than full retirement age and earn more than the yearly earnings limit, we may reduce your benefit amount. If you are under full retirement age for the entire year, we deduct $1 from your benefit payments for every $2 you earn above the annual limit. For 2023, that limit is $21,240."
I agree, see a Social Security or Disability lawyer.
At the end of your 9 month period, a SSA case worker will re-evaluate your status. Up until now, you've passed your periodic assessment/ evaluation forms SSA has sent you to continue receiving SSDI. That means you have been able to show them you are still disabled and unable to return to gainful employment. But if you were able to work consistently for those 9 months, you run the risk of losing your SSDI. If you lose your SSDI, you have the right to appeal. However, you will have to pay for the cost of hiring an attorney, and it gets costly. When you were first granted SSDI, the court allocated funds from your back pay to pay the attorney's fee, which can't exceed 5k. This is so the attorney doesn't double dip and protects you from collecting your back pay. If you lose your SSDI, you will have to pay the attorney's full cost, and it will be more than 5k. This is because an appeal is extra time and work, and takes longer to win.
It's best to consult with a disability attorney who works solely in SSDI/SSI cases and can advise you how to proceed.
Do not trust what SSA tells you. You will be speaking to someone at lower tier level and many are poorly informed on how to advise. It is best to speak with a disability attorney as we are not privy of your case and reason why you were awarded SSDI in the first place.
This website has a wealth of information which might further help you. https://howtogeton.wordpress.com/social-security-disability/
Good luck.
If your mom is on Medicaid, they will allow a few hours a week for a caregiver to be paid, so you can look into that.
Also if your dad was a veteran, you can check into their aid and assistance program which will pay for some hours of caregiving as well.
Other than that since your mom has dementia she can no longer legally enter into any kind of legal contract which is what you would need for her to be able to pay you out of her own pocket, I don't know of any other way.
And you are correct when you say how very hard caregiving is. All of us who have been there done that will tell you that hands down it's the hardest job we've ever done.