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We don't go out much as he cannot handle public spaces very well and freezes.
Jess4Him, friends and family are a necessity.
If you have any specific questions do give us a chance to answer as well; we do have members with family dealing with both conditions. My brother had Lewy's.
Just type us out a specific question and we will be happy to answer if we are able on the Forum. And do check out those Forums specific to Parkinson's and families dealing with it.
Best of luck and sure do welcome you to the Forum.
She developed dementia along with her Parkinson’s disease.
Your profile says that you can’t leave your husband alone. You must be exhausted. Have you considered hiring some help or placement in a facility?
He fractured his hip 2 years ago, things change as he is not as mobile.But very independent, except for cooking, cleaning. Very involved in intellectual pursuits. Parkinson is cruel disease, but, people with it being more susceptible to other conditions/ diseases makes it worse. Like cancer.He is in lot of pain, which is difficult part and drs seem to ignore it. We do have arrangements with 2 agencies, respite care, friends who would show up in the middle of the night if needed. There is no way if he progresses to stage 5 or gets unlikely dementia that I will be able to do it alone.We have arrangements for different scenarios.
Soon after, he showed signs of Parkinson's and on the tail of that he was diagnosed with dementia. He can't figure out how to use the computer or phone, even the remote for the tv anymore. He takes a very long time to eat, though that could be related to the throat cancer treatment (which he has been told is no longer there - they won't say cured.)
He is home, I am retired - I am 71, he is 83. He gets anxious if I am not nearby. We will be married 40 years next week. I have POA, and am now responsible for all payments, cleaning, shopping, meals, doctors' appointments, etc. Not really retirement.
He can walk around with a rollator and will walk with someone (as he might not be able to figure out which way to turn) around the block a couple of times a week, but it tires him out and he has what we call the "stutter step". He has had a couple of bad falls though not broken anything. My daughter has been here since last July. Planned to be here 3 weeks only but is now planning to leave in November. I'm not sure how I will manage then.
Find out all you can about options for in home care and what facilities are nearby. The county Office for the Aging might be able to help with info. It is exhausting to think about it but make the first call and it will help you feel better in control because you will have facts with which to work.
May you rest and feel strength in these trying days.
Call PCP , get order for hospice evaluation and admit if hospice eval. deems him appropriate. ( Bet he is)
If you already have hospice care, confer with team about potential facility placement.
If on hospice services they can also provide you with 5 day respite care for him
So that YOU can take a BREAK.
Have case manager help you navigate options for his care going forward in home or in placement.
If he is veteran, call VA for benefits info
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