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My Husband went from sleeping a "normal" 8 - 9 hours to sleeping 23-24 hours the last month of his life.
As a person declines it takes energy to keep the body running. Breathing, heart beat, digestive system, kidneys and yes the brain even though it is broken. Sleeping is a way that some of the outside stimulation can be shut down so it does not have to be interpreted. (hearing, vision, taste, smell)
I also read an interesting pamphlet called "Crossing the Creek" (a guide to understanding the dying process) and the thought there is that sleeping is a way for a person to resolve conflicts. A lot more can be accomplished in dream state than can be in a waking state.
So in essence I would not worry about sleeping a lot.
If she is as active as she can be during the time she is awake and if she is eating, drinking as she should then again I would not worry.
If you have not contacted Hospice I would do so. They can provide so much help as well as information along with all the supplies and equipment that you need.
If you do have Hospice and they have not explained the process and what to expect then they are not doing their job well.
She is not sleeping her life away...Dementia is taking what she has left, she has lived a life, what remains is a shell.
May you receive peace in your heart.
At this stage I would recommend assessing her during the awaken period to see if she is able to do more and stay awake. Don't force just let her take the lead and embrace extra awake periods that are free of agitation.
My mom sleeps about 20 hours a day with at most 45 minutes awakening periods. She is most comfortable this way. She will drift off even in an upright position at a table.
At this point her confusion is to far along to force her to stay awake. A short pleasant awake period is far better than a longer awake period that is mostly confusion that leads to agitation.
I would now get an assessment from hospice to see if your mom qualifies for their care.
My late husband slept about 16-18 hours a day the last 6 months of his life and then about 20+ hours a day towards the very end of his life.
I wish you well as you take this final journey with your mom.
Be thankful that she's comfortable!
I'd have given anything for my mother to have "slept her life away" peacefully during her horrible last year of dementia.
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