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"I'll pray for you".
Now let me clarify that: it was not annoying or grating because they said they'd pray for me. I'm not an atheist or anything. I welcomed the prayers. If it had been said in parting after a day where they came and helped clean house, cook meals, gave me a breather so I could get away for a bit, or took Mom out for a ride or just spent time with her so I could take a break - sure, I'd be thrilled to hear, "I'll pray for you." But that's not how it went.
What I NEEDED was HELP. Prayers - great, fine - pray for me - but HELP ME care for OUR mother. Not just MY mother - she was their mother too. There were no stepchildren or half-children in our family - we were all immediate blood relatives. I received no financial help, physical help, or assistance with respite so I could take a vacation. I had to HIRE (and pay for) help for that, and worried the whole time that I was away for 4 days, so it wasn't much of a vacation.
I can count on one hand the number of times that any of my siblings stepped up to the plate to do anything for Mom that was of any help to me:
1 ride where they took Mom out of the house for a couple of hours so I could repaint the living room. (Not exactly respite for me - more for Mom's safety)
1 doctor's appointment when I had to work and couldn't get away (which was not a good idea, because the sibling didn't know how to answer the doc's questions and called me 5 times for answers - so I should have just gone myself)
1 day trip with Mom where a sibling came along (and ended up cleaning up Mom's BM mess - I *did* feel bad about that)
1 time when a sibling took Mom to see a parade because I had to work.
Not a dime of financial help - ever.
Those were the 4 times when I had "help" during 3.5 years of caregiving. So if I seem a little bitter about the "I'll pray for you" thing - I hope you understand. I believe in God and have faith - but using that statement about praying for me to brush off responsibilities doesn't set well with me.
My aunts say, " You will have plenty of time to travel when your Mom dies."
"She won't last like this much longer."
"You will have plenty of time to go out when your Mom dies."
If I ask them for a day of respite...
"What if she dies on me? It is too hard to see her like this!"
I see her everyday like THIS! It is hard for YOU?
So annoying!
Shoot me now!
Family members were taking turns staying with her while we found a caretaker. One (usually very vocal) niece was asked to take a shift. She never showed up. She was called and asked “what happened?”
She said “Oh, I called aunt and asked if I needed to come over and she told me she didn’t need any help”. Niece didn’t find it necessary to let anyone else know.
“ Didn’t aunt tell you?”
The very worst was when I had my Dad (with dementia) in the hospital with pneumonia, my Mom (with dementia) at home with bronchitis, me with a cold (and a project due that week for work).. and begging for help. That's when I got the I can't help because it just isn't a good time for me.. just too much going on! That's the sibling that answered at all.. the other one just did not return my call or text.
Its hard not to feel resentment and wishing they could feel how totally desperate, scared and alone I was at that time.. they will never know though.
I feel your pain.
thats annoying just like ill pray for you if you dedperately need help and support.
i got the "keep me posted" every time..which basically is just something else for me to do..afte a while i caught on and did not keep anyone "posted" if they werent here ... and they werent...ever.
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