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This is a great place to meet wonderful and knowledgeable people who are looking for comfort, friendship, and someone to listen to them and actually hear what they are saying. It's not a contest to see who comments the most or who gives the most hugs, or even who gives the best advice.
This is a place that all of us caregivers came upon in our quest to find understanding of what we were going through and answers to so many questions that we could not find anywhere else.
I have found many lifelong friends here and answers to so many questions from so many great caregivers from all over the world. I myself have lashed out a couple times when I felt someone was attacked for their comments. There have also been times when I felt it just wasn't worth making things worse by bringing attention to negativity towards someone.
We are all exhausted most of the time and overwhelmed all of the time, so it helps to reread any comments that we find offensive and try to put them into perspective and decide if they are worth drawing more attention too.
I too get my back up when told I will be rewarded for being such a good daughter. I don't feel like a very good daughter when I wish this was over, but I keep on doing this because it is right for me and Mom. That doesn't mean it's right for everyone. There is nothing wrong in recognizing that you cannot be a full time caregiver. I sure have learned that lesson after 5 years with Mom.
I think this site is the place to be and am grateful for everyone's help and comments that I read. Debralee, this was a great discussion you started and the answers all have merit.
There are lots of great people here and I am thankful for all the input, even the ones whose comments I don't agree with! that's what makes the world go round. As for positive caregiver comments, keep them coming! It's nice to know that there are some of you out there that truly love what you are doing! If the comment isn't to your liking, then move on and let it go. We all have enough stress to deal with, so lets not let the "in poor taste" comments get us down. Let's do what we all do best and that is support each other as best we can and keep this site going so that new caregivers have a place to come and vent and whine and learn!!!
Yes, I realize one week with my Mom- though I have done many weekends as well, is not a true picture- that is why I like to come on hear and read about those of your who are full time caregivers- and about those of your who are full time caregivers but with an elder in a NH or AL. I need to make decisions , I need to know what is in store. So when I am reading and I see a positive story it cheers me up. And I appreciate all the posts that tell about the hard times as well- both are equally important. IMO. :0)
I have at times felt that I was losing my mind and my health has taken a nose dive despite copious doses of vitamins, etc. My brother in law kept my MIL for 1 week and couldn't understand why it was so hard. After all, she is a sweetheart and they didn't have a bit of trouble.
It just happened to be one of her best weeks in months (in between her mini crises) and she is always on their best behavior for the 'rest of the family.' She came home though and had a small stroke. Who got to deal with that? Guess.
Wish we could go back 8 years and encourage my MIL to move to AL in the state where she lived in instead of moving here. I know I sound sour - but things have turned sour and it isn't all my fault. Caregiving is the hardest, most thankless job I have ever undertaken in my entire life and it has taken my health. There have been a few positive moments, moments when we laughed together - but those times are long gone now.
As noble as it is to care for another - and I tend to be a softie in this regard - when you are tired to the bone from it - we can all be grateful for a place like Agingcare - to hear us out and help us over the humps.
Personally I enjoy the positive posts. It helps me. I am here to learn what is in store with caregiving full time- if it was all negative than that could not be an accurate picture. I know from when I watched my Mom for a week it was hard but there were moments that were awesome. And this from a woman who said I was too fat to be bulimic- and then yelled at me for worrying my brother about it when he saw me throwing up and told her he was scared for me. (doesn't make sense-does it?) and then just ignored my bulimia for --well, forever- I finally got help on my own. So- yeah- there are times when I want to throw up my hands and scream at her- "You want me to take you in?!?! After ignoring my OCD and bulimia after,--- well, a whole bunch of sh*t- You want ME to take care of YOU?!?" And when the posters come on saying it is wrong to think this and that and you have to be thankful for everything it IS annoying BUT when a poster comes on and just simply tells of a joyous event or the love that is happening I don't find that annoying- I find that helpful!! I find inspiration in that and-hope. So I thank you, equillot, for sharing some positive stories! And I feel for all those who need to vent! I know that if I do take Mom on full time I will need to vent!!! I just hope that I can also come on here and share happy times as well.
I am happy for all of you out there who have a mother or father who validates you daily, has a sweet and kind disposition (and not just in front of you or company - but ALL the time - meaning it is genuine. Most of us do not have that. It may have begun that way - but it doesn't always end that way. And often we are just plain tired. Many have jobs and children still at home or their health isn't what it once was. Most of us are not young anymore. This isn't the way we envisioned our later years - by the time it is over - our life is about over too. Boy, I had better just give this up - I am depressing myself and I WAS having a decent day :-)
But, I think maybe you get the point. Not everything is sunshine and roses for MANY and this is their outlet - a place where they can come and 'complain' to a group who should be able to UNDERSTAND and just listen and validate them. I think that happens more often than not.
I do see some who are telling people to 'buck up' and 'stop whining' and 'if you feel guilty then it's YOUR FAULT.' Come on - give somebody a break. This is not way to encourage. If someone has changed someone's diaper 10 times in one day due to diarrhea - let them gripe away. Support them. What's so great about CRAP??? Sure, we love our parents - but let me tell you that adult poop IN NO WAY resembles baby poop!!! Been there - done that - and I KNOW THE DIFFERENCE.
I will shut up now. Hope everyone gets a GOOD day this week. :0)
Mimaloha, I am now in another country but I really think you have to have your mother sign a proxy that allows them to discuss her care with you. I am in the process of getting an Enduring Power of Attny, a real case of gymnastics for me since she was diagnosed with cognitive decline, I had to get the consultant state in writing that at this point in time she'd be able to understand about her finances and medical needs, right now, the time is ticking and it is not easy for me. As far as I know, unless you have signed a release they can't discuss her care with you. Has been the case for me here, and I have had to fight to find out what I needed to know.
It does EVERYONE good to let out the pent up emotions. I agree with some of the posters that unless one has walked in anothers shoes, they shouldn't judge or criticize. Everyone is handling their situations the best they know how. If any one of us can maybe offer suggestions or alternatives so be it. No one has to accept suggestions or alternatives that they don't believe in or agree with. As long as we also offer empathy, support, compassion and understanding, that's a must. Blessings
So yes, this forum is essential in my life because I don't have any other person or outlet that will ever understand what I go through. Thank you other caregivers for allowing me to VENT!!! God bless you all.
Great post Queens! Couldn't agree more............... one life is not more important than another - parents should not expect more from their kids than is reasonable - and reasonable is not determined by their wants and needs alone............. Good post.
Regarding the remark about whining, and the response to it, I intend to whine a little on here when I have a bad day. If someone tells me not to, I wont listen to them. I'll just ignore them and continue whining untill I get the compassion and understanding I need, and I would advise others to do the same. Try to ignore negative feedback and instead, pay attention to people who say things like "I know just how you feel!" or "I hope things get better for you!" or "Hang in there, it will be okay!" Or those who offer you good advice or share stratagies that worked for them. Everyone is entitled to their opinoin, even if you disagree with them.Im not sure why you let it bother you so much.Maybe they are trying to make themselves feel better at your expense, perhaps to compensate for their own shortcomings, either real or percieved. Maybe they just had a really bad day, or maybe they just didnt think before they clicked "submit" and didnt mean to hurt your feelings. Either way, its just her opinion, not a fact. So dont let it keep you from getting the support you need.I dont see it as whining, I see it as sharing your feelings with people who understand because they are in similar situations.
Regarding what we "owe" our parents depends on our individual situation, how our parents treated us, (or MIStreated, as the case may be).
Generally, in a family where you know your parents did their very best to raise you and sacrificed for you, if they tookk care of you when you were sick, and now they need help, I think you do owe it to them.But what does that mean? Does it mean you owe them whatever they want? Does it mean your needs no longer matter? Sometimes elderly parents are unreasonable. They expect their children to just drop everything and travel hours every time they need something, and when they complain, they guilt them by saying things like "I carried you for nine months, nursed you for two years, changed your diapers, fed and clothed you, supported you, paid for your college...and so on and you wont even come help me change a light bulb?" Never mind that you live two hours away, have three small children, a husband and a job and you have already been there seven times in the last three days to help her. Never mind that she has the option to sell her house and move closer to you but refuses to do so, instead, insisting her childen come to her. Never mind that your four siblings who arent pitching in.. Never mind that you have all offered hire someone to come in and do some of the chores but she refuses, preferring instead, to make you jump through hoops.
I have read a lot of posts on here about people who do wonderful things for their parents and sacrifice a lot for them willingly. Thats great! But I have also read a lot of posts by people who are trying their best to accomodate parents who are ungrateful, demanding, selfish and stubbornly refuse to meet their children halfway. In those cases, I say no, you do NOT owe your parents. At least, not nearly as much as they think you owe them. Your needs are important too, not to mention the needs of your spouse and children. If a parent expects you to lose your job, your home, neglect your children, ruin your marriage to take care of them and they cant compromise with you then they are taking advantage of you. I
I haven't been here that long, but I'm not exactly new, but one thing I do know for a fact about this site is that nobody, not one single person here, is 'whining'. And if they were, well, God knows they've earned the damn right.
I've been my mom's caretaker for 10 long years. I'm doing this because I'm an only child, because it was simply the right thing to do. Do I 'owe' this to my mom? Hell no. I don't owe my entire existence to anyone on the planet, ever, for any reason. Nobody 'owes' total and complete self sacrifice for the sake and well being of another human being, any human being. But when it comes right down to it, that's exactly what it is, and in my humble opinion, anybody that takes on such a godawful, heavy burden has EARNED the right to bitch, piss and moan, complain, yell, scream, and smash dinner plates in the drive way if that's what it takes to unload the sheer WEIGHT of this GIGANTIC, IN YOUR FACE responsibility. Everybody here is a hero in my eyes and they can do no wrong. I say rage, WHINE, cry, yell, whatever, till the cows come home here. Most of us just get it.
As for the religious aspect of it all, I don't begrudge anyone their beliefs, and I'm not really offended by any post with religious overtones, unless it's just something outrageous...like how 'grateful' I should be to have been gifted with such a beautiful opportunity as giving and caring for a miserable, unhappy elderly person without a single shred of ability to appreciate how good clean, crisp sheets, clean nightclothes and breakfast and coffee served first thing in the morning really is, or what a wonderful thing it is to have someone there to wipe their ass because they can't anymore. Yes indeed. I might just wake up one morning down the road when this is all over and really be HAPPY about all the freaking sacrifices I've personally made to make a good life possible for my sour, unhappy mother, but that time damn sure ain't NOW.
This site saved my sanity. Period. I had one toe into the land of crazy before I found this place. I thought I was heading for the certifiable stage before I found this site. Reading other people's views, opinions and most of all, their stories, pulled me back from the brink. I realized that I wasn't alone in this, in how I felt, that people actually GOT where I was coming from and why, and that was HUGE for me. Almost every story I've read I can relate to in some way. I get totally the frustration, the anger, the guilt, the exhaustion side of care giving because that's where I'm at personally. I wish I could remember when the last time I slept more than 3 hours at a pop was. Lack of sleep doesn't exactly make me friendly. I get the ugly side of care giving because I've been living it for a long time. In my most humble opinion, there's nothing pretty about any of it and if people need to come here and get that poison out of their systems, I'm all for it. I'm real short in the soft, warm and fuzzy department lately and I totally get why other people are, too.
I didn't say anything to the user who told the OP of that thread I mentioned to stop 'whining' because enough people reamed that user before I got there. lol But yeah, please don't be one of those that come here telling people to 'stop whining' if they need to express frustrations, etc. Some of us don't always feel all nicey nice. We bite when provoked and you're liable to leave this site without your head attached. heh heh God help anyone who told me to 'stop whining' on this site. I wouldn't take it well to put it mildly, all things considered.
I also feel that when I first found Agingcare that it was almost an answer to a prayer. No one who is not a caregiver can possibly understand the HUGE frustration in such mundane, daily interchanges with an older person who is totally unhappy or totally dependent or sadly, totally a 'space cadet' due to disease. But understanding is what I found. Compassion. Empathy. Kindness.
I feel so sorry that some of the members on this site now feel that they have been attacked for exposing their feelings here. Feelings are just that. We all have the right to our own. Sometimes they get mixed up and need straightening out. But since I feel we are all 'wounded warriors' here - we all need to be gentle and kind - lest we contribute to someone's pain. Support is what we should offer. Our words should be 'seasoned with salt' - a little salt improves flavor - too much and we gag.
Hang in there all. I'll be back in a while. THANKS AGAIN - YOU ALL HELPED SAVE MY SANITY - for now, at least.
This site is many things to many people and we change/evolve over time as we all struggle, fail, grow, learn and progress through our common situations/experiences as care-givers. This should be a SAFE place to embark upon the journey of care-taking.
Dismissive comments and advice are useless and only assures the one posting gets a sense superiority. Nothing more.
We are all unique in how we migrate through he role of care-giving.
Over the past few months I have read posts which vary from the 'pragmatic and practical' advice offering to the more 'overwhelmed and emotional' cry for help and guidance.
My first post was that cry for help- I felt so completely alone, isolated, exhausted, depressed and suicidal. I was dangerously close taking my own life.
Neither of which I feel today partly because I found Compassion, Understanding, Empathy and a lot of excellent advice from many really good people (you know who you are and a few have posted on this thread) who were patient and willing to listen to me "complain".
"Complaining" has its place- it can be cathartic and allow a person to move toward a solution(s).
I realized with the help of certain committed members, that it is OK to feel angry and frustrated and exhausted, it is OK to want out of the role of care-giver and NO ONE should criticize this.
Good Luck