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Is she eligible for benefits and to be placed in a VA home if needed?
Second, VA homes are for veterans and there is a severe shortage of available beds. Some State Veterans Homes may admit non-Veteran spouses and gold star parents while others may admit only Veterans. I repeat, there is a shortage of available beds.
Third: When you say give up benefits, what happens is ALL her income goes to pay the nursing home, but she gets a Personal Needs Allowance (PNA) of $70 per month (Maine 2016) if she is approved for Maine Medicaid.
Depending on your grandma's financial situation, she could be eligible for the Aid and Attendance or Homebound benefits from the VA. The Aid and Attendance application is intimidating but my mom filled out the application herself, and a man at the VFW helped her when she had questions. For a surviving spouse the max. benefit is about $1100/month. But you can use that money for your grandma's housing or care, including having her pay you for some of the help you provide her.
That benefit is in addition to SS and Medicare, and will not impact them. The grey area is if she qualifies for a Medicaid waiver program to help her stay at home. Then that could affect her VA Aid and Attendance benefit.
If she does qualify for Aid and Attendance, she will need a fiduciary or representative payee since she has dementia. That can be you or someone else. In our case it is my mom. It is a responsibility because you have to keep track of her payments and expenditures. It gets reviewed annually, so if you don't feel like you are up dealing with the VA and the extra paperwork, then maybe your dad or another family member who is trustworthy but less entrenched could handle it.
I know from reading your other posts you've had a difficult year with a lot of change. I hope your move goes smoothly and that you find some more help for your grandma. Let us know what Maine is like!
Kudos to your mom for being able to fill out the A&A app, which can be quite intimidating but I think it's easier to do for a single person/widow or widower/veteran than for a couple, like I've been trying to do for hub's aunt and uncle, still haven't gotten through it, even with VFW help, just can't get the documents together
But got a call from the local aging, maybe about the Medicaid waiver, but since can't seem to get that worked out either, just at an impasse, but that's a whole different thing than Medicaid for a nursing home anyway but I'm not sure how the A&A thing would work for nursing homes, anyway - know it can be used for assisted living but they have those for people with dementia in Maine? know they're different in different states
A&A's typically, at least outside of ALF's, designed for in-home care, or at least most people that's when they get it, otherwise you would have to have a lot of expenses, which, her not being an actual veteran, she might.
Hope things go well
to be accepted into Hospice care. My dad had money and although he could not qualify for A&A, he did qualified for their benefits. They provided 5 day week caretaker to come and bathe, dress, groom him, etc. for a couple of hours each morning. A nurse came weekly to check on him. If he got sick or fell, they were to be called. They provide a 5 day caretaker's respite every 6 months.
My father was placed in a memory care facility in Feb. 2016 and hospice continued their care at that facility. He died May 2016 under hospice care.
It is a great service to aid anyone who is taking care of an Alheimer's patient. Of course, a doctor's referral is needed to apply for hospice. Just thought many of you could utilize this help.
Those having Assets should consult before going to VA Expenses must exceed income, and family member except Spouse can be paid caregiver.
https://www.agingcare.com/search.aspx?searchterm=VA+assistance+for+widowed+spouses
Other actions are to research the CA website to determine if there's a CA veterans agency which offers advice and/or help; do a similar search for your county. Our county office was quite helpful with information as well as assistance in document preparation and submission.
In past years I picked up a very thorough and helpful book on benefits, distributed through local VA reps at Area Agency on Aging caregiver expos held in the fall. It's published by the Government Printing Office and is available for $8.00. (I got it for free at the expo.) Or you could call your legislative reps; sometimes they distribute them at conferences as well.
Should you wish to order the booklet:
https://bookstore.gpo.gov/catalog/health-benefits/federal-benefits-entitlement-programs/veterans-benefits-health-issues. It's the first booklet, with the iconic photo of Uncle Sam and his "I want you" pose.
I spent considerable time trying to navigate the VA qualification criteria, but eventually decided to let the pros handle the application. Our county VA service office did that for us.
Mom had just received retro active A&D payment 2 months before she died and I called them to ask if it needed to be returned and I was told to keep it towards her past expenses we had paid. It is a benefit to have but a shame that it takes so long to receive it.
just to clarify, it's A&A, and to make sure understand, she'd only been getting it for 2 mos.? but you all had been being able to pay it before while waiting on it? how long was that? it took us 4 mos. for dad's; didn't know then we could have been getting it for mom, sure wish I had. Retroactive means just that; it is for expenses you been paying out of pocket; dad had a caregiver for those 4 mos.
Mom was diagnosed with TTP at the end of January this year. The doctors considered her case as being idiopathic, meaning they don't know why she has it. However, with all of moms other health issues mainly stage 4 kidney disease, all of the treatments available were not for her. Mom had dementia also, so there was no way that she could have sat in a infusion center for 6 hours to receive poisons they would be giving her. I literally had to tell the Hemotologist that the drug he had said that he was going to try had not even been tested on people older than 65 years old. There was one study posted on the Internet about 2 men in Kuwait ages 75 and 78 who had the treatments. Both were kept in the hospital for 4-6 months while being treated. One man stroked out, the other I assume still gets treatment. Johns Hopkins hospital wrote in their discharge paperwork that other than offering predizone mom was not a canidate for treatments. While on predizone her count did get as high as 28. The assisted living home kept mom safe for 5 weeks and free from falling but mom did not tolerate the predizone at all. Her blood sugars went through the roof, she was paranoid when it got dark, and she refused to stay in bed a night so we paid for overnight wake staff to sit with her. I ordered a hospital bed with full sides and she made the transition to using diapers a night. Mom still walked with her walker with the caregiver with her.
You asked why didn't we stay that night with. Well we never thought that we had to because she was in a bed with full siderails. ER told us that once she was moved to a room they would be nurses to watch her. We had explained everything to them about her recent health history. It was not until after the last fall that we found out that the upstairs nurses didn't get the write up from the ER. Using alarms would not have helped either, by the time they go off the patient is already standing and most likely starting to walk. The second night they had a person with her. The state department of health said that dementia patients are always supposed to have an awake person with them at night. I consulted a lawyer about wrongful death, or the hospital being at fault and he said considering her health and age a judge would be miffed over bring the case to court. For as much as it is sad for us having her gone I fully believe that she is finally back with dad whom she has been looking for and waiting for to come home from work.
We were able to use the back benefits for her funeral, the cemetery and the hospital bills.
Dad also had stage 4 kidney disease, that they didn't know why; his levels just a month before he collapsed and wound up in the hospital were fine so really concerned the kidney doc, who was also one of the icu docs; he did put him on epogen while he was in the hospital - a blood builder but maybe also a blood thinner? hm, not sure that makes sense, but know that when he got to the floor and his regular doc there took a long-planned vacation the doc on call, who was older, saw he was bleeding through the place, took him off - the blood thinner, anyway, which may have been different, but they didn't keep him on the blood builder after he got out of the hospital (glad for the reminder, explains some things) no wonder his hemoglobin went down to 6.5; he was supposed to have an appointment with the doc they called in that ran those tests but turned out they - the hospital - didn't contact him about it - or at least they didn't tell us - think we found out through the home health they did send him home with - so, yes, communication among all these people is a real issue; as in, they thought he was still on it, since it was the kidney doc who'd put him on it; now why they didn't question that when his hemo went down so, hm...but he was sent to ER and given, not infusions of any chemical - and I thought your mom just got blood - but just the 2 units of blood, but, yes, it did take around at least 6 hrs. but at least at first his grandson - who he'd had move in with him to take care of him - stayed with him, because, yes, with his dementia, he couldn't have done it by himself, as was proved later when, as it turned out, he did leave him there by himself, and he pulled the iv out and spewed blood all over the room, which not sure that's actually what they called me about or the fact that he stopped breathing - or, no, maybe that was another time - anyway, we had to decide what to do about that but anyway, after that, which, yes, it continued, somebody stayed with him all the time. We finally did get something else tried just to see about not doing those blood infusions; not sure about those people but didn't seem to be working with dad anyway, but it wasn't more infusions, just shots, but he may have had a stroke anyway; that was what the medication that he was supposed to be taking for his counts being too high was supposed to prevent but if you keeping going around and around, up and down, I supposed anything could happen; he fell, who knows, maybe that way why, by then it didn't matter; they didn't test for it, pretty sure.
I'm not sure mom's bed had full siderails, but then your mom got out anyway, so maybe it did. The icu doc told us they had inpatient hospice at the hospital, too, till we got to where they sent us, so just more communication issues; you can't depend on anything; have to verify everything. With dad, nobody was keeping up with how many times he'd been there for those blood things; when I wound up staying with him and he was having problems and I'd been told about what happened was the first time a port was mentioned. Are you talking about the floor mat alarms? I agree, but at least somebody would be notified at that point, but I've since learned they have actual bed alarms that as soon as their weight is no longer on the bed, they go off, so hopefully that would catch them before they can get up and standing. Mom had not been diagnosed with dementia - or, wait, maybe she had, she'd already been put on Aricept, but she hadn't been actually tested; just her regular primary doc had just put her on it based on dad's request but he did tell me she at least had Sundowner's; she was definitely paranoid when the sun went down, at least the first night; actually she had seemed to be better the night she got up and even when she did, it didn't seem to be anything like that, just that she was trying to go to the bathroom and just that she wasn't supposed to be up, but I had not heard that about that they were supposed to have somebody with them - key word there -being "awake"; I'd been the only one with mom for at least, if not over, 36 hrs. - I just couldn't stay away any longer. - gotta go
She did have the bed alarm in the bed at the hospital and not the floor kind. Also they had used only 3 sides of the bedrails of her bed. Mom hod scooted down in the bed to get out. The hospital bed that I had purchased for her had one long rail that was the length of the bed on either side that she could not get out of at the AL home. For a week before I got that bed Mom was still walking herself to the bathroom at night with or with out he walker. The bed alarm would go off and by the time that the care giver got to her she was either already in the bathroom or at her doorway. Mom was exhausted during the day because she had been up all night due to the predizone. Hindsight is a wonderful thing but we just did not realize the downhill slide that Mom was on. The only hint of things to come was when the 1st hospital said that I was imperative that she not fall again, and they were right I just never thought that it be at a hospital.