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While all of our situations are different, we are all suffering in the wake of care taking. We judge ourselves so harshly and we can't understand why it isn't over. What are we waiting for? Why can't we just get over it and move on?
I guess it takes time. I am the oldest of 4 children. My youngest brother was a help to me, financially, with my parents. Bless his soul he always helped in spite of the economy and the pressure he was under. Our mom passed on her birthday, Dec. 18th, 2008. She was 81 years old that day. My dad passed this past Sept 24th at age 90.
I've been in a funk for the past few months. I miss my dad and I keep asking myself if I did enough for him. I talked to my youngest brother yesterday and explained how down I felt. He was so kind to remind me that he could have never done what I did. He went on to tell me how my parents lives would have been so different if my husband and I had not taken them on. He makes me feel loved in a way that my parents didn't always give me. I thank God for his love and friendship. He has been there for me and for our parents. I wish all of you could have that one special sibling in your life who hears your heart and feels your pain.
Sending love and white light to each of you special people. Cattails
On the year I started that journey, I could no longer go down the basement to even do laundry. My husband had to do it. I hated that more than you can possibly imagine. So I did a Google search for organizers in my area. The woman I really liked was also a Christian and we hit if off, but I soon discovered she was too far and so she recommended someone in the area of me. And Karen (my organizer) became a key part in my emotional healing. She was/is an angel sent by God to me. I believe that to this day.
She is between $40-$50 per hour, but they can run more or less depending. I've seen some go as high as $75 per hour. She would not deal with hoarders. There is a whole other psychology behind that. I was ready to get rid of things and clean out, but I just needed the help. I was too overwhelmed and just paralyzed. She even does simple jobs like just organizing an office or develop a organizational system if need be.
When she came out, we went through the basement, talked for a while, but there were some other factors that were also being worked in the plan. I have my parents house and I was also planning on using that for my now non-profit and so I said that when my parents were gone, we'd deal with that next. Little did I know.
My particular organizer touched everything. There were times it got worse before it got better and she would constantly ask me how I was doing. There were definite times I did not like and was overwhelmed and she knew it. We talked through the whole thing, laughed and at times I couldn't let go or I didn't want her to get rid of it and she would put it aside to deal with later. I mean every scrap piece of paper and dustball she asked me about. She was my treasure. We revisited things ore than twice I can tell you that.
They are not cheap, but I have to tell you..... they are priceless in the end. For me, Karen had something I did not. She was a missing piece to my emotional state and she handled it perfectly. I cannot tell how much I spent because we incorporated so many other things in between just my basement.
But I will say because of her, she helped me through a lot of emotions even though she's not a counselor. Her peaceful spirit was perfect. If you can do it I highly recommend the assistance. It was a real emotional healing for me I could have never done on my own.
Because of her, we uncovered an issue that we had for 20 years with water, but we were able to see the problem more clearly because we cleared it out. From there I took the clean out even further and we ended up converting our basement to an incredible media room that we could now house all our media and make it a total second story of our house so to speak.
What I loved that was even more emotional for me but funny as hell was the fact that my mother who once called our house a shit-hole and now deceased, was probably turning in her grave because now our basement was featured as a front page homestyle section story. It was priceless revenge from a spiteful narcissistic mother who made my life miserable. Now it isn't and I'm LOVING IT!
It took me 20 years of living in bondage (emotional) and 18 months of cleanup to come out the other side feeling freedom. It can be done.
I lost my job a week before my mother died. I had a lot on my plate financially, estate, my own house, unemployment and so forth. I've dealt with a lot of emotions in a very short time frame and I'm not ashamed to say its okay to take care of you. I can't help everyone like I'd love to because I realize the pain of caregiving. I've seen the cost, I get it, but unfortunately I cannot do what my heart desires.
All I can encourage you is to do the best you can, but even through all these financial things, do not feel guilty for taking care of your loved one. That's the angle I'm coming from. My prayers and heart goes with you.
In re-reading your post, it struck me that it might pay huge dividends getting someone like that to help organize all the documents, paperwork, estate contents, etc, etc. I feel like I've completed 2/3 of it, only to find a seemingly bottomless pit!
Any suggestions you can provide regarding such a resource would be much appreciated! Thanks again...
Once again, you all are making me feel a bit more normal as I flounder around. I really appreciate hearing everyone's stories and where you are on your paths.
Cbhillman, could you say more about what you went back to school for? I've just turned 60, have been away from a formal employment role for over two years now and I'm obsolete! So, I'm curious since we are similar in age what field might be studied at this time with real hope for employment.
As for the estate, yes getting the house ready is ridiculously tedious and I'm not sure at all that anything will come of it, except I am hoping it will eventually sell. Then my brother and sister will expect everything to be split three ways and all the tedious details, countless phone calls, paperwork, conversations, follow ups will go unnoticed. I'm trying to keep track, but have I mentioned...
I tried to cancel EZ pass for mom's car. Called them. Needed a PIN. Requested a PIN and then waited on the phone for-EVER! Someone told me to send in the gizmo, wrapped in aluminum foil and request cancellation. So, off I went, spent my morning on the phone doing that, then wrapping in foil, writing the letter, making copies... and headed off to the post office to mail the thing.
Two weeks later I got a letter from EZ Pass saying I should enclose the gizmo with this new letter and return both for cancellation. Well I no longer have the thing! I mailed it as I was told to do.
What do I do? I thought about it over night ... and low and behold, the next day I get a bulky envelope from EZ Pass. I thought perhaps they were intelligent enough to return the one I sent to them, nicely wrapped in aluminum foil.
Nope! The packet included an EZ pass gizmo that, according to the enclosed letter is the NEW technology, since their records indicated that my mom had the OLD technology. It's a WHOLE NEW EZPASS!! Wow. So, come to think of it, now I have something to include with the letter and request cancellation AGAIN!
This is just one little, little example of how I spend my days. I can NOT complain. It is not bad weather, I'm not digging ditches, not straining my muscles or my brain. I'm warm and dry and just going about my business... in stunned silence.
Oh, not so silent. Thank you all for listening to me vent. Phew... I feel much better now. ;-) Thank you for listening ...
I think we also look at the fact of we feel selfish. Are we really? Think about it. You gave up whatever portion of your life to help those you love. I did. I even did it for a narcissistic mother because I knew that regardless of how much I hated her behavior and her treatment of me, I loved her still as a human being and I would never allow another human being to suffer.
Realize for yourself now that you are done with your task of providing, it is your turn. It is time to turn back to what are your likes and dislikes. What do you want YOUR routine to be. You may not be like any other person in the after caregiving life, but that is okay that it is YOUR choice.
Also make sure you work through the guilt. You have nothing to feel guilty for. You were in an intense situation for a needed length of time. So what you complained and so what you were exhausted. Do you know others who could do the task you did? I know in my life there are people who could not. I did it! Me. I dealt with all the crap. I dealt with the nastiness and running around and I made it through and I did it to the best of my ability. Remember that!
Remember you have done an incredible job. Now its your turn. Get the rest you need. Find the mental rejuvenation. Spend time with your family if necessary or even distance yourself if you have to. Recovery for you is now the most important. God bless each of you for what you have helped do for those who could not.
The answer to your question also depends upon your original relationship with the person you are caring for, whether they have dementia or physical aging problems, and how long you live in the prison of being a caregiver.
I have been caring for my Mother for 5 years, 1 1/2 in my home. I placed her back in a care home because I was a nervous wresk, had not slept in over a year, and developed stress-related symptoms on top of my already compromised immune system. I thought I was too young to give up everything for this person who was not ever very interested in me from the beginning and because I really thought I was too young to die. But you never know. I think it is pretty bad, however, when you ask God to please let you die tonight, but then worry about who will take over when the siblings are way too selfish and incapable. So the cycle repeats until you MAKE A DECISION. If you want to resume your life, you will. Humans are the most adaptable animals on the planet. We can reason, we can take control, we have free will.
Make a plan, follow your dreams and imagination. Have a good rest of your life:) xo
They and my friends continuously remind me NOT to jump back into giving all of myself away again so fast... so I am taking my time. I am sure that I will begin giving again soon, but for now... I'm learning how to enjoy a bit of rest and relaxation, although it doesn't come naturally to me.
My sons and my puppy are my light hearted hobby. For all kinds of good reasons, I can not and should not get too helpful with them, because it's just not healthy for them.
48margee, I hope you can enjoy your girls. Sometimes I look forward to my boys having girlfriends so we can enjoy girl time together. For now it's football and guy things that I share with my grown boys.
I think that's part of all of this. When we have such intense lifestyles with caregiving and its all done, its like "then what?" We have to relearn our lives again. We have to rebuild our endurance and our health. That's hard to do because we have done EVERYTHING for them.
Well for me the non-profit and some other things are keeping me hopping, so to be honest, I've gone from one fire to the next LOL. I don't mind, but right now I'm on a learning curve and a bit frustrated. I'm just finding the energy level to be the biggest frustration. I need to keep up on my iron levels, but just no energy to go clean things up, or go do this or that. The thought of all that's involved just sends me to retreat mode. I'm tired of doing, but yet I press on. But that's where God worked again. I have the most amazing professional organizer in my life that I know is an angel in disguise. She has been my total relief through all of this and I couldn't have asked for any better. The incredible thing is she's 58 and she runs circles around me! She's my motivation! LOL
What I also failed to mention that shortly after mom's death I was starting a remodel within our home and then I had to handle their house and getting things ready for a renter that I was putting in my parent's home to help out a friend. Then I was working on uncluttering/unhoarding (mild version) of my home while dealing with their home. I'm on burnout with dealing with all the "stuff", still am and I still have more to do. Determination is a key factor for me. I realized that God has brought me through so much as a survivor, that I can also add this to my history. As painful as certain things are emotionally, God always brings me to a better place. He always reminds me He is there, and provides the ray of sunshine and hope I need at just the right time. It's been a lot emotionally for me, but there is.... F.R.E.E.D.O.M. and I'm realizing that people feel guilty enjoying the life given to them. Don't feel guilty. Its worse when you have a mother that berates you and had emotional control, but that makes my freedom even easier to go after. I don't answer to her anymore!!!!
@48margee first I'm so sorry for your loss. I can't fathom that type of void. Let me ask you something..... what brings joy in your life as your hobby? What always brings a smile to your face when you retreated to it. Maybe start there?? What state do you live in?
My mom passed away a few months ago and while I loved her more than anyone, I am blessed that I was able to care for her and put my entire life aside for her... she was also somewhat narcissistic. That's what made her grandkids think she was so cool. She had traveled the world and lived life large. During the last year of her life she treated me like her personal valet. I did all kinds of things for her and she would thank everyone else. I was amazed, but felt in my heart it was what I wanted to do for my mom. My whole family told me she treated me like her door mat.
It's OK, because throughout my 60 years there were times when she did listen to me and encourage me and when I had nothing else in the whole world, she was there. I remember a mother's day when as a single mom, I took my boys to McDonalds and mom and I got plastic flowers from McDonalds. I still have those flowers that we got that day we spent together (no dads around in sight).
I also love your reference to doctoral students who work super hard and find a gap at the end after they finish the big degree. I have thought of going back to school, but that is PRECISELY what I am concerned about... what happens at the end of that? Is it the same... gap?
And that gap, so what of it? Sometimes I like to spend the day alone. I worked so hard during my whole life (working to provide for my children and then for my mom) and now, there is that gap. I know that I must fill it, with things to do, people to see, places to go, giving back to the world, being a contribution... but the big thing you said is that it takes time. I am taking time right now and being alone, resting A LOT and taking care of ourselves is OK.
I listen to people who tell me to take good care of myself. Every time someone says that to me, I go out and do something specifically for me. It's good to be pushed. I got a massage the other day. Wow! Yesterday I shoveled snow and had such a good time in the beautiful fluffy stuff with my doggie and because of it I lost a pound on the scale this morning. Yaaa!
Anyway, thank you for sharing your story. I could really relate to so much that you shared and I loved hearing from you today. I hope you do something good/nice for yourself. You deserve it because you did something nice for me today.